Hi
I am interested in other parents experiences of what they have got from the NHS.
We decided that there was nothing meaningful we could get from them to help our son, so we decided to go our own way. We saw that engagement with them involved a long strenuous battle to get an assessment, and once the diagnosis was made, nothing more that could make any difference to our lives. It's as if they are resigned to there being nothing to do to help autistic children, which we know from our experience (once we were able to give our energy to finding alternatives) is not the case.
I have written about our own experiences with the NHS on my blog at - transformingautism.co.uk/opt-out-nhs/ - I would love to hear your experiences in the comments (it would also help me as it is a brand new blog and I am trying to get some activity on the various posts. It is about redefining autism, not as a disability, but as a condition of great sensitivity that could bring so much to our world if only we could respect it and bring out the best in autistic children).
Guy
Here are some suggested organisations that offer expert advice on special needs.
SN children
Experiences with the NHS
guyshahar · 04/05/2016 09:49
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