Hi
I'm not sure this is the right place but hoping for some advice/ support!
DD is 16 weeks and was born 5 weeks early and needed an op and 2 and a bit weeks in NICU
We've been told she seems floppy in the torso- can't support her head or lift it, but 'stiff' in her limbs (dressing is always tough!) She also has reflux and now possibly a floppy larynx as she has apnea episodes after feeding where she struggles to breathe and then wheezes in.
She isn't yet fixing and following but has just started to smile a little particularly at voices.
She rarely cries and has a very soft cry, she sleeps a lot and feeding/ crying seen to exhaust her!
We're waiting for more appointments but they seem to be taking forever and in the meantime I'm in a real no man's land waiting and trying not to worry/obsessively Google!
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Hyper/hypotonia & visual delay in baby
1 reply
Considerphebas · 22/10/2016 18:08
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