Hi, My DS is almost 11 he has Asperger's and Joint hypermobility syndrome. He has always asked me to help him with his work and complained that the work at school is hard (especially the writing) but he could never tell me in what way even though he practically rips his hair out to tell me. I have observed him over the years and I am certain that the hypermobility and fatigue is restricting him from producing the work in a neat enough fashion for the Asperger's perfectionism IYSWIM? Which is getting him in so much trouble and I can see his frustration because if he can he will, unfortunately to the class teachers this looks like he does when he wants to. He does get pain in his fingers and wrist (and many other places) and we have found him a pencil grip which he said helps a bit.
Ds has been assessed by OT twice but both times the focus seems to go onto the Asperger's and not wanting to do it being the reason he is refusing to write and the joint hypermobility is just disregarded even though I know for a fact this has a massive impact when he is trying to do things. The only person so far who seems to agree that the joint hypermobility is probably causing the issues he is having at school is his physio. How can I help him if the key professionals don't see what I do because right now I am out of ideas. High school is fast approaching and I don't know what else to do.
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Please, please help me with this conundrum
8 replies
runningouttaideas · 20/01/2016 12:27
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