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Good News - thank you SOS!SEN

(15 Posts)
KeepOnKeepingOn1 Thu 30-Jun-16 07:29:51

DS1 has been out of indi ss since February 2015 and has been at home ever since, barely able to leave the house and has been unable/unwilling to meet with his EOTAS tutor who, despite never meeting DS1, still insists on visiting each week. His transfer to EHCP had begun and we had the Transfer meeting in January 2015 and we had official LA notification in June 2015 but it had stalled completely. Provision in the statement wasn't being delivered and reintegration into a suitable school was not happening on the basis that DS1 would probably never go to a school again. Their one solution was to keep pushing an unsuitable short course (all that was available pre-16).

SOS!SEN started the JR protocol back in March. Initially it appeared that the LA was going to defend - blaming parents where possible, blaming DS1's lack of motivation to attend school, saying it was not possible to find SALT or OT and that even if they could DS1 probably wouldn't meet with them and that ASD related anxiety counselling would be in Section H of any draft ECHP.

However, before officially proceeding to JR the LA have done what we asked - transferred to EHCP with no loss of provision and including reintegration plans and delivered therapy provision, whilst DS1 is unable to attend school, in his own home.

DS1 has been brilliant. I am so proud of him smile. He met with the LA EP and autism outreach to give his views to transfer. We now have a draft. Best of all, we did not give up with the therapists but just took over looking from the LA and, lo and behold, therapists were available to start immediately and, <proud> DS1 spent over an hour yesterday with an indi SALT!! He has now spoken to three people in the last month! This is more than in the last year and a half and is the first step back to some sort of future he can look forward to. He is a star

PolterGoose Thu 30-Jun-16 08:55:32

I am so pleased to hear this, well done SOS!SEN, you and ds1 flowers

Onwards and upwards smile

KeepOnKeepingOn1 Thu 30-Jun-16 09:32:47

Thank you. flowers

The transfer review report that I helpfully wrote for the LA is included as an appendix to the EHCP in Section as a report written by Mr WeAreAllOnTheSpectrum, EOTAS Lead Tutor, LA shock That's not my name grin

'He' wrote "The LA appears to the making very little attempt to support DS1 ... he is not receiving appropriate tuition via EOTAS and there is no reintegration plan" and doesn't pull 'his' punches in numerous other criticisms. Ooh what a radical. grin

PolterGoose Thu 30-Jun-16 09:34:22

grin

zzzzz Thu 30-Jun-16 11:16:26

keep oh such good good news. I hadn't appreciated the enormity of it all. Well done, you clever and stalwart things. I am constantly amazed at the shear guts of the posters on this board and their brave and embattled children.

KeepOnKeepingOn1 Thu 30-Jun-16 12:31:45

thanks zzzzz

Things have been awful. It is only now that we have a glimmer of hope that I can process just how stressful it has all been - I keep tearing up blush. I can't remember the last time I cried! I will have to paint on a smile for when the never-met tutor arrives to patronise me later. I was even crying on the phone to Family Carers who have been giving me support because the tutor told me that their organisation wasn't for the likes of me - it was to support people who had 'real' problems and were caring for a relative with dementia etc. shock

zzzzz Thu 30-Jun-16 13:04:33

Pretend the Tutor bores you and let it show.
Call her/him "never-seen-Tutor" with a little tinkly laugh.

angry

claw12 Thu 30-Jun-16 13:44:58

Great news, well done for never giving up wine

ChowNowBrownCow Thu 30-Jun-16 14:15:15

flowers
well done - I can relate to the tears. Didn't cry once throughout the whole process. But now I cry even if a hospital receptionist is kind to me. I think its because you have to hold it together and put on a warrior like suit of armor for so long, then its utter relief. Well done keeping on.

zzzzz Thu 30-Jun-16 14:30:01

I cry too. Was fine till ds was back in school and now I am an embarrassment blush

KeepOnKeepingOn1 Thu 30-Jun-16 14:55:17

flowers claw and chow

I smiled sweetly (I think my tinkly laugh would sound too creepy). The tutor had a sad face that DS1 had met with the SALT therapist yesterday. He grudgingly said he was 'pleased' but forgot to put his 'pleased face' on angry and acted personally wounded for the male sex. DS1 finds meeting women less intimidating than meeting men - it is not a 'gender issue'. DS1 has strong preferences and discriminates against people for all sorts of reasons that make no sense to me but do to him in a non-discriminatory way iyswim grin.

Acting in the best interests of the child means respecting their preferences. The LA keep on sending the same male tutor who tells me that this is because a female tutor is not available. We have asked for direct payment to find our own tutor as EOTAS are only allowed to use one agency but we do not have the same constraints. To put this is context DS1 has had less than 5 terms of secondary education at age 15.6 but is at least cognitively average and more than capable of achieving in line with his ability in the right placement.

I think the LA were hoping to keep delaying things until DS1 met the age criteria for post-16 non-school provision. Before SOS!SEN officially wrote with their headed notepaper, they gave me the text to email to the LA. The LA said that they were not able to Transfer DS1 as they had other DC who were a priority (after the statutory deadline hmm) and only had a duty to deliver provision if DS1 was attending school. They claimed that the Statement was now useless as 'things had changed' and DS1 would probably never go back to school and as he would not meet his tutor their hands were tied - there was no point arranging provision of therapy and there was no point planning reintegration into school. So the excuse for doing nothing was that DS1 would not engage with an unsuitable tutor.

DS1 has now shown that he can and will engage with someone else. If despite all this JR stuff, he was still unable to engage I would have been well and truly fucked. But he did it. He took the first step and we can work on that.smile

And for DS1 football (I rewarded him by pre-ordering FIFA 17 Super Deluxe Edition)

Ineedmorepatience Thu 30-Jun-16 17:25:50

Brilliant news keep your Ds is so lucky to have you supporting him hope things continue to move forwards for you all now. flowerswinecake

JudyCoolibar Thu 30-Jun-16 19:23:27

Fantastic! Well done you, well done SOS SEN, especially well done your DS. It sounds as if your LA very blatantly were hoping to string things out so that they didn't need to do anything for him.

I love it that your criticisms of the LA have been ascribed to PlonkerTutor. I wonder whether he knows?

youarenotkiddingme Thu 30-Jun-16 21:43:55

Well you kept n keeping on and you both got there. flowers

Well done. And well done sossen for stepping in and up and for mr I'mclearlyaftermyP45 LA man!

MeirAya Fri 01-Jul-16 19:33:30

Yay!!!!!!!!

Ombudsman now?

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