DD has been having weird stiffenings that might be seizures or might be her CP. To my anxious mind they look like tonic seizures (she does have complex partials already) and thus might be Lennox Gastaut syndrome and then she'll regress mentally etc.
I can't eat or sleep. I've talked to her paed who thinks LGS is unlikely and we're seeing him next week and there will be a 48 hour EEG when the NHS is ready so all that can be done is being done. But I am just in tears with worry about this and needed to vent.
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Too anxious to eat or sleep
7 replies
bobalinga · 18/05/2007 09:43
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