Hello
I apologise in advance for a long and rambling message. I am not sleeping well and am all over the place with worrying about whether or not I am doing the right thing by my son.
He is 8 years old and since a very young age my husband and I have felt he has shown signs of Aspergers but we were managing it at home and there were no obvious signs of anything unusual at school. Although it was exhausting for us dealing with the melt downs at home, we accepted this was our little boy and we worked with it.
6 months ago, an event happened at school which I can't go into detail with as an investigation is still ongoing. It resulted in a huge rise of his anxiety and everything that we have experience at home started very suddenly to appear in his every day school life. If I 'google' aspergers - he is a classic fit. However, having brought this up and put into place things with the school to help with his horrendous anxiety I am now terrified I have started an unwanted ball to roll.
We have been seeing the doctor who recommended a CAHMS referral which I completed as did the dr and the class teacher. The referral came back saying he needed to see the school nurse for 6 weeks of therapy before they would see him.
I arranged for this to happen with the school nurse but due to funding this has only happened once every 4 weeks and we have only had 2 sessions which I feel is not consistent enough. I arranged private play therapy through a qualified therapist I know and trust and he is now having this at school (though funded by us) every week. He is also having ELSA support with a TA.
I met with the SENCO last week and mentioned my thoughts about Aspergers. She is highly qualified and I really respect her opinion. She said she'd had thoughts about this and thought a referral to a Pead doctor at the hospital would be worthwhile. Our doctor also thinks this is worthwhile. The SENCO has done a detailed assessment which is spot on and is exactly what my son is like but it all just seems to stark on paper. I am worried that with all this intervention, things could actually get harder for him rather than easier? I am worried that I am 'making' things worse than they are. But on the other hand I had to take three weeks off work to get him into school in the morning so it's not as if the problems aren't real.
I was a primary school teacher until 2 years ago so I am very informed with how the process works and have helped other parents go through this. But it is so daunting being on the other side.
I come from a family where mental health is seen as 'made up' and have been told that he just needs to toughen up and stop being a wimp. They think all this intervention is going to make him feel isolated from others or weird. Obviously I have stood my ground and tried to inform them but there is still a niggle in the back of my mind that I am pushing too hard for a diagnosis - despite all medical/teaching professionals so far agreeing totally.
I don't even know what I am asking really. Just whether there was anyone with any strong feelings one way or another or anyone else in a similar position. I don't want to 'label' him for life if I am just being over the top - but on the other hand it is clear he will need extra support throughout primary and secondary school. Please help! And thanks if you have got this far!!
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Sudden worry - am I doing the right thing or making things worse? Possible Aspergers
5 replies
Happysea · 26/04/2016 10:33
OP posts:
zzzzz ·
26/04/2016 12:18
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