hello new here

[hilda258]

I have 4 kids, my youngest is 2years 9months. He has global development delay (he is between 12 & 18 months development wise), has epilepsy and microcephaly (small head not that it's noticeable!) No cause found as yet. Just waiting on genetic test results though some have come back as clear.

[NorksBride]

Hello hilda, I think the special needs parents have all gone to bed! Try them again mid-morning!

[lourobert]

Well, theres one 'special needs' parent still here and very much awake!

Welcome

[2shoes]

hello and welcome

[Mitchell81]

Welcome hilda

[anniebear]

yes lol, need to be in bed by 9!!!!!!

Hope you enjoy Mumsnet, partic this section!

[hilda258]

Hello all

[bobalinga]

hi Hilda. I have 4 kids too with the youngest with special needs. She has cerebral palsy, epilepsy and cortical visual imapirment. Not cognitvely delayed as far as we know. Small head but not microcephalic so they say. She'll be 3 next week.
Wanted to say Hi before I shoot off to the cinema with number 2 (13 yo boy)

[kimi]

Hello Hilda, welcome, come in have a cup of tea we're a nice bunch really and lots of good advice to be had, shoulders to cry on and we don't mind the odd rant from time to time.
Make yourself at home

[hilda258]

It's certainly not easy dealing with a special needs child on top of dealing with 3 other kids too, I'm also a childminder part-time though the minded children are easy compared to my LO ! I do feel I have no life anymore of my own, since DS came along everything goes around him and I have to take things day to day. He hasn't been that well this week which has made him more demanding than usual and he has been clingy too which he isn't normally but think this maybe a new phase he's going through. I'm not feeling down though I have my days like we all do, just saying how it is.

[mymatemax]

Hi Hilda
I'm a recent addition to mn too & its addictive.
I have 2 beautiful boys the youngest (4) has sn, mild CP, gdd plus 1 or 2 other things going on!
Hope you enjoy MN.

[Troutpout]

Hi
Welcome

[hilda258]

DS started having seizures the morning after he was born and spent his first week in SCBU, came out of hospital for a day and was then back in again on the childrens ward for another 3days - think they have been the worst days of my life - 1 min on a high, next very low. His eeg's and mri's and everything other test so far have been normal, just the ones from genetics we are waiting for. He's recently starting to take off with his walking though he is very unsteady still due to his reduced muscle tone. He still can't say any words but he does babble and makes certain sounds and gestures when he is trying to communicate, I've been going to baby sing and sign with him since he was 7 months - basically makaton - he can do some signs but not many and often needs prompting. He understands a little, recently started him on omega 3 and I'm convinced it has helped!! He is on tegretol and in january was started on keppra. He's been having 1 or 2 fits a week since christmas (all over the place previous to that), he had 3 monday night this week but that was due to a raised temp - he's not been too well this week . He is due to start nursery in september, done his statement and just waiting on decision - hopefully he will have an LSA.

[hilda258]

Fragile x and something else has come back clear. He's already had a general screening on chromosome but think they are looking at them more in depth. Wouldn't really say if anything in particular they are looking for.

[coppertop]

Just dropping in to say hello and welcome to the SN board.