DS has just turned 3 and almost certainly has ASD. He definitely has a severe language delay (no language at all). DS is very frustrated, having meltdowns, is very strong and can be aggressive. Life is a challenge for him and for us all.
We have been pushing and ppushing for about a year for him to have support. We've been given the wrong information, and basically he hasn't had access to therapy and classes and whatnot that have been offered to other families. So we sent a letter setting out our concerns with the level of care and supprt he'd been getting. hey presto, DS suddenly has access to the same thinsg as other similar children. Hooray.
One of those things is a group therapy class for children with social communication issues. Great. This was set up five weeks ago. The classes run for two hours each, over five weeks in June, every Tuesday morning.
We have waited 6 months for him to have an appointment with a paed. The appointment came through this morning. It is for a Tuesday morning in June, smack bang in the middle of one of the classes.
The class and the paed appointment are in the same building.
I phone to ask if the appointment can be moved, or put back to after the class finishes. No it cannot. It would be treated as a cancelled appointment (and there is no waiting list for cancellations), and would have to be re-scheduled and they are now re-scheduling for September. The paed appointment is important to us, so we don't want to wait until September (having waited since December 2014) so I have told the person organising the classes that he will have to miss about three quarters of one class due to the conflicting appointment. She isn't happy, as apparently, when I accepetd the place at the class, it was implicit that he would attend all five of the classes. Well, yes, but that was befoer the apopintment with the paed came through!
Arggghhh. Would it be too much for the people making appointments to check as to what other classes had been booked in for that child, in the same building, so that they don't offer clashing appointments?
Please or to access all these features
Please
or
to access all these features
Here are some suggested organisations that offer expert advice on special needs.
SN children
A moan about appointments
4 replies
WellTidy · 19/05/2015 09:20
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.