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What do you do? Out and about with son in wheelchair

(33 Posts)
zebrafinch Sat 30-Nov-13 12:34:13

DS is too heavy to lift now, cannot weight bear and is doubly incontinent.
His horizons are shrinking.
I have just realised he cannot lay on the sand on the nearby beach in the summer, we will pay for a festival all day ticket but he cannot manage even three hours sitting and cannot get out of the wheelchair and lie on the grass and listen to the music, when out we have to return home if he soils himself. I am a lone parent and I can only take him out if another Carer is present and I can't ask them to help lift him. There are no changing places close by. I want to take him camping or a trip to London it's pie in the sky isn't it??
What do you do?

Boobybeau Wed 04-Dec-13 11:17:18

smile

zebrafinch Wed 04-Dec-13 05:34:29

Boobybeau many thanks for that link. I will definitely be in contact with them. It might provide the safe camping experience for my lad.
I knew mumsnet would come up trumps!

Boobybeau Tue 03-Dec-13 20:56:26

Hi, my ds can walk but uses a wheelchair and we are getting to the point where he is too big to lift and life is starting to get very restrictive for us to. I don't know if you've seen this www.camp-amazing.moonfruit.com/about/4565510527 we've never been but hoping to try it one day.

zebrafinch Tue 03-Dec-13 20:13:11

London that is

zebrafinch Tue 03-Dec-13 20:12:40

Had no idea there were portable changing places! I will check for this at county show.
Thanks to all posters here for your suggestions. I have been inspired. Will definitely get out to a beach with facilities now and will investigate lying down pushchair as DS can come out of his wheelchair at changing places and we can use the hoist there to get him in a lying position. It will mean we can be out for a full day.
Will report back in the summer if the pie in the sky trip to Lonon happens.

JsOtherHalf Mon 02-Dec-13 14:20:03

Check with your local council about portable changing places. I know our council often provides one at big council events eg gala in a park.

Pixel Sun 01-Dec-13 21:07:48

You can also hire beach wheelchairs so you can get right down to the water.

Pixel Sun 01-Dec-13 20:56:43

Hi, haven't had time to read all the thread yet so apologies if already mentioned but have you seen changing places?
There are a couple in Brighton if you fancy a day at the seaside smile.

zebrafinch Sun 01-Dec-13 19:27:04

Js thanks for your second link above on grants for children with special needs. There is a lot good information on that website.
I think I have been too long out of the loop. I did a lot of Internet searching years ago but the last few years I have been so wrapped up in just existing and getting by that I have not kept up to date with what is out there to make our lives easier.

zebrafinch Sun 01-Dec-13 18:54:17

Summerleaze beach in Bude Cornwall has a Changing places facility and new disabled access beach huts which must be booked ahead and dogs on leads are allowed in the summer but check dog info in case it changes next summer. . <I can't understand how I missed this!>

also whilst googling saw a newspaper article quoting Goverment Minister who wants seaside councils to wake up to the "purple pound" and improve facilities for wheelchair users. The "purple pound" is worth £80 million a year.

zebrafinch Sun 01-Dec-13 17:37:20

Thanks lisad will look at that
Also found
www.specialneedspushchairs.co.uk/ which has more variety than the Australian website above

lisad123everybodydancenow Sun 01-Dec-13 16:56:48

Message withdrawn at poster's request.

zebrafinch Sun 01-Dec-13 16:54:30

Has anyone stayed at youth hostels with facilities for wheelchair users???

zebrafinch Sun 01-Dec-13 16:51:16

It's the all terrain stroller, could be useful for others who have older children , young adults who want to go on more challenging walks?

zebrafinch Sun 01-Dec-13 16:47:41

www.achievableconcepts.com.au/

I found on here an all terrain buggy for children AND adults , if there was something like this which allows a sleeping reclining position I would be very happy , it could be used when a child is unseatable.

zebrafinch Sun 01-Dec-13 16:36:22

lisad envy

lisad123everybodydancenow Sun 01-Dec-13 16:21:02

Message withdrawn at poster's request.

JsOtherHalf Sun 01-Dec-13 15:18:44

Charity grants for disabled children:
www.special-needs-kids.co.uk/financial.htm

zebrafinch Sun 01-Dec-13 06:48:21

Anyone know if there is such a thing as an all terrain mobile hoist???

zebrafinch Sun 01-Dec-13 06:43:52

Just googled and hope this link works www.bournemouth.gov.uk/beach hut/

it looks great! Very nice design!!!
Would love to have something like this within driving distance. My county is a tourist destination with beautiful beaches maybe I should get together with others and try to get one here

zebrafinch Sun 01-Dec-13 05:30:07

The cerebra holiday home looks great, interesting to see they can supply a nurse . DS is over 16 so not eligible . Hope others read your link JS and can go there.
Maria we do have something similar a large pop up beach shelter so when younger DS could have some shade and we could tube feed him in privacy.
I can't believe it's the start of winter and I am already researching how to get DS outside in the summer and experiencing life more!

It's just really hard now that I cannot lift him by myself. He can't stay in the wheelchair for long periods, he needs to be lying down and stretched out.

zebrafinch Sun 01-Dec-13 05:16:21

Have looked now at the camp bestival site, it looks fun. Also interested to read about tents with high sides such as yurts squrts and cloud houses. the medical support at the festival looks good as is the specialised camping space for SN . I might try a day camping close by home to see first if it is feasible but son would find sleeping outside in a tent at night fun. Now I just need to pitch up close to some MNetters who have burly strong partners to help lift DS in and out of chair but reluctant to ask this. he is not exceptionally heavy, the size of a normal eight year old perhaps but I can't ask someone else to lift him , can I ??

MariaNoMoreLurking Sun 01-Dec-13 01:27:06

Would this sort of thing help for changes?

JsOtherHalf Sat 30-Nov-13 22:35:23

Some charities offer adapted accomodation? Eg www.cerebra.org.uk/English/gethelp/holidayhome/Pages/default.aspx

lisad123everybodydancenow Sat 30-Nov-13 22:02:42

Message withdrawn at poster's request.

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