Here some suggested organisations that offer expert advice on SN.

Group Honk/Hug Friday Thread. I Love Us!!

(56 Posts)
hazeyjane Fri 15-Feb-13 15:00:20

Hope it is ok to start the Friday thread this week. After 2 bruising AIBU threads today, I thought it would be nice to start a sn love in (it is Valentines week after all!)

Pull up a beanbag, and grab some caring carrot juice (wine later)

Ds had a 24 hour ECG this week, and another visit to chest dr, lungs still very noisy, he is knackered poor boy. I have been going gluten free baking crazy, having done gf pancakes, mini victoria sponges and chocolate biscuits (or puddles as they could be more accurately described).

Hope everyone has had good weeks.

Ilisten2theradio Sat 16-Feb-13 15:47:21

I haven't been around for a few days so the AIBU has totally passed me by.
I must admit I retreat from those sort of threads, I don't find I have the energy to deal with ignorant and predudiced people these days.

I am sorry to hear that so many of you have had difficult weeks.
Yesterday DS invited 2 new friends (from new school) back and DD had a friend who had moved away over for a sleepover before the birthday party today so it was all go in this household. No chance of the radio being heard!
Actually it has been a quiet week for me until the madness of yesterday. I am holding my breath wondering why it has all been so smooth in fact.

lougle Sat 16-Feb-13 12:54:21

Fab, thank you!

zzzzz Sat 16-Feb-13 12:21:21

Sorry!
I'd do this then (again make your own not buy),

www.absorbentminds.co.uk/acatalog/info_L_12_17o.html

We jumped on letters on huge floor alphabet. So objects in box, stick your hand in, choose, leap from letter to letter to spell.

This is really great for early writing/reading

www.absorbentminds.co.uk/acatalog/info_202.html

I wish I could work out how to put photos on my profile, I would love to share some of the activities we do, and create a resource file. There are so many of us pooling our ideas would be awesome.

zzzzz Sat 16-Feb-13 12:19:41

I'd do this then (again make your own not buy),

http://www.absorbentminds.co.uk/acatalog/info_L_12_17o.html

We jumped on letters on huge floor alphabet. So objects in box, stick your hand in, choose, leap from letter to letter to spell.

This is really great for early writing/reading

http://www.absorbentminds.co.uk/acatalog/info_202.html

I wish I could work out how to put photos on my profile, I would love to share some of the activities we do, and create a resource file. There are so many of us pooling our ideas would be awesome.

lougle Sat 16-Feb-13 12:10:31

Oh, sorry, I think I've given the impression she can 'write' on an iPad! She can read 21 words using whole word recognition and she can write 'mum' and 'Millie' by hand independently, with a few other words with a model or hand over hand. No where near spelling yet, although keen and she often says 'E-R-S.....spaceship' so she understands that words are made of letters.

They have been using the IPad to let her take photos and use a story board type app to make up a story.

zzzzz Sat 16-Feb-13 11:50:45

lougle what about an old fashioned moveable alphabet.

www.absorbentminds.co.uk/acatalog/info_L_11_27s.html

Ds does really well with these but you can just print out letters on cards for the same effect. Have cards for high frequency words and topic relevant vocab as well and if you are getting fancy, Velcro lines on a board.

Might be a low tech interim answer, till the iPad can be managed.

I think iPad has been fantastic for ds and couldn't recommend it enough, so worth manoeuvring for IMO.

lougle Sat 16-Feb-13 11:08:55

Yes, I know...but I'm not sure they intend it to be read as that, and she isn't using the IPad every day, etc. Family fund don't have this restriction.

I think recording thoughts can be considered a communication aid tbh. Writing is communication.

lougle Sat 16-Feb-13 10:56:33

That's interesting, Ouryve, their website still says:

"4. Can I apply for an iPad?
We treat applications for iPads the same as we would one for a computer and will only fund iPads in very special circumstances. Your child must already be using an iPad in school as a communication aid."

DD1 isn't using it as a 'communication aid' in that she is verbal, she just can't record her thoughts permanently in the mode of writing yet, so they are starting to introduce the Ipad in that sense.

ouryve Sat 16-Feb-13 08:30:16

I have dreams that DS2 is having a perfectly clear conversation with me. Even one of his teachers had the same dream, a while back and she said it left her feeling quite out of sorts, the next day.

LimboLil Sat 16-Feb-13 08:00:45

Ouryve thanks, yes I read your thread. I know I'm not the only person that does this. My friend's dd has cp and she has dreams that she is up and about playing, and then wakes upon:-( v sad. In many ways I'm lucky, we have an older NT son and we manage things okay so he gets out and stuff, but even when I am doing something with him, there's a sadness that we are not all doing it.

ouryve Fri 15-Feb-13 23:51:08

Just to add, they've recently (very recently) tightened up the references to one educational and one medical, but the income cut off is much higher than family fund. We would qualify for one for DS2 if we could gather the references and we wouldn't qualify for family fund.

