DS3 and DS4 are epileptic, DS3 has prolonged tonic clonic seizures lasting at least 15 minutes at a time, luckily well controlled and down to a few a year. DS4 has tonic clonic seizures at night about 5 nights a week and 2-4 a night, and he has absence seizures during the day. I was wondering if anyone else is dealing with this as it would be interesting and helpful to hear how other families cope with it.
Similarly, DS4 and DD2 have hearing loss, DS4 has moderate to severe bilateral sensorineural hearing loss and wears two hearing aids and a radio aid. DD2 we thought had the same type of hearing loss but after a confusing audiology appointment we now have a batch of tests to look forward to to see if she has a fluctuating hearing loss. As with the epilepsy I would like to know about other people's experiences with hearing loss.
Thank you
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Anyone dealing with epilepsy or hearing loss?
9 replies
MrsSam · 21/10/2016 14:30
OP posts:
zzzzz ·
21/10/2016 21:19
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