Hi all, it's been a while since I've posted on these boards as life has been more than hectic these past couple of years. I am desperate though and this is the only place that can potentially give me some help and info re my DS's issues.
DS is 10, in year 4 (was in Scotland before and he started school at 5.5 so a year behind in English schools). Since he was in nursery we knew there was an issue with him but we didn't know what. We all thought ASD but as time went on I thought there was more to it. He wasn't assessed immediately and they just sat on it saying it might right itself but they put him on the waiting list for an ASD assessment. In the meantime he would cry when looking at books, couldn't remember any words even though we looked at them 2 minutes before and couldn't do any simple arithmetic. That said, school said he was a bright child with a vivid imagination who thought outside the box. We had him assessed privately when he was 6 against the schools wishes for dyslexia and they confirmed that he had an extremely spikey profile and that he had significant SPL issues with expressive and receptive language. School didn't want to know and said he was making good progress, the only issue they saw was him not socialisng normally which was true. We got a good SPL therapist privately who worked with him for 2 years and she didn't feel he was autistic as he is empathetic and is not at all rigid, she said it was his severe language processing that was causing his problems. Anyway, over the years we have tried various programmes, Fastforword, Davis programme, Tinsley House, IPP for retained baby reflexes, all the usual Toe by Toe, Jolly Phonics and the rest... We had him assessed 18 months ago by one of the top EP's in Scotland who said he was severley dyslexic with most probable ADHD and we should consider medication as his concentration was non existent as was his working memory and processing speed. At that stage we had to go abroad due to work which was a huge mistake as no resources for him so we have now managed to get back to the UK. He is now in a mainstream primary in Oxfordshire who said he is behind but ok in mainstream and not a candidate for an EHC plan. We think differently and are going for one ourselves. We live in Abingdon and took him along to the Unicorn School who have said they can't take him as gap too wide, he is currently at 1a for reading, writing and maths but did jump from 1c to 1a in 3 months at this school.
Anyway, to cut a long story short, they also said he has autistic traits but have said dyslexia is his primary need and they would have taken him if they had another couple of kids at his level but it just wasn't viable for the school to take him. He is having a trial at Appleford in a couple of weeks and if they say yes then we wil move to Wiltshire to start the EHC process, if they say no then I don't know what to do. We can find work around these areas but will be hard elsewhere and given that DS would literally hate to board it reduces our options. We have 3 other kids to consider, all younger than him with my youngest also having special needs in that she has Downs. I am desperate and feel that everything we try is failing. He knows his condition and is begging us to help him. He told me the other day that he doesn't think anyone can help him but he trusts me when I say we will, I don't want to let him down. We are going to have him assessed by a good psychiatrist to say yes or no to ASD/ADHD but I'm sure he is somewhere on the spectrum as it is so vast.
Does anyone have any words that could give us some insight as to what is happening here? Is this normal for schools to lie and say all is ok when it really is not?
Thanks so much for reading this mammoth post, I just feel so isolated with this and no one else really understands except other mums going through the same crap.
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Specialist Dyslexia School turned away severely duslexic son, help please
12 replies
Ang69 · 28/05/2015 10:45
OP posts:
LoupDeLou79 ·
28/05/2015 11:19
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LoupDeLou79 ·
29/05/2015 09:53
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