there is light at the end of the tunnel diagnosis at last

[mumneedshelp]

my ds as finally been diagnosed with asperges syndrome after 3 years and 2 assesments i just want to let parants know never give up. my ds was refered 3 yrs ago he already had a diagnos of adhd and was on meds for this but i know there was somthink still not right , he had obssestions routines, and difficulty in social skills. i pushed for a referal and after 18mnths waiting he had an assesment they told me he didnot have asperges syndrome they had not even contacted school or education sycolagest who i may add was sure he had got it , so itold them i was not happy and asked for a 2nd appin whick took 12months and another assesment i made sure they had all reports from school ect this time they appolagiced and addmitted they had made a mistake and addmitted YES he has got asperges syndrome and also refered my other ds for the same condition .so my message is dont give up there is light at the end of the tunnel and keep on pushing a mother knows her children best and make sure they have all reports needed before your assesment and good look all the best for christmas
ps sorry about spelling mistakes im not a good speller

[amynnixmum]

Thats great news mumneedshelp Well done you for not giving up.[fsmile)

[amynnixmum]

That was supposed to be a festive smiley

[saintmaybe]

You should be really proud for sticking with it. Lucky boys.

[mumneedshelp]

hope this message gives other mums and dads hope merry christmas to all

[jenk1]

just what i needed to hear mumneedshelp, we are in the same situation as you, 1 NHS psych said yes to AS her boss said no, we went private he said yes and the paed and Ed psych are agreeing, so we have written to the boss of the first psych to see what she has to say.

Well done on you for not giving up

[mumneedshelp]

stick with it jenk1 mums know there kids better than anyone the psych only read books about as we live with it that maks us more aware dont you think? the relief you feel when its writen on paper is great its a weight lifted off your shoulders and your able to move forward good luck and all the best mumneeds heip:0

[mum24boyz]

am glad you feel like that, cos i was wondering how i would feel when i finally do get a dx, feel quite guilty thinking i will feel glad, although must admit i will be a little smug lol. these proffessionals do your head in when they go on about labels dont they, i am so glad i am not the only person who wants to label her kids, i just think it makes it easier for us to deal with, if we know exactly what we are dealing with. well done mumsneedhelp, hopefully that dx will make life a little easier.

[mumneedshelp]

mum24boyz yes i did feel guilty at first but then i looked at my son and realised he would not be the some person without AS he has off days but he is very loverble in is own way and i realised i would not change him for the world he is also making me the person i am today . yes the dx will help not only dose it give me peace of mind as i blamed my self for a long time it will also get him more help at school and also when hes older as we have all got to think of the future and what it may hold for our ds with AS.good luck and all the best

[mum24boyz]

know what you mean mumsneedhelp, i can honestly say i wouldnt change my little man either, yes he can be hard work, but he is so loveable and can be so funny, never fails to bring a smile to my face. but yes a dx will be easier for the future, as i do worry about that also. all the best to you too hun.xx

[mumneedshelp]

any ideas on how to get him to sleep through the night he never seems tired