Hi everyone. My dd3 was born ten weeks early and did very well in neonatal, coming home at six weeks old and thriving. However, she has been developmentally delayed and the possibility of cp was first mentioned by peadiatric team in September, when she was 7 months old. She is now 15 months and has, yesterday, been seen by the senior consultant peadiatrician who seems to feel that it is cerebral palsy. At the moment they are relatively pleased that physio is helping her and she is progressing well, but feel she is developmentally delayed. She didn't sit unaided until ten months, roll over until 11 months, hold a rattle until six months, she crawled at 14 months and has just this week pulled to standing. When she crawls she often drags one leg under her, although she CAN crawl properly. She doesn't yet walk. She also only has one word, dada.
The Dr doesn't want to do a brain scan yet as he feels it isn't going to tell us anything new, and will require general anaesthetic, which obviously has its own risks. He wants to see her again in three months.
I'm clueless as to where to go from here. What am I meant to do? How can I help her? What's next? I'm dealing with so many emotions, I feel guilty that my body couldn't keep her safe for longer, that it's my fault. I'm also struggling with people who don't understand. Comments like "she seems fine to me" and "she's just a bit lazy, she'll get there eventually" aren't helping me. Even dh doesn't seem to understand how hard this is for me to cope with.
Sorry for the essay, thank you for reading.
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23 replies
dancestomyowntune · 29/04/2016 03:04
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