DLA enquiry

[DLAenquirer]

My son has ASD. He was awarded high rate DLA last year with low rate mobility.
I think the high rate reflected that he rarely went to sleep before midnight.
In may/June, his paediatrician agreed to try melatonin.
My son is now sleeping by 9-9.30, which is a huge relief.

I've waited a few months to make sure it wasn't a fluke, but he is now reliably sleeping earlier.
I need to let the DWP (?) know this don't i, I think he will go down to middle rate, or does the need for melatonin still mean he will receive high rate?

[c4kedout]

it is his care need. if he is now sleeping through you don't have to provide night time care and should let them know. it is about care, not medication.

[DLAenquirer]

Thankyou, will give them a ring on monday.

[deadwitchproject]

I'm in a similar situation with my DT2 but unfortunately the melatonin only gets him off to sleep at a reasonable time. He still wakes at night so haven't achieved the nirvana of sleeping through but we're in a much better place than 6 months ago.

[kojackscat]

Same here. But the Dr wants to review the melatonin in three months with a view to moving him off it. So I'm going to wait and see I think. If it becomes permanent I'll call the dla people. Though Lord knows we can do with the money, seeing as his sen means one of us can't work for more than a few hours a day.

[DLAenquirer]

That's a good point Kojack. Ds's dr may not prescribe it long term, unless he's under CAMHS.
We're still waiting for an assessment so I'll wait until I know.