Here some suggested organisations that offer expert advice on SN.
The thread on AIBU(38 Posts)
has made me cry
How do any of us balance the needs of our child with SN with that of siblings? How do any of us know if we're getting it right?
We won't know until it's too late
The important thing is that you reassured them hazey! At least they trust you enough to ask!
I wouldn't worry too much hazey. I remember seeing some programme on teams, where a random group were asked to do a specific task. Apparently it was easy to tell first borns, children in the middle, second borns, youngest etc.
I think we are all partly engineered to behave in certain ways due to the order we were born in. I've always thought that firstborns must think "wasn't I good enough that they had to have another?"
DS1 says the same about DS2 but in a 'you prefer him to me' way. He totally ignores DS3 in this matter I just take it to be natural rivalry of the usurper.
I thought about this thread this morning, after this little exchange at the breakfast table.
dd2 (5) - I've got a question
me - yes, dd2?
dd2 - why doe ds get more attention than me and dd1?
dd1-ooh, I know, I know! Because he is more important than we are!
me and dh - er, um no, really girls that is not true......
I was so taken aback by the conversation, i was completely stumped as to what to say. I feel as though we have obviously fucked up somewhere, because this is obviously how they see the family working, and we try so hard to give them lots of attention, but sometimes (like the last month of ds having pneumonia and appointments every 2 days) it is really hard.
I have taken DD away without DS. He is unable to travel. He requires 24/7 hands on attention. I feel gutted that he is not able to be with us and the time away is always bitter sweet as I can't help noticing boys his age out with their families and everyone being together. I am glad that I was able to do it so that DD has some special memories of her childhood where she came first. The reality is that DS needs have been so exhausting that DD has come second I feel very bad saying that but for many years we were on survival mode here. I have tried to balance their attention needs , I hope that if and when DD has her own children she may understand a bit more but it has been very very difficult for her.
Thanks for the tea and biscuits.
Feeling pleasantly superior to a bunch of numpties isn't restricted to MNSN-regulars, anyone can join in, SN isn't an obligatory pre-requisite for being a decent human being thanks goodness
Idshag, you're not intruding. We welcome visitors [tea], and in the tin...
'When I'm old and grey and I look back on life I will be able to say I did my best'
I'm old and grey, my babies are both adult now.
You never get it right all the time, but no parent ever does. You love your children lougle, all of them. You try and do what you can to the best of your ability. That's as good as it gets.
Thanks everyone. I've realised that I'm never going to get it right, so I'll stop stressing about getting it wrong
Really sorry to intrude but that thread pissed me off. I called the op a goading cunt and was promptly deleted. Yet the thread was not deleted for almost 24 hours despite loads of reports. It clearly was goady, disabilist fuckwittery. It boils my piss that mnhq will not deal promptly with stufff. You guys really dont deserve any more shit. I am so sorry.
When I'm old and grey and I look back on life I will be able to say I did my best.... And I can sleep knowing that and I'm sure in 20 years time I will feel the same way
Judgeypantedness is so easy until you have to walk the mile in someone elses shoes. The right solution for holiday arrangements etc is the one that best suits the specific needs of that family - NOT what other people think ought to suit them ffs.
I have a SN sibling, growing up her needs were totally different to mine, and even my other NT sibling, who was academically gifted. Right from birth some NT babies are more clingy or more emotional etc than others so parents have to adapt to the needs of each individual child. SN just makes that differentiation a bit more extreme sometimes through sheer necessity. No mother worth her salt ever manages to raise a child without feeling guilty for something along the way!
We weren't treated equally by any means, but our differing needs were all met to the best of our parents ability, and most importantly we were never left in any doubt we were loved equally. Noone can ask for any more than that from their parents. (Mine might have had a favourite, if they did we were never made aware of it).
I'm grateful for my sister - without realising it I absorbed so much useful info growing up that helped stop me ever becoming one of the intolerant bigoted cows you see on the AIBU threads so often. Life isn't fair, it's how you deal with it that counts and society seems to be raising increasingly narcissitic individuals with each passing generation. I'm very, very proud to be part of the movement that bucks that trend all thanks to having a SN sibling.
