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Here are some suggested organisations that offer expert advice on special needs.

Here are some suggested organisations that offer expert advice on special needs.

SN children

Finally someone believes me!!!!

17 replies

mieow · 06/07/2004 21:57

We have been to CAMHs today to try and sort out DD1s behaviour. They observed the children and asked lots of questions. They left the room briefly to chat (I think they were watching us from another room) and came back. The doctor said they agree that DD1 has Behaviour problems!!!!!! Finally, we have only been saying the same thing from 2 years. They want a meeting with everyone involved with DD1(Social worker, consultant, GP, nursery, advisory teacher etc etc) and want Respite put into place ASAP. They also said that the nursery and Education dept are being very silly thinking she will cope in a mainstream school, and mentioned a behaviour unit for her. They want to try and get a statement too. They said that she will always have Behaviour problems. I asked if they were going to name it, and he said no, as it will make no difference, she has behaviour problems and thats that.
Can't believe after two years of us saying she has behaviour issues, someone actually believes me!!!!

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lou33 · 06/07/2004 21:58

Well done Mieow. It pays to keep banging on the doors sometimes

How is ds and his knee?

coppertop · 06/07/2004 22:04

Well done on finally getting someone to listen to you, Mieow. Hopefully you and dd will finally start getting some help now.

blossomhill · 06/07/2004 22:06

Good for you Mieow. Hopefully this will open doors for you and your dd. Children can make so much progress with the right help.

mieow · 06/07/2004 22:07

Still in pain still having meds three times a day.

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lou33 · 06/07/2004 22:09

Sorry to hear that mieow. Do you think it may be stiffness, and that baclofen would help?

mieow · 06/07/2004 22:13

NOt sure Lou. Anyway DD1s behaviour has always been put down to her CP and delays, but the doctor said she has Behaviour problem and it will get better when she is about 40!!!!!! OMG I'll be 60 then!!!!!

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lou33 · 06/07/2004 22:15

Blimey! Are they going to get her any extra help now?

mieow · 06/07/2004 22:23

Thats the idea anyway, they want to get a Statement as they are sure she will not cope in mainstream and its one of our main concerns too. They said they see it all the time, the Education dept. put these kids into mainstream schools and then the kids can't handle it and they have to move them anyway. Her nursery have given me reports that quote that DD1 plays alongside the other children, not with them, that her eye contact has improved but is still an issue, that her physical skills are over half her age and she would benifit from some support.
We'll see what happens

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lou33 · 06/07/2004 22:26

We have just finished statementing, it wasn't as problematic as I expected. In fact there were no problems at all. I hope yours goes as well.

mieow · 06/07/2004 22:27

Thats the idea anyway, they want to get a Statement as they are sure she will not cope in mainstream and its one of our main concerns too. They said they see it all the time, the Education dept. put these kids into mainstream schools and then the kids can't handle it and they have to move them anyway. Her nursery have given me reports that quote that DD1 plays alongside the other children, not with them, that her eye contact has improved but is still an issue, that her physical skills are over half her age and she would benifit from some support.
We'll see what happens

OP posts:

mieow · 06/07/2004 22:27

Thats the idea anyway, they want to get a Statement as they are sure she will not cope in mainstream and its one of our main concerns too. They said they see it all the time, the Education dept. put these kids into mainstream schools and then the kids can't handle it and they have to move them anyway. Her nursery have given me reports that quote that DD1 plays alongside the other children, not with them, that her eye contact has improved but is still an issue, that her physical skills are over half her age and she would benifit from some support.
We'll see what happens

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mieow · 06/07/2004 22:28

whoops sorry, kept getting page not found

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lou33 · 06/07/2004 22:29

Jimjams · 06/07/2004 23:33

well done mieow. Wish they'd just listen to parents in the first place!

misdee · 06/07/2004 23:35

yay!!
i know that seems an odd thing to be happy about, but finally after so many years someone agrees with u. makes u feel less like a neurotic mother now doesnt it.

Thomcat · 08/07/2004 01:49

Hi Miaow, happy and sad to read your post. At the end the day though it's basically good news. At last your baby can start getting the help she deserves, you can get the help you need and it must just feel as if a big weight has been lifted. I'm so pleased your voice has been heard.

mrsforgetful · 08/07/2004 23:45

I AM SO RELIEVED FOR YOU- I know how it feels to be ignored- and the relief to be heard is undescribable.

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