Here some suggested organisations that offer expert advice on SN.

Cri du chat

(5 Posts)
Blink2316 Wed 27-Apr-16 16:55:01

Just found out my 1 year old has this rare syndrome. Does anyone have any experience with this?

whatamess0815 Wed 27-Apr-16 18:29:53

my DD also has a rare genetic disorder.

I found Facebook the most useful in connecting re her specific deletion. Have you checked if there is a 5p Facebook group? have you joined unique. Unique also has a Facebook group (but you can only join once you are a unique member).

Blink2316 Thu 28-Apr-16 19:02:26

I'll have a look now thanks x

whatatod0 Thu 28-Apr-16 22:48:45

hi. my sil has it. she is in her 40's. Do you know to what degree your dc has it?

DanniRN Fri 29-Apr-16 14:07:59

Hello love. I have a 20 month old who has 5p- (cri du chat). There is a large support network on Facebook. Here is the link: m.facebook.com/groups/385907554759706?tsid=0.7719166437163949&source=typeahead

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