Our SN area is not a substitute for expert advice. While many Mumsnetters have a specialist knowledge of special needs, if they post here they are posting as members, not experts. There are, however, lots of organisations that can help - some suggestions are listed here. If you've come across an organisation that you've found helpful, please tell us. Go to Special needs chat, Parents with disabilities, SN teens, SN legal, SN education, SN recommendations.

Adhd medication help please.

(23 Posts)
CuddlyTeach Wed 20-Feb-13 06:05:41

Thank you pipin hugs are great fully received at the moment. It with great thanks to the mums (including you) of mn how we managed to move on. I used all advice put it together and they had to listen.

He's under a psychiatrist aswell now so he's being given CBT at a more advanced level? And supposedly they can help his fear of blood tests. He's been put on a low dose of fluoxetine as they were reluctant to give him anything more due to his already fragile mind. He seemed a lot calmer yesterday and he's very tired. He slept for 14 hrs Monday through to Tuesday.

So once again thank you everyone especially you pipin xxx

PipinJo Tue 19-Feb-13 22:09:42

Cuddly (((hugs))) well done! Your 'professional' status has make the Profs sit up and listen and being a rock to your babysis you have been fab!
Please just watch DN mood.....depending on the AD some can make the person tip into mania so will stop sleeping, talking lots etc etc I guess also a time to see if DN has bipolar??
What AD did DN get prescibed?

Oh and welcome warrior auntie to MNSNs smile

ouryve Tue 19-Feb-13 11:42:34

Fingers crossed for you all, CuddlyTeach.

AdhdRichmond Tue 19-Feb-13 08:41:28

Hi
Hope we can help anyone on ADHD matters, even though we are Richmond UK based.
Our new Facebook page has everything (almost) you need to help you. You don't need to sign in; the page is open to EVERYONE to view.
www.facebook.com/AdhdRichmondSupportGroup

Here's a sample of what's on the page: see "NOTES" for useful contacts, links, People's stories, activities & more ...

Scroll down the main home wall page for our regular updates - lots of valuable insights

See the "VIDEOS" section too .. and there are more videos on our new YouTube Channel @
www.youtube.com/user/AdhdRichmond

We'd appreciate your input comments and to "Like" the Facebook page (you'll need to sign in).

Please could you forward this email to your ADHD contacts e.g GP, School SENCO, specialists, in fact anyone who may be interested!

CuddlyTeach Tue 19-Feb-13 08:30:58

Thank you all for your help. We spent the whole of yesterday sat in my nephews drs office and we refuse to leave. They are changing his medication from conserta and they are now putting him on an antidepressant and Ritalin so hopefully this will help but the best news is they are now taking my sister seriously and we are having an emergency meeting on Wednesday to see if we can have him put in to a programme to get all the medication out if his system and start from scratch, they can also monitor his behaviour and keep him safe. Thank you pipin for that suggestion. We are so grateful for all mumsnetters help. It was a very emotional weekend and it's the 1st time I've ever seen my baby sister cry. My nephew was very emotional to and begged me to help him alll he kept saying was "auntie please make me feel normal" so it's now my goal to help him. I wouldn't have been able to make the 1st step without all your help though. Thank you so much

PipinJo Sat 16-Feb-13 18:03:12

I was thinking of AS and PDA too Mareey as Multiple Personality Disorder rarely diagnosed esp before adulthood never mind puperty. Even the Bi Polar could be AS as often mis diagnosed...Cuddly can your DN can get second opinion privately?

MareeyaDolores Sat 16-Feb-13 16:29:14

Impressive list of ailments for one so small. Does this fit better?

MareeyaDolores Sat 16-Feb-13 16:27:27

Before not beige blush

MareeyaDolores Sat 16-Feb-13 16:27:10

Yep, if he's admitted overnight for something physical (eg the rubber bands) and they've heard of the self-harm, any children's ward will want a kiddie-psychiatrist to chek him over beige discharge. Which given its a weekend will provably mean Monday.

PipinJo Sat 16-Feb-13 01:30:28

Sorry Cuddly missed your Question...yes it can make the bipolar worse hence the more aggressive outburst like he experienced...this could be when the meds is wearing off too hence Ouryve was asking was is XL. Your DN needs to start again in hospital under supervision where DN is safe and other family members are safe too. TBH if a SW was to hear he has been threatening his DSis he would be removed into hospital fast too. But this could also back fire on mum and they could accuse her of FII etc etc as you have said already they don't believe her....very common sadly in the world of mum's with dc with mental illness/disabilitiessad

I'd try and go the A&E route first....whilst still badgering CAHMS...ask to speak to the secretary of DN psychiatrist first. They can speak to the psychiatrist faster and possibly save time in going through others who may wait for weekly meeting.

PipinJo Sat 16-Feb-13 01:06:58

My hunch is the concerta which has been upped to 35mg coupled with the ritalin has reduced the mania but has ? caused it to tip into depression....also agitation and other side effects don't help....he could do with being drug free and start again.

How old was he when he was diagnosied multiple Personality Disorder? Seems young to be given any such label?

With biPolar meds the bloods need monitoring and I guess he was manic before this?

I would try hypnosis for blood tests...when DN is better though. This will give him more choice of meds.

But for now police if outside and does something dangerous and A&E for taking anything....also phone CAHMS and Monday to inform them of anything new.

Remove anything in house that can aid suicide as a precaution....razors, small objects that can choke, cleaning fluids, cords, belts...think toddler again...lock windows upstairs, keep checking him every 10 mins.

