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What happens after referral for autism assessment.

(9 Posts)
nsure Wed 17-Apr-13 23:04:20

Saw the community paediatrician today , who believes my ds is showing lots of autistic traits , enough to now refer him for an assessment.

So, what happens now, will they start to gather info from school, cahms etc or do they just wait until they see him?.

Also , what happens at these appointments , do they say at first appointment what they think, or does it take a lot longer?.

Im fully aware that there is every chance that it may turn out my ds is not on the spectrum was just wondering what the whole process is.

Justgotdiagnosis Wed 17-Apr-13 23:09:28

I think it varies from area to area in terms of who is actually at the assessment appointment
For us it was the same community Paed and a specialist SLT with expertise in ASD
They took into account reports of everyone involved and even went to observe him at school; it took awhile as no-one wanted to make the wrong call, but if things are clear cut they can say at first appointment sometimes I think
HTHs

Handywoman Wed 17-Apr-13 23:30:12

How old is he? I think that someone will come and see him interacting with his peers if he is school-age. I think it will depend on how long the waiting list is, did they give you any indication?

PolterGoose Argentina Thu 18-Apr-13 08:25:05

After ds's first paed assessment he was referred to SALT and OT (and OT arranged referral on to physio) and a request for information was sent to school (and ignored). No school observations. He'd previously had ed psych at school and Early Years Senco at nursery and I don't know if their assessments were seen.

nsure Thu 18-Apr-13 08:39:21

Hi, he is 12, already has dyspraxia ans spd diagnosis. The recent dyspraxia assessment flagged up the potential asd traits , however I didnt take it any further, as socially he does pretty well, and also copes really well at school.

The pead yesterday wasn,t happy with the rocking he does . the noises he makes and all the anxiety and obsessions he has and so referred him.

Can you still have asd and be ok socially? , he has some problems in that respect but you would not really notice it.

crazeelaydee Thu 18-Apr-13 12:03:44

There is so much more to being social than just chatting smile. I always thought that my Ds was really good socially, He was a bright boy who just liked to talk about things some children didn't know about. It wasn't until he was assessed that his social difficulties came to light. Then my Ds was diagnosed with Asperger's syndrome because he fell into the triad of impairments, and we really didn't think he struggled with being social until all the information from school etc was collected. It turns out my beautiful boy is a loner sad he avoids interaction at breaktimes by wondering around picking up rubbish or looking for bugs, he can not read peoples faces unless they are smiling, even their tone of voice can cause him anxiety, he doesn't use small talk at all, Struggles to join in with games because he can't predict what to do or say therefore he has to be in control and should someone try to change something he can not handle it. Interrupts conversations because his responses are mis-timed. Can I just ask? Does your Ds have the same friends knock on for him after school/weekends? Does he have party invitations/sleepovers?

nsure Thu 18-Apr-13 13:00:30

He does have friends now , at secondary school, he has never had a best friend , more just gets on ok with everybody. He doesn't like the children who are perhaps a bit/lot naughty or loud in class. His friends are usually people who he has something in common with.
Thing is , he can converse ok with people, he doesn,t do eye contact close up , but I am pretty sure he is fine socially in school.
He copes realy well in environments where there are rules and routine.

He also seems to be getting worse with age, a few years ago it was mainly just anxiety and rocking, now he seems to develop more and more traits all the time.

He does seem to fit the symptoms for high functioning autism, just without the social difficulties mainly, is this even possible?.

PolterGoose Argentina Thu 18-Apr-13 16:20:52

The autism triad is social communication, social interaction and social imagination, so there would need to be 'deficits' in social skills across the triad to get a dx. However, it is very easy for some children to mask their difficulties, they may be naturally shy and quiet anyway, they may be more compliant or good mimics for example.

It is worth reading one of the Tony Attwood books on Aspergers, because he is very good at explaining what behaviours can be seen to be ASDish, especially how they relate to high functioning individuals, because when it is your own child you just get used to their foibles, whereas those quirks may have a deeper meaning IYSWIM?

PolterGoose Argentina Thu 18-Apr-13 16:23:18

Bolding didn't quite go to plan there blush

It is however quite possible your ds's anxiety comes from his dyspraxia or SPD, many 'autistic' behaviours are sensory anyway, and I understand anxiety is common for both. Certainly for my ds much of his anxiety is sensory related, even if superficially it isn't apparent.

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