Hello I'm new here!!

[sidge]

Hi there, I'm a newbie! I have 3 daughters and DD2 is 3 with a genetic disorder. She has hypotonia, no speech, feeding problems, global delay and learning difficulties. But she is completely gorgeous and amazes me every day

[AitchTwoOh]

hello sidge, welcome to Mumsnet!

[Wotzsaname]

hi sidge, its a little quiet now, but warm welcome to you.

[Tamum]

What a lovely post sidge. There will be people along later who can share experiences, I know

[Dinosaur]

Hello sidge!

[Woooozle100]

hello sidge waves

my dd is 2 next month. She has rare chromo disorder and has range of probs similar to your dd. There's some piccies of her on my profile

[Mitchell81]

welcome Sidge, my DD who's 6 also has an unknown genetic syndrome with no speech and developmentally delayed with other physical disabilities. mumsnet will provide you with lots of advice and kind words especially SN

[bobalinga]

Hi Sidge, I have a 3 yo daughter too. She has severe cerebral palsy, no speech but is bright as a button. I have 3 other kids.

[sidge]

Thanks all for your lovely words of welcome. It's nice to find somewhere to chat with people that share my sort of life! My special girl is great but life can be hard and frustrating (as no doubt you all understand )

We are "lucky" in that we had an early diagnosis for DD2 - she has Prader-Willi Syndrome - but it is so rare that there are no families local to us with this. Mind you a lot of the issues we deal with are pretty common so I do get support at local SN groups etc.

She had an NG tube for 18 months and was on oxygen for a year, but things are much easier now in that respect. She recently started at a brilliant nursery 2 mornings a week which is great for her, it is a fantastic place. Mainstream but with amazing inclusion so she is very well supported.

Anyway I have waffled enough for now, thanks again and nice to meet you all!

[2shoes]

Hi Sidge your dd sound lovely. my dd is 12 and has cp. she is severly disable and has epilepsy but is the brightest funniest child.

[mymatemax]

Hi Sidge
I've not been here long myself but its so addictive & lots of good advice & support.
Your dd sounds lovely.
My DS2 was born at 28wks, he has mild CP, GDD,asthma, OCD & anxiety disorder wiht autistic traits.
Also a lady at work has prader-willi & is just fantastic.

[eidsvold]

hiya sidge - I too have three daughters - dd1 is almost 5 and has down syndrome. She has a friend who has prada willi syndrome. I used to live in the Uk but am now back in my home country of Australia.

welcome to mumsnet

[lourobert]

Hello sidge. I have a son whos almost 18 months old. He had Williams syndrome and also has epilepsy. Hes severly delayed but seems to be doing each day that he doesnt have a seizure.

Ive worked with a few adults with Prada Willi, used to love working with them.

[theheadgirl]

Hi Sidge - I'm also Mum to 3 beeeeoootiful DD. My dd3 has downs syndrome and ASD and she's 6. She is at a lovely special school which has helped her to start to communicate with makaton and Pecs. I've found MN very helpful, in particular the SN board. Hope to chat to you soon.

[lourobert]

Christie, Since my sons dx I have met many children and adults with WS though the WS foundation. I actually grew up with a girl with Williams and her son also has Williams (small world!)

Must be noce to see your students go onto the next step after working with them for so long...!