Our SN area is not a substitute for expert advice. While many Mumsnetters have a specialist knowledge of special needs, if they post here they are posting as members, not experts. There are, however, lots of organisations that can help - some suggestions are listed here. If you've come across an organisation that you've found helpful, please tell us. Go to Special needs chat, Parents with disabilities, SN teens, SN legal, SN education, SN recommendations.

sensory overload???

(7 Posts)

dd often freezes in crowds, can usually move her to a corner and talk to her to relax her, normaly takes 5-10 mins before she is back to normal and we can carry on, dd decided months ago she wanted to go to a concert for her birthday, concert was Saturday, we organised it that dd could go in 5 mins early to avoid the crowds, on leaving we tried to stay behind for a few mins, a member of staff came and shouted at us saying we had to leave now, we tried to explain but he wouldn't listen, half way down the stairs same guy started shouting hurry up get off the stairs etc, dd froze, couldn't talk, she was just standing there looking into space, with dp having to support dd as she couldn't even stand up, dd couldn't talk for 3hrs, she was just staring into space. I have never seen her this bad. could it be sensory overload?

ouryve Mon 21-Oct-13 16:36:44

Didn't want to leave you unanswered. Yes, that is a common type of reaction during sensory overload. Some people might become agitated whilst others retreat into their safe space.

It might be useful to print off some business cards to hand out in this type of situation - simply saying something along the lines of "sorry, I panic in crowds and just need a few minutes to compose myself/wait for the crow to disperse"

Was the concert loud?

the concert was loud, dd enjoyed it, the problems started when leaving, the staff member wouldn't let us wait till the crowd had dispersed, he just kept shouting at us, we did explain but he wouldn't listen and wouldn't let us wait a few minutes, was even shouting at us when dd couldn't move or talk

PolterGoose Mon 21-Oct-13 18:56:28

Poor dd sad

Freeze is the one usually left off when people talk of fight or flight. It's all part of the same instinctive process. Some little cards sounds like a brilliant plan.

How old is she and how often does it happen?

dd is 20 tomorrow, she has what she calls panic attacks daily,(she freezes) but normaly lasts for 5-10mins, and she can talk, but Saturday night scared me as she couldn't move or talk, and her eyes where fixed and wide open, not even a blink, we just couldn't get any movement from her for 3 hours, we ended up carrying her to the car,

PolterGoose Mon 21-Oct-13 21:13:21

I have no real experience but are you sure it's panic attacks? Could it be epilepsy? There are others with more experience of this than me, my only experience is my ds's best friend who was recently dx'd with occipital epilepsy.

a few years ago dd had an assessment done by specialist mh team, in report it mentions epilepsy as dd sometimes has absenses, they wasn't sure if it was her asd, ptsd, or epilepsy, said take her to gp and ask to be refered to specialist, our gp refused, (costs money) I need to change gp but we are stuck at the minute,( only got 2 doctors surgeries near us and both are as bad as each other) our gp even wants to take dd sertraline, off her, and he refuses to write prescription for her melatonin, even though these are in reports saying it's detrimental she stays on meds, ( gp told dd she's stupid and must be thick if she's on meds) think if dd has episode like this again I'll get her to hospital

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now