DS is just 2. I'll give a bit of background. He was born at 33 weeks. He had an MRI on his due date as he had had some irregular movements in NICU. The results of the MRI were bilateral cranial calcifications. DS has had developmental delays and has only recently started walking. He is still under his neonatal consultant and has been having fortnightly physio for a year. The health visitor has also referred to salt and portage.
So it has obviously taken me a bit of time to get my head around this but I am coming to terms with it all.
However DH seems to be in total denial! We saw the consultant last week and it felt like we were both talking about a different child. DS can only walk a few steps without falling. He wears piedro boots, has a limp, a wide gait and tip toes walks. He can't climb any steps. Anyway DH told the consultant that DS can climb the stairs at home totally unaided - me and the physio ( she attended as DS will not allow people to examine him) just looked at him with confused faces.
Also last night DH asked me if DS had hurt his leg as he was limping badly but that is how he always walks!
Sorry if I'm rambling and that this post is so long but I feel so confused. Has anyone experienced their DH being in total denial? He seems to think that a pair of trainers and playing football will cure DS. While I feel so alone trying to sort things for the child we actually have.
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DH in denial
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NoraOrNot · 17/01/2016 20:49
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