DS2 (ASD) 13 yo fainted and seemed to have a seizure 18 months ago. He had a 24 hour ECG with no problems and had just been signed off by his paed and epilepsy nurse.
He just fainted again. This time I was with him. He had just got out of the (rather hot ) bath, was standing while I wrapping him up in his towel. He was talking to me about how to avoid school tomorrow then slumped to the floor, banging his mouth on the sink. Once on the floor he was mumbling, had his eyes open but wasn't with me, IYSWIM. Within 5 to 10 seconds his eyes focused and he asked what was going on. He was right as rain within minutes, but I kept him lying down for a bit.
If it wasn't for the fact that he carried on talking nonsense throughout I would have said it was a classic faint, got up from the over hot bath too quickly. But I have been googling faints and talking and nothing is coming up. Talking during a seizure seems more common. He doesn't remember falling or hitting his mouth or what he was saying while not conscious.
Any ideas? I'll be contacting the epilepsy nurse ASAP, but in the meantime?
Thanks Ellen, wanted to do flowers for you but didn't know how on the iPad! Fwiw dd1 has never talked during her seizures, before and after yes weakly but not in the few seconds while its fully happening. Horrible worries all of these. Would do a glass of wine picture if I knew how!
I can't believe he's photosensitive. Surely his Touhou obsession would have triggered a seizure before now? I guess it could change, though. Thanks for the info and reassurance, zzzzz. I know your DDs epilepsy is no walk in the park, so thanks for reassuring a novice. X
That sounds familiar, barbarian! DS2 seemed to carry on talking throughout, even though he was making no sense. Then he seemed to focus on me and said 'What's going on?' So I'm not sure if it was quite the same thing. He might have gone silent for a second, but I can't really remember. Thanks for the reassurance, though.
Whilst I don't talk at the point of fainting that bit only lasts 2-3 seconds and I do mumble in the coming round part 10-20 seconds following it -trying to speak but can't quite manage it iyswim. But I am semi conscious in the mumbling bit, so I am faintly aware of what's happening (usually dh banging on bathroom door shouting 'are you alright, I'm going o break the door down if you don't answer me').
Thank you, used2bthin. It's interesting hearing other experiences as I've no experience of epilepsy apart from people on here and one friend's DC who has very, very severe epilepsy to the point that he's had brain surgery to try to reduce his seizures. I don't feel I can ask her as my DS's issues are so much milder. Also puts things into perspective.
Might put a thread on chat to see if anyone else talks when they faint.
Dd1 has funny turns, and has ages in between. Neurologist was ready to prescribe meds in fact as she had a few in a row at one point but then she had one in hospital and was diagnosed with reflex anoxic seizures which arenon epileptic and in response to stress or fear. They are not harmful, she has had ECG and EEG for them so it was a relief more than anything.
They are more like a faint and very subtle,she has done odd things coming round so I think we still can't rule out epilepsy too but thought I would mention.
Anyway you've had loads of good advice just wanted to offer sympathy really, it's horrible having these things come back at you.
Thanks Ninja. I thought I was fine, then cried on the phone when talking to the lovely epilepsy nurse. She just wasn't sure but couldn't say one way or the other. I'm back from work and no message on the phone, so I'm none the wiser. DS2 would find an EEG fascinating.
I've spoken to the epilepsy nurse this morning. She thinks it was more likely to have been a faint than a seizure, but can't be certain. So he's back on 'watch' again and the nurse will talk to our paed today. I'm lucky that DS2's paed specialises in neurodisability (autistic spectrum) and epilepsy, so she's always been DS2's paed and gave him his DX 10 years ago. The nurse mentioned an EEG, but last time the paed ruled it out as his brain patterns are already likely to be abnormal due to the ASD.
I would think he is less likely to have problems with lights if he plays a lot normally. But the triggers etc change so that may change too. Hormones play a role too, so puberty will impact seizure thresholds.
I should think the hot bath triggered it. I put dd3 in a very warm bath last night, I'd forgotten about bath temp..
Thanks zzzzz, because if he can't play on the computer, life would not be worth living, truly, for him mainly, or for the rest of us. The swimming, bikes, tree climbing etc, he can live without. (Ignores the fact we've just been to Center Parcs!)