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Here are some suggested organisations that offer expert advice on special needs.

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How to help struggling friend?

16 replies

Stillnoidea · 23/09/2014 20:36

One of my friends is struggling to cope at the moment with her son, who has just been diagnosed with ADHD. It's not just the impact on him, but on the whole family that is getting her down. Her school seem to be getting support in place for her son, but there's no support for her as far as I can tell (eg from GP or HV).

Can anyone here give me ideas of support groups or similar services which might make a difference to her? She feels that parental support groups would be of limited value as hearing about other people struggling would just be more depressing. Can anyone give me examples of how they have found them helpful? There must be some useful support out there for her...

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PolterGoose · 23/09/2014 21:01

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Stillnoidea · 23/09/2014 21:15

I do keep plugging mumsnet! But are there any RL support services you could point her at too?

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PolterGoose · 23/09/2014 21:20

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PolterGoose · 23/09/2014 21:21

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Stillnoidea · 23/09/2014 21:33

I don't know what sites she's looked at so thanks for the link.

I don't really know what would help her the most so any suggestions are good.

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Jerbil · 23/09/2014 22:17

Be there and listen. Ask her what help he thinks she would like if any. It may just be a shoulder to cry on. Don't go official and seek help from authorities. That's what happened to us and it felt like my whole world blew apart!

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Jerbil · 23/09/2014 22:19

Be there and listen. Ask her what help he thinks she would like if any. It may just be a shoulder to cry on. Don't go official and seek help from authorities. That's what happened to us and it felt like my whole world blew apart!

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MyFabulousBoys · 23/09/2014 22:56

I went to a PPP parenting course for parents of children with ADHD. It was fantastic in that I met other parents, we had a bit of a laugh, shared stories and strategies, found out about carer passes and DLA, and found other people who acknowledged how bloody hard it all was. Can't remember any of the parenting stuff but the support at that time when I needed it was great.

I only went on it because CAMHS offered it so I thought it would be prudent to agree to go! I would not go on a general parenting course through as I think needs and strategies are quite specific.

I do feel now I would like a support group but they are few and far between and I feel a bit lost again.

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Stillnoidea · 24/09/2014 07:27

Thanks both.

Don't worry jerbil I'm not going to wade in. I just thought I could come up with a list of suggestions and say this is what the lovely people of mumsnet have found useful.

fabboys where would I find details of a PPP course?

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Levantine · 24/09/2014 16:59

I have found my local parent support group so helpful but I wasn't quite ready to go there when ds was first diagnosed. What helped me was friends who would just let me talk without minimising what I was saying. So be careful not to go down the "they all do that sometimes" route as it is very isolating when people say that.

fwiw support groups are helpful as people are at different stages so for everyone struggling to cope with a DX there is someone with an older child who is in a more robust place

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MyFabulousBoys · 24/09/2014 17:25

CAMHS offered it but contact addiss they may be helpful.

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Stillnoidea · 24/09/2014 18:30

Thanks all - will let her know about additude and addiss.

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2boysnamedR · 24/09/2014 21:01

I find parent support groups great. The other kids don't have what ds has but just knowing we all have the same problems makes me feel less isolated. My group mostly have asd where as ds is dsypraxic but we have exactly the same issues with education, diet, sensory etc.

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Jerbil · 24/09/2014 21:24

I know it's rare what happened to us, but hurtful all the same. No offence intended. Just very pleased you think so much of your friend. :-)

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Stillnoidea · 24/09/2014 21:35

No offence taken jerbil! Useful to have your view as we have talked about whether SS could offer support but neither of us have any idea.

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Stillnoidea · 24/09/2014 21:37

Thanks 2boys for your feedback - will pass it on. She knew of additude but hadn't come across addiss.

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