Our SN area is not a substitute for expert advice. While many Mumsnetters have a specialist knowledge of special needs, if they post here they are posting as members, not experts. There are, however, lots of organisations that can help - some suggestions are listed here. If you've come across an organisation that you've found helpful, please tell us. Go to Special needs chat, Parents with disabilities, SN teens, SN legal, SN education, SN recommendations.

cleft lip complication?

(7 Posts)
chesticles Mon 25-Mar-13 11:25:21

How long has it been since his surgery? I think it might take a while for the scar to heal properly enough to stretch.
DS has a cleft palate, and he gets quite a lot of speech therapy through the cleft team. I'm sure your team will be able to advise and help.

elliejjtiny Fri 22-Mar-13 19:11:16

I would say speech therapy is much more likely than surgery. My knowledge on the subject isn't great though as my DC who has a cleft lip is a lot younger than yours.

boysrock Thu 21-Mar-13 21:30:46

Speech therapist is attached to cleft team. School did offer a referral but I've gone straight to cleft team as I suspected it would be more specialised. I'll have to try him with an ice cube over his lip. He doesn't drool when eating but closing his mouth seems to be difficult. That could be his age though.

boysrock Thu 21-Mar-13 21:27:18

Thanks. Yes he's due an mdt cleft team review in may. I'm reassured that people think its more likely to be speech therapy rather than surgery. We can cope with that. {Smile} Ds would be a very unhappy bunny if he had to have more surgery.

SallyBear Thu 21-Mar-13 07:02:52

Can he feel ice or heat across his top lip? It might be some facial nerve bruising if not. Contact your Cleft Link Nurse and speak to her, did you have a specialist Cleft Team SALT?

MareeyaDolores Wed 20-Mar-13 22:54:27

Sounds more like needs re-referral to speech therapy at this stage. The local school-age team should be able to work on it, but ideally he'd be reviewed by SLT at his cleft surgery unit, as it can be quite specialised.

boysrock Tue 19-Mar-13 11:38:01

Ds (4) had a cleft lip repair when he was 4. His teacher mentioned yesterday that she was concerned about his speech and had noticed that he doesn't move his top lip when talking. Anyone else had experience of this?
If so do you mind telling me what the outcome was?

I'm hoping its not more surgery for him sad

Tia.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now