Your poor poor DSis.....she will get the help now as you are strong and will help them through this. x

CuddlyTeach Sat 16-Feb-13 00:52:36

Thank you ouryve you have been very helpful. I will relay all this back to my sister and we will demand am emergency meeting first thing Monday. Thank you so much.

CuddlyTeach Sat 16-Feb-13 00:51:16

When it's been brought up in meeting before they claim he does it because he has no danger awareness and simply cannot see the consequence of hurting himself. They seem to think he's not suicidal at all. My sister said she feels like the majority of the time they are bored of her and they think she makes a lot of it up. It so hard seeing people you love suffering

ouryve Sat 16-Feb-13 00:51:02

Psychosis and suicidal ideation are amongst the side effects of methylphenidate, btw.

And now, i really must get to bed before I can't get off the sofa any more.

ouryve Sat 16-Feb-13 00:42:57

PipinJo's advice re A&E is sensible, given this extra information and, to be honest, so does your suggestion of having him admitted. Someone has to sit up and take notice, somewhere alon rather than just making tweaks here and there. If he's actively wanting to seriously harm himself, it doesn't need to be glossed over.

CuddlyTeach Sat 16-Feb-13 00:41:38

Thank you ouryve. There is no Xl in his meds. According to my sister tey have put him on this as my nephew has a fear of needles and won't allow a blood test? I think that this is absurd if true. Conserta lasts for 12 hrs rather than 4-6 so he does not need to take medication in school. I feel that adhd is possibly the least of his worries. Could adhd meds make any symptoms of his bipolar or MPD worse? He is so depressed it makes me feel ill when I see how depressed a 13 year old child is. Earlier he flew in to a rage over something my step daughter had said and it lasted a full 2 hours and 40 mins. He punched doors, walls, himself and screamed every obscenity under the sun but in the next breath he was curled up on the floor sobbing his heart out like a baby. It was so surreal and I couldn't do a thing to help :-(

CuddlyTeach Sat 16-Feb-13 00:33:43

Thank you pipin. It's been an awful month. I didn't know my nephew had all these issues as my sister kept it hidden from us as she was ashamed. She has told me that the police have been called to him 18 times since Christmas and it has no effect on him what so ever. I have never experienced anything like this in my little bubble but now all I want to do is help my family. I have advised my sister to tell his pead that she wants off conserta and i am so sad to say that I too suggested having my 13 year old nephew sectioned under the mental health act so I am so glad you think this could be beneficial pipin. We don't know which diagnosis is the main contributor but at the moment all they are treating him for is his adhd but I feel that it's more than adhd making him this way. Do you have experience In multiple personality or bipolar? Any advice will be a blessing pipin. X

Camhs just keep fobbing us of with the same generic we are working through blah blah blah story. My sister has been there in tears pleading for help but they are not living her nightmare so have not enough time.

ouryve Sat 16-Feb-13 00:30:53

Concerta is the same drug as ritalin AND medkinet - methylphenidate, so his dose has been decreased if that's just a daily dose. Is XL in either of the names? Mehtylphenidate comes in instant and extended release forms and the extended release tablets are often labelled XL.

Generally with methylphenidate, there's an initial period of close monitoring, though if he's simply changed dose, they may not be doing that.

If he's putting himself at risk of harm, he does need to be seen and reassessed ASAP, though.

wasuup3000 Sat 16-Feb-13 00:24:05

Go and take him to Camhs with you 2moro and sit there until you get seen ??

PipinJo Sat 16-Feb-13 00:23:17

Hi Cuddly sorry to hear your nephew is unstable at present (hugs)

Do CAHMS feel DN behaviours are down to his Personality Disorder or due to BiPolar and ADHD?

I am asking because if they think it is the Personality disorder they don't want these behaviours reinforced by extra CAHMS input? It sounds like a mixture of adhd and BiPolar is worse and side effects of medication.

The next time dn puts his life at risk either ....phone police and ask for him to be taken to a place of safety explain his mental illnesses and his behaviours too and that CAHMS are waiting to have a multidisplinary meeting and in the meantime he has risked his life...they can have DN examined under the Mental Health Act.

If DN does anything physical like swallow rubber bands take him to A&E for treatment (Xray?) and ask for on call psychiatrist to assess DN again depending on assessment he could be admitted onto a ward.

His behaviours are worrying and he is such a complex child with many diagnosis it is hard...I wonder if the medication the concerta needs relooking at and if admitted to hospital they could assess drug free and start again?

Hope your DN gets help soon.

CuddlyTeach Fri 15-Feb-13 23:49:49

Camhs are aware and say that they are working with other agencies but nothing is being done. The conserta seems to have magnified his issues Nd made them 10 x worse. He's been on ritalin 50mg a day medkinect 40mg rispiradone 1.5 at morning and 1mg afternoon..circadin 10mg.

ouryve Fri 15-Feb-13 23:43:40

I think you need to call CAMHS and ask for an urgent review. What was he on before?

CuddlyTeach Fri 15-Feb-13 23:39:44

Hi all.

My nephew is 13 years old and he has multiple personality disorder, adhd, bipolar and significant learning difficulties.
He's been on medication for years now And it always seems to work at 1st but wears off after a while. As of 3 weeks ago he has been changed to 35mg of conserta. Since he's been on this his behaviour has deteriorated rapidly.
this is just a short list whats he's been up 2 the past 3 weeks. He climbed on top of a chapel roof to find a bird, he lay down in the middle of a busy road to take a rest , swallowed elastic bands to kill himself .
He is under camhs also.

Has anyone please got any advice, experience or knowledge of what my family can please do next. My sister is at her wits end and we just want to help my nephew feel good again.

Thanks in advance.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now