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What happens after ASD diagnosis?

7 replies

MrsJ0612 · 21/10/2016 19:45

I think, from professional opinion, we are on the verge of an ASD diagnosis for DD (we see the paediatrician again next week). I just wondered what happens after? Do we still see the paediatrician at intervals? There was mention of an autism nurse? Any info appreciated :)

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Ineedmorepatience · 21/10/2016 20:28

In my area nothing happens!

If you are lucky you get added to the waiting list for a cygnet course and you would be told to find a parent support group.

I hope your area is better (mind you that wouldnt be hard from such a low baseline).

Good luck Flowers

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Bananasinpyjamas1 · 21/10/2016 20:33

Nothing too! It's kind of unbelievable really. Hope your area is better.

Oh, sorry, unless you count the really tedious parenting info sessions on ASD... parts of my life I'll never get back.

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Friolero · 21/10/2016 20:40

Same here really - nothing happened in terms of other appointments, although when we got the report setting out DS's autism diagnosis there were a lot of recommendations that fed into his EHCP which was useful.

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coff33andChoc · 21/10/2016 20:49

agree, nothing. we see paed anually but more as formality. no help/support otherwise (apart from 1:1 support in school via Ehcp).

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cowssheephens · 21/10/2016 21:23

Nothing here too.

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Shesinfashion · 22/10/2016 11:05

Nothing at all. Dismissed with confirmation of diagnosis and signed off.

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FrayedHem · 22/10/2016 12:50

How old is DD? When DS1 was dx aged 3, it did trigger a couple of things. The paediatrician did a notification to education which is specific to preschool age DC in my area, and DS1 was then seen by Ed Psych and a Specialist Teacher became involved. The preschool then also got additional funding. We saw the diagnosing paeditrician 6 months later and were then discharged back to the community paediatrician. We were also given information on an ASD parenting course.

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