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Here are some suggested organisations that offer expert advice on special needs.

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Here are some suggested organisations that offer expert advice on special needs.

SN children

Blub!

39 replies

lou33 · 20/04/2004 12:00

Just had wheelchair services around to assess ds2 for a proper wheelchair. The woman brought one for him to sit in, and he loved it, but omg, it was sooo hard seeing him sitting there. Fighting back the tears big time I was.

Anyway, she is ordering him one, so we should have it by summer.

He was really proud of himself, and even managed to self propel himself backwards and forwards with a huge grin on his face, but it is a real smack in the face iyswim. He will cope better than me I know. I wonder how I will cope by the reactions of others to him?

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Davros · 20/04/2004 12:04

That's good news Lou but understand that you must be feeling awful. Give him a big hug and bave a blub when he's not looking.

motherinferior · 20/04/2004 12:05

((((hugs))))

lou33 · 20/04/2004 12:08

Thanks both of you. I know I am being v self indulgent, and should just be pleased that he is being provided for properly, but it just looked so sad, even though he was so proud of himself. I should give my self a slap really shouldn't I?

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Blu · 20/04/2004 12:10

If he keeps smiling like that, who knows what people's reaction will be!

Bless him, and bless you, Lou - handing you a tissue and a bar of Green and Blacks.
XXXXX Blu

coppertop · 20/04/2004 12:15

Here's a virtual tissue from me too, Lou. With any luck the huge smiles on his face when he gets his new set of wheels will be enough to slow down the tears. xx

twiglett · 20/04/2004 12:17

message withdrawn

Bron · 20/04/2004 14:05

This reply has been deleted

Message withdrawn at poster's request.

luckymum · 20/04/2004 14:46

Lou - you have every right to be self-indulgent as you put it and the only slap you need is a pat on the back for being the great mum you are. I understand how hard it is for you. Big hugs X

Thomcat · 20/04/2004 15:13

I can't say anything and I wish more than ever that I could pop over and see you for 10 minutes and give you a real life hug.

bollocks to being self indulgent, don't be mad. Of course you must feel part awful for him, part happy. It's SO understandable, being self indulgent doesn't come into it, and you know that really.

I was the same with L's standing frame, I felt really weird and sad about it even thought i knew it was all for the best.

you love your kids and want the best for them and you'd really rather your son not have to have a wheelchair, any person in their right maind can understand that.

Having said all that though we know this is the best thing for him and he's happy and all that.

Please allow yourself to feel sad though and then you can concentrate on funking up his new special wheelchair and being happy that he;s happy and so on.

Love you loads Lou.
massive and well deserved hug winging it's way to you now.

TC xx

Beetroot · 20/04/2004 15:18

This reply has been deleted

Message withdrawn

MABS · 20/04/2004 15:24

Oh Lou, big hugs from me too. You just have to hang on to the fact that it will help him in the long run. Take care honey, I'm choked now...

MABS · 20/04/2004 15:24

Oh Lou, big hugs from me too. You just have to hang on to the fact that it will help him in the long run. Take care honey, I'm choked now...

lou33 · 20/04/2004 16:52

Thanks everyone, you are a lovely bunch!

I'm posting a link to his website, where I have uploaded a picture of him in the w/c he tried today, if anyone is interested.

here

Go to photo gallery, and it should be at the bottom.

If the link doesnt take you directly there, password is bolla.

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dinosaur · 20/04/2004 16:57

Lou...what can I say...he's so lovely - I noticed his big smile rather than his wheelchair - I'm sure that's what others will see too.

Thomcat · 20/04/2004 16:57

Wonderful, thanks Lou

You have to say Kidda that he looks really happy in it and I would definatley say that he looks proud.

I love seeing pictures of your beautifil brood and the lates pics of r are just fab.

I know it's shit that he has to be in a wheelchair mate but it'll be great for him and he does look very pleased about it all, love him to pieces

Thomcat · 20/04/2004 16:59

Absolutley Dino

Lisa78 · 20/04/2004 17:01

Lou, wish I had something inspirational to say, but can only echo what others have said here already
And that really is a huge, happy smile - can't wait to see the "customised" version of his wheels, bless him

Thomcat · 20/04/2004 17:04

I've got a life sized cardboard cut out of Gandolf he can strap to the back of it!

fairydust · 20/04/2004 17:14

Lou he is a lovely like boy and people that don't except him for that aren't people worth knowing...

I'm sure he will see it as a new adventure and all adventures have good and bad bits but it's all worth it in the end.......

Were all allowed to cry now n then it's what pulls us back together and makes us fight harder.

love fairydust.

Blu · 20/04/2004 17:16

Lou, he's going to SOAR! You can just see it. Bless him, I can't wait for him to be whizzing around on his wheels!

KPB · 20/04/2004 17:30

What an absolute sweetie your ds is. You must be so proud!!!!

lou33 · 20/04/2004 17:45

Am blubbing again now from all your lovely comments! Thank you all again and again and again .

Tc, might pass on Gandalf, but if you have the Incredible Hulk, well...... (but we do already have a five foot inflatable one he insists on taking to bed with him) .

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coppertop · 20/04/2004 17:46

I've just seen the link. What a gorgeous little angel! No one will be able to see his wheels because they'll be too dazzled by that big smile.

Davros · 20/04/2004 20:03

LOVE the pic, he looks like a little tinker! Just think of how independent he's going to get and keep you fit chasing after him! Will go back later to look at other photos, adapted horse caught my eye...

ScummyMummy · 20/04/2004 20:25

What an edible little sweetie, Lou. He's just gorgeous. Completely agree with everyone else here- especially Thomcat's first post. It's totally not self-indulgent to cry all you want and need to. It won't take anything away from R enjoying the freedoms of his new wheelchair to the max or from your pride in that. Take care, hon. xxx

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