Here some suggested organisations that offer expert advice on SN.

A non-woo dietary practitioner or book suggestion?

(34 Posts)
MareeyaDolores Mon 29-Apr-13 21:13:33

Posting for a (non-MNSN) school-gate friend who is convinced her dc has some link between severe dyslexia/ sensory processing difficulties and diet. Has quite a sensitive stomach but no obvious foods are connected.

She has tried already with a few Holland-and-Barrett supplements, and organic home-cooked food etc. The DC went GFCF briefly, but rebelled.

Is on benefits, so can't afford TH etc, but could save up for a one-off appointment with someone good. I think the GP would probably refer on the NHS eg dietician or gastroenterology, so I'm wary of sending her too far into the whole alternative-therapies thing in case it labels her as fad-diet-nutty-mum and closes down that route forever. On the other hand, is there anyone NHS who believes in dietary interventions anyway?

Sorry, Mareeya, got a bit side tracked. blush

Yes, Saintly, felt really lucky with our paed. She's fab. Still DS's paed as she's also the epilepsy specialist and DS has had a couple of funny turns.

I do think the mainstream approach to autism has changed dramatically in the last 10 years!

MareeyaDolores Thu 02-May-13 20:54:55

Not side-tracked... all potentially relevant grin

iAutism Thu 02-May-13 23:39:43

GFCF mixed results as you only taking out one or two things but its heading in the right direction.

Gaps Diet (SCD but harder) is not easy but also not impossible. We coming up to nearly 4 years and the results have been very good.

Yes you right 6 months for gluten to leave the system and 1 month for casein.

Gaps recommend you need about 3 months to prepare.....we jumped in after a few weeks of GFCF....no intro diet. I would check out baden's Intro guide. She also run a great yahoo support group. Probiotics we only use one and its best to start with small amounts and build it up. Also beware of die-off periods where things get worse for a while but it does then get back on track.

With diet its a long road as there is no quick fix. Also more about lifestyle changes for the whole family. Always easier to do it when the child is young as they don’t know much about processed foods smile

Rgs

dev9aug Fri 03-May-13 15:53:20

Thanks nourishing and iautism

Kakty3 Thu 30-May-13 21:19:07

Sorry for resurrecting the thread. Other than Dr Goyal at Sincere Health (who has a long waiting list, it seems) can anyone recommend any other good London-based doctor that deals with ASD and Biomed, please?

Our DS is on a very limited diet (guess what, pretty much gluten and casein!) and we are concerned that he is not getting sufficient micronutrients and minerals and want to investigate. Have a GP appointment tomorrow, so ideally want a name that he could refer us to via private health insurance.

TIA!

MareeeyaDoloures Thu 30-May-13 22:08:37
MareeeyaDoloures Thu 30-May-13 22:09:07

GP might know someone even better though.

Kakty3 Thu 30-May-13 22:38:09

Excellent, thank you very much, MareeeyaDoloures! Also, thanks for linking 'Dietary Management in ASD' paper in the neighbouring thread, which is going into my 'research-to-read' pile (can you tell our dx is recent? :]).

I can see that several of the doctors listed over at AllergyMummy work at GOSH. In fact, we will also be asking to be referred to GOSH's National Centre for HFA tomorrow, as since getting the referral to the multi-disciplinary team (the appointment is still unconfirmed, but we've been told at least five months!!), we have obtained a private PDD-NOS dx (via child psychiatrist) and want to have it re-confirmed through NHS for obvious reasons.

Thx again!

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now