I realise my post makes no sense I won't be taking my ds to the wedding as he would not be manageable. MareeyaDoleres has a good point we are not aiming for perfection and life isn't fair. I aim to survive each month of uncertainty and the last thing I would worry about is if someof my pics didn't have a 3 children in them if only everything could be photobook perfect but thats not reality. Lougle me and my dh were having a bad evening too and it was like a slap reading that thread but ignorant people are everywhere we have to ignore them.
We aren't parenting our children so they have the perfect childhood. We're parenting them so they grow up to be the best adults we/they can manage. And the timescale isn't a day, as couthy so wisely says.
Fairness, is determined by what they 'need' not what they (or we) want. Which includes their 'need' to have a sibling whose additional needs have been taken into account: because when we're gone, it's likely they will still love each other.
People say the same things to families with lots of children as they do to families with SN children. So I really like the following article:
Why big families are easier by Matthew Archbold
A woman said to me recently that my five children were very well behaved. Its one of the best things I can hear so I thanked her. Then she asked me how do you do it with so many?
I told her that I dont think Id be a very good parent of one child or two. She didnt believe my answer but honest to goodness, I sometimes think that having many children is easier than just one.
Why big families are easier:
Patience. I never have to teach patience. My children know that I cant drop everything for them if I have a baby in my arms.
Work Ethic. My children have learned to work because there are always chores to do in a small house packed with little messy lunatics. And they all learn quickly that sometimes they have to clean up a mess even though they didnt make it.
Humility. My children have learned its not always their turn. Theyve accepted they cant always get their way because other people have to get their way sometimes. Theyve learned that some children are better at certain things than they are.
Foreign language skills. You can learn a lot of Spanish by watching ten years of Dora the Explorer that you just cant pick up in two. And now with the Diego spin off Im practically fluent.
Laughter. The children have learned to laugh at the insane non sequiturs of younger siblings. Theyve learned that laughing just feels better when seven people are doing it along with you.
Competition. Do I really need to go into this? Everything is a competition in big families. The children compete over who reads faster, who drinks their milk faster, who gets to the bathroom first etc. Everything is a competition and theyre all keeping score.
Balance. The floor of the front room of my home is a minefield of toys and childhood paraphernalia. Just walking through the room requires great skill and balance. Im absolutely convinced my two year old will be a favorite for Gold on the balance beam in the 2016 Olympics. (She might have to lay off the cookies a little but Ill deal with that later.)
Life isnt fair. Sometimes you just give it to the baby because you want a little quiet. Not all the time. But sometimes.
Just say No. Being able to say no may be the most undervalued skill in this world. The need to be liked is pervasive. The need to be cool even more so. Having brothers and sisters teaches children to say no about 143 times a day. Its a good skill.
Praying. They learn that nothing beats praying together as a family.
Nature/Nurture. Having many children has taught me that nature has a lot more to do with who my kids are than nurture. This is helpful, especially when your children misbehave you dont have to feel bad about it. Just say Stupid nature!!! and blame your spouses genes.
Namecalling. You can occasionally call your child by the wrong name and still not be considered a terrible parent. They know who you mean just from your tone. Sometimes if you need something done you can call the wrong name and someone will still show up. That helps.
Spying. My children have learned that they cant get away with anything. I have spies who look a lot like them who are willing to drop the dime on them for anything. Even at school Ive got a child in just about every grade. If they do something Ill hear. That keeps them nervous. And I like keeping my kids a little nervous.
Friendship. The children have many friends. Theyve got girly friends, crying friends, fun loving friends, consoling friends, and crazy friends. And they all have the same last name. And theyll be there forever for each other. No matter what.
Love. I think my children have learned to love because there are others around them to love and who love them. I honestly can think of no better way to teach children to love than siblings.
Lougle we can only do our best. Ds is 18 now with severe autism (although it was initially described as moderate autism and learning difficulties) we have three children older than him and dd 10 who has ASD too.
I won't pretend that the older three and even little dd haven't missed out because they have because ds's needs dominate but we have done our best with what we could.
