Wow DS has autism

[adrianna22]

I've known this since he was three. His four now. But the realisation has hit me and I'm scared for his future.

I had DS in my teens, I was 16, I'm now 21, and no way did I think that I would end up having a special needs child. But I guess that's like with every mother regardless of age.

I'm tired, so tired. I'm sick of writing up report after report about DS. I'm of trying to push the school to get the support that DS needs. I'm tired of getting jealous when I see other kids who are way beyond developmentally. I'm tired of looking at schools after schools.

Has anyone felt like this?

[FutureMum]

Yes,the first six months I cried so much too. I still have moments when I miss the old, happy me, and a more simple life. Still happy in many respects, but life's more complicated. Personally my love for dd and dh pushes me through, and also the realisation that in some ways I am a better person, I think I have more empathy whereas before I would have frozen towards a child with Sen. If I have a crap day, I just tell myself it's a day, and the. Next one is another day. Big hugs.

[billiejeanbob]

Same here. I had dd when I was 18 and never imagined life with a SN child, yet now I have 3!
Dd doesnt have an official asd dx just motor coordination disorder, gdd, sensory processing difficulties plus receptive and expressive lang difficulties, but I do strongly suspect asd!
The dc have had their friends over tonight and they were comparing school reading books. Dd got hers out and said 'please dont laugh' . It hits me the most when I know that she knows she is behind .
I know what you mean about searching for schools - ive spent hours looking for a suitable one for dd but there is nothing in our LA .

[adrianna22]

Thank you guys for your supportive words!

I know that every parent who has a special needs child may feel the same way as I do. But Its a constant reminder that I'm not alone.

Bilibean- you will find that school, just keep searching. Have you looked at the ICAN Meath school? That was the only school that I liked, but is quite far from where I am.

[StarlightMcKenzie]

Where are you? Blossom House is good for the early years, and beyond if your child has the right profile.

[adrianna22]

Hi starlight, I'm in London.

[3dimensional]

I still can cry at the drop of a hat. I am 43 - it's not age related. It's so tiring and I have no patience for people who know nothing about SEN. Their little chit chats annoy me lol ....

[Housesoftheholy]

I totally hear what you are saying about the realisation hitting you even though you knew.

Ds just started in reception at as and I pushed and pushed for his place there. But I had to pick him up early one day and saw him in the playground and was so shocked to see him looking so much like he fitted in with all his peers. It still comes as such a shock to realise he is disabled! He is just ds when he's with me and I just adore him and I'm so proud of him.

It is bloody relentless and exhausting though. I feel I only just finished dealing with getting his statement and place at ss and they sent me a letter telling me to prepare my paperwork for annual review already!

But your ds is very lucky to have a mum that is researching the best environment for his needs and who doesn't only see his autism

[Housesoftheholy]

Should say started reception at ss not as