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Left the doctors in tears again, so hard isnt it :(

(9 Posts)
FreshWest Tue 26-Mar-13 10:10:53

Not sure if this may be clutching at straws for you, did you get anything in writing at all re the April / may appt?
Just that we had a similar thing where paed letter said 3 months, rang them when appt was due as we hadn't received a letter, they said the computer was saying 9 months. I argued that I had a letter and they honoured the original appt.
I agree it's absolutely frustrating and draining when all you want is the best for your child. I have lost count of the number of calls I have had to make chasing people. The EP now knows me by sight and whenever i see him he always says " ah MrsFresh, how are you and how is miniFresh?" blush

Handywoman Mon 25-Mar-13 20:16:00

Draining is the perfect word.

Handywoman Mon 25-Mar-13 20:15:15

Am in Herts. It is really getting me down as well, it is not healthy being preoccupied with is she/isn't she when you know darn well it could be sorted in half a day (well in theory anyway). Our Paed seems happy that MDT assessment is the way forward. She seems pretty happy dd2 is on the spectrum, says that I 'understand her very well' and has reems of reports on file, detailed SaLT reports going back to 2009 and 2 x referrals to CDC but she will not, repeat not, put a clinical opinion on paper outside of MDT assessment. It truly is like getting blood out of a stone. I'm not sure if it's possible to imagine a more eye-wateringly frustrating process?

greener2 Mon 25-Mar-13 19:27:43

Message withdrawn at poster's request.

Handywoman Mon 25-Mar-13 18:52:59

greener it's awful isn't it. we are in same position. every time assessment is mentioned it is further away, we were told ten months, then fourteen, then eighteen, latest guess is twenty months.... I can't think of anything more frustrating/depressing. Hugs is all I can think of.

greener2 Mon 25-Mar-13 16:49:17

Message withdrawn at poster's request.

PolterGooseLaidAChocolateEgg Mon 25-Mar-13 16:45:55

(((((hugs)))))

I don't know your situation but the waiting for assessment of any kind is just awful thanks

starfishmummy Mon 25-Mar-13 16:37:07

Sending a big hug.

greener2 Mon 25-Mar-13 16:27:07

Message withdrawn at poster's request.

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