My older three are 25, 24 and 19 and they are the most tolerant,compassionate, independent and resourceful young people you could wish to meet. They are generous and empathetic and not in the least bit angry or resentful of ds's or dd's needs or their demands on our time and they have a level of maturity far beyond what you'd expect.
What we have done here is used clubs and activities to give them a break from ds, dh took them on holiday yearly whilst I stayed at home with ds, they had locks on their doors and ds wasn't allowed in their rooms to trash their stuff. One day a month they got one to one time with me whilst dh had all the others and we did something that they enjoyed and I made sure that I noticed their tolerance and understanding and thanked them for it and didn't make them carers to ds so they kept their sibling status.
They have turned out well in spite of ds I think rather than because of him and other than the scars where he attacked them when younger seem to be pretty much unscathed and they adore ds and dd regardless.
I'd say what did take the hit was our marriage as it feels pretty much like we are co parents rather than partners tbh because we don't have the energy to be so attentive to our relationship as we do our children tbh.
I have a brother with autism and now a son. I echo everything innapropriatelyemployed says.
I am having to leave my asd teenager with his dad so I cant attend a wedding, the reception is in a pub my ds is 6 foot and can get agressive, he has told me he wants to go so he can get drunk. I also have his asd toddler brother who is going as he can be in his buggy for a bit and if it gets bad we can leave. there is no guilt trip I'm doing the right thing for me ds and the bride.
but that thread was just upsetting and I knew whoever was like us that was reading it woudl be gettign upset and that pissed me off, the O.P was an ass
Well it's going to depend entirely on the children concerned and their needs. We left ds1 with his grandparents twice when he was younger because he couldn't cope with going away (he wouldn't eat at all away from home for starters- refused to have anything pass his lips). The younger boys got to do some neurotypical stuff - like go to zoos, or eat in pizza hut, which they can't do when ds1 is around. DS1 incidentally adored staying with his grandparents (still does) so I presume he had a great week.
DS1 now has weekly respite so the younger boys can for example go to the cinema with both of us once in while now, or go ice skating or bowling or something. For ds2's birthday we were able to grab a cake and head to Frankie and Benny's which we couldn't have done if ds1 was with us.
The next proper family holiday will be a Calvert Trust holiday (dunno when as we can't afford it atm) - so completely around ds1's needs. If we had the chance to leave ds1 again (we don't now unfortunately, as we used to leave him with grandparents during term time - his brothers are both well and truly at school now and I wouldn't take them out for a week - grandparents can't manage ds1 for a week in school holidays) then I would happily take his brothers somewhere we can't usually access (ie almost anywhere). Camping or something.
Anyhow I think I'm doing something right as DS2 was recently staggered to find out that people terminate for DS. He wasn't judging, he just couldn't understand why it was necessary. So I figured he must be pretty happy with his lot in life.
The child on t'other thread was with his grandparents- so he was having family time.
Lougle....slept? Am awake reading biomed reports of dd
Thanks, I am reading. Got to be at hospital for 7.30 for DD2's blood treat, but can't seem to sleep.
If I went on holiday, it would be with all of them. Purely because if I can even afford a holiday (and it would be a caravan in the UK if I could, and hasn't happened in over 9 years, since my OWN dx and loss of career!), I wouldn't have childcare for any of them!
I took my eldest to Paris last year, on his own. It was fab. I am going to take all my children away, one by one (although now we are in NZ and skint it is much more likely to be camping ) Last year we took him to Rotorua camping for a couple of nights, whilst the other two were at respite.
I think it is really important to give each child some special me-time AND family time. This applies to holidays too. I want to mix and match our holidays so that some are with all of them and some are with some of them, so that they can do developmentally appropriate things but also spend time together as a family.
I think if you are worried about one child feeling left out then one parent takes away one child is a much better model than whole-family-except-disabled child.
I never know if I'm getting the balance right - trying to balance the needs of 3DC's with SN's AND that of another DC with possible AS...well, I can only surmise that I fail miserably with the balance daily. I try to balance the needs over a month rather than a day!!
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