so i still dont know if ds2 is going to have surgery or where

[lou33]

sigh

i drove from surrey to oxfrod yesterday to take him for a consultaion about hwthewr or not he needs surgery on his legs, and if he needed anything more specialised

(depending on what he needs it can be done locally or in oxford)

but after checking him over they now want him to go to a gait assessment clinic (also in oxford) to try and work out what kind of improvement it will make, BUT he has to be able to walk

he cant walk, not even with a frame, which was the point of assessing him for surgery, so we are in catch 22


they said they still want to see him there and will find a way of getting him upright to do it, but can i just pull my hair out please?! all in all i was driving for 4.5 hrs yesterday, for a 140 round trip, due to being stuck on the bloody m40/m25 in rush hour , for an appointment that told me bugger all

i have to see his consultant at the local hospital tomorrow and have no news

not sure how long i will have to wait for this bloody assessment clininc now

[lou33]

someone symapthise with me, my brain is frazzled from trying to work out what to do with my other kids if he has to have surgery in oxford!

[mymatemax]

pointless appnts are so frustrating, I hope tomorrows appointment is more helpful.
Whereabouts are you?

[onlyjoking9329]

sorry it all sounds very stressful, will things be any clearer after tomorrows appt
sorry can't offer any advice, sure someone who knows this sort of stuff will be along soon

[lou33]

yesterdays was supposed to be hte one to decide what surgery he needed and where it would be done

i actually have no idea why i ma seeing hte consultant locally tomorrow , but i might question him about this oxford stuff, its such a long way to go from nr guildford to oxford, and i have 4 kids not just ds

(thanks for pandering to me guys)

[mummytosteven]

sorry that the appointment today was a bit pointless, pita that you have to trek down again for yet another clinic before anyone makes any other decision.

[lou33]

yes, and difficult for childcare, i had to take all of hte kids out of school to do it, because i couldnt get anyone ot watch them

[mummytosteven]

that sucks Lou. is there anyway to time it so that you don't have to take all 4 if you do end up traipsing back to Oxford?

[mummytosteven]

I mean if you can try and twist their arms to give you a particular appointment time.

[lou33]

well i said that when i was there

the first appointment they sent me was for 11.30, which was ok, but it was cancelled and rearranged for yesterday at 3.30, and because i thought it was such an important appointment, i didnt want to cancel it myself

but i did ask for a more reasonable time to be given to me next time

god knows what i will do if he does have surgery in oxford, i cant really rent a place to stay being broke

[mummytosteven]

would there be any chance they would have any family accommodation at the hospital for this sort of scenario, or am I being overly hopeful

[lou33]

i have no idea tbh, you would think so wouldnt you?

[mummytosteven]

assuming it's the JR, "There is be accommodation for parents to stay overnight, either next to their child?s bed or in a dedicated parent/carers accommodation suite."

[hmmm]

[lou33]

no its the nuffield orthopaedic

[lou33]

oh bloody hell what a waste of time todays appointment was

[mummytosteven]

ministry for timewasting again was it?

[lou33]

totally, and there was a really bratty kid in the waiting room as well, plus we went in an hour late