And the information I got before Christmas from someone working for Cerebra is that they've been given some funding specifically for this sort of thing, recently.

ouryve Fri 15-Feb-13 23:48:16

lougle - Cerebra are giving grants which will pay for 80% of an iPad.

blackeyedsusan Fri 15-Feb-13 23:15:30

ha. I came over here to hide from aibu... sseems to have been hidden far too well! hmm

envy feeling a bit queasy. too many maltesers due to a missed email and I have set off a chain of events to find out whether i am deluded about dd. If i am I will be only half deluded as ds proved to have asd.

lougle Fri 15-Feb-13 22:10:00

Cerebra are twitchy about computers/IPads, don't know why. They only do them in 'exceptional circumstances' and insist on a reference from the teacher explaining why it's essential and what is being done at school to warrant it at home, etc. Which the teacher is more than happy to do (she suggested it), but tbh, Family Fund is easier, because we meet the criteria and it's on their list of things they supply.

Lougle, woukd cereba help with a grant?

lougle Fri 15-Feb-13 21:58:28

I'm here. Just. DD1 has had a very hard afternoon. She came home in a foul mood from school because her 3 of her boy friends did 'choosing' and chose the IPad (her latest best activity) and her one girl friend did 'light and sound room'. She wouldn't tell me what she 'chose' - she just said 'NOTHING!!!!'

She was in a terrible rage because she 'didn't do ANY writing ALL DAY'. I think the fact that she can't write is starting to get beyond frustrating for her. She 'writes' me huge letters - scrawls across the page of squiggly lines. Then she 'reads' them to me.

They're starting to use the IPad at school with her, to give her a way recording her thoughts, etc. Looks like we need to get one here too, somehow.

ouryve Fri 15-Feb-13 21:49:43

5.5! Maths fail. Though that's just since diagnosis.

ouryve Fri 15-Feb-13 21:48:11

LimboLil - I've been doing this for 6.5 years, now and it still hits me like a breezeblock, sometimes (like when I'm struggling through snow with the buggy because I can't let DS1 walk home alone, like his peers, as I mentioned upthread)[hugs]

kinkyfuckery Fri 15-Feb-13 21:31:21

I've missed AIBU, not been on today.

We've had a bit of a blah week. DD's not actually been too bad at all, a little out of sorts as came home from school early yesterday ill and tired, but mostly been sitting on the sofa watching telly, which is a miracle in itself.

DD had her 'end of assessment' appointment at CAMHS this week, and was given a diagnosis of combined ADHD. We are waiting to be referred to the nurses for titration of Methylphenidate, hopefully starting in the next few weeks. I'm a bit meh about it, but her behaviour is having a huge effect on the whole family, so feel it balances out as being worth a trial to see how it goes.
Also, they are referring us to ADOS for ASD assessment. Not sure how I feel about that. It had been mentioned a few weeks back and they'd said they would try medication for six months, then review the ASD symptoms. I'm glad I'm not having to fight them for referral, but a bit scared that they've done it anyway without wanting to wait and see :/

moosemama Fri 15-Feb-13 20:03:14

Evening,

I am too tired to post really, but thought I'd put my head round the door.

I have updated both my threads, but am too tired to type it all again.

Hugs and wine to those that need it, I know I do.

EllenJaneisstillnotmyname Fri 15-Feb-13 18:59:34

I love the 5 and 2 diet! I sort of did the 2 and 5 diet unintentionally, when dickhead left, but found I can easily maintain the drastic weight loss on 5 and 2.

signandsmile Fri 15-Feb-13 18:13:21

Hi all, sorry to hear about crappy weeks, it has been quiet here chez sign... we were supposed to be going to see nanny and other stuff, but ds had reached blergh point (combination of explosion and deflation point IYSWIM) so we cancelled everything and hibernated for the week. He now has his equalibrium back, and has actually been doing some craft things, only 5 mins, but thats huge for him grin

bit sad that half term had to be a right off in order to get his head back and now we will be back to school, but I know you ladies get how that is.

and 'tum tiddy tum tum tum TUM!!!' I have arranged the next SW meet up, so this time next week I will have met a few more of you in the flesh as it were... altho that does sound like a naturist meet up.... blush

anyway I am doing the 5 and 2 diet so I will just envy all of you with the wine and chocs envy

Bluebirdonmyshoulder Fri 15-Feb-13 17:51:18

Interesting views on AIBU. I'm coming round to the view that every single post should stand so that everyone can see who has posted what. Make people live with what they've posted and then everyone else can see their history and ten at least we'll know who holds unpalatable views.

silverfrog Fri 15-Feb-13 17:46:23

thanks, Polter. she is beyond excited <weary sigh>

am planning to delegate cake making to dh grin

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now