Went to see a genetics councillor with DS yesterday and she said he has very high arches in his feet and his legs were turned in a bit and said she was going to write to his regular paediatrician about special boots and insoles. What are these? I'm unlikely to get an appointment for months, is it something I can sort out for him myself?
Go to gp and ask for referral to orthotist. Gp should do this.
The issue we had with shoes was the time our local hospital was taking to get them made and fittings that dd didn't manage to wear them for long before she out grew them. We've had foot-ups made this time.
Previously we had alot of problems with both referral and the orthotist having no knowledge of the genetic condition.
Well. No one has knowledge of DSs condition it seems. He's going into a research group (or his DNA is anyway) we really have been messed about for 4 years, if I told you the extent you'd be shocked. But since this has all came to light they seem to be really trying to rectify it and being very thorough with everything.
But of course I've lost faith and if there's anything I can do myself to help him I will.
Like go to the GP and not wait months for the paediatrician thank you!