Here some suggested organisations that offer expert advice on SN.
Group Honk/Hug Friday Thread. I Love Us!!(56 Posts)
Hope it is ok to start the Friday thread this week. After 2 bruising AIBU threads today, I thought it would be nice to start a sn love in (it is Valentines week after all!)
Pull up a beanbag, and grab some caring carrot juice (wine later)
Ds had a 24 hour ECG this week, and another visit to chest dr, lungs still very noisy, he is knackered poor boy. I have been going gluten free baking crazy, having done gf pancakes, mini victoria sponges and chocolate biscuits (or puddles as they could be more accurately described).
Hope everyone has had good weeks.
Poor mini-hazey, hope things improve soon.
We are on half term and ds remains anxious and fully wound. In a way I wish he'd just have a full on meltdown and get it all out, instead we just get frequent mini-meltdowns IYSWIM? Spent all day Wednesday and beyond bedtime preparing for a trip on Thursday to one of his favourite places, got there Thursday, to find they weren't opening for over an hour cue much swearing (from ds, not me! 'fuckus cuntus' being the favourite right now) and demands to go home, running away, eventually persuaded him to return to car and have a snack, went back and then after an hour he had had enough. Notice of change in times was teeny on website and I hadn't seen it.
I feel rather bruised today after that AIBU thread.
Joining in the group hug with an extra squeeze for mini-hazey and Poltergosling! And I love the sound of anyone who can turn the f word and the c word into Latin!!
Morning/Aftetnoon/Evening. I'm just finushed with a week of nights so not sure which end of the day I'm at.
I am very much enjoyjng Fuckus Cuntus. Might need to borrow it
I think swearing in Latin, on some of those threads might be the way to go.
<squeeze> to you Bluebird, some days it is definitely best to keep away from AIBU, I'm still not sure why you were deleted. You said you were having a bad day, hope you have a better weekend.
Polter, Fuckus Cuntus did make me laugh, but I can imagine after the xxxth time it probably wears thin! I have found the constant screaming from ds very wearing this week. We have had guests all week, so I have noticed it more, he is justs miserable so much of the time at the moment. I am supposed to be filling in a chart of when he head bangs and hits himself for the learning disability nurses, not only is it depressing, but I have also had to go out and photocopy another 4 charts!!
Big hugs for everybody who's feeling a bit bruised - AIBU can be horrid sometimes and ECG's are no fun.
We have had a good week this week, even with the shitey audiologist. Wednesday night, I took DD up to bed. After ten minutes she had a little cry, so I went up and asked 'what's the matter darling' and she said 'DD want drink'. YES!!!!! This may not sound like a big deal. It is. Normally I would just have to guess and try everything to see what the matter was, for DD to tell me what she wanted instead of taking me to it, or crying, or shrieking 'what de matter, what de matter, DD cryin' is just unbelievably brilliant. Making the connection between telling me what the problem is and me fixing it for her is something we've been working on for so long and it feels like she's finally getting it
And DS used the potty. mini-rah.
I do feel a bit of a coward for not posting on the AIBU thread, it is just so wearing, and the disablist comments feel like personal attacks. It is impossible not to get angry and upset at what comes across as ignorance and plain cruelty at times.
Am so glad ds's creative swearing has amused you all it is better than being hit, but I did feel like an AIBU thread in the making yesterday.
hazey it is when we have guests (which is rare) that I realise how dysfunctional our life must look, so much we do without thinking is completely outside the experience of the majority of people, and my ds 'just' has Aspergers.
MummytoMog great news for both your ds and dd, whatever you are doing is working, so feel free to bask in the glory of a job well done, and very well done to the moglings
I have an explanation now hazey. I don't agree but at least now I know how to phrase things in future.
And I think I'll just hide AIBU.
Anyway, nearly wine o'clock. Honks to all.
What do I keep telling you lot about AIBU!!
I have only read a tiny bit of it cos have had a manic day.
We have broken up today and were really ready for it, we are all done in.
Dd3 has had a tricky week at school with staff illness upsetting her routines, which is unavoidable sometimes but no less challenging.
I am definitely in need of some caring carrot juice and a bean bag
Hi all. I should be in the car collecting everyone. Our half term starts today, nd not a moment too soon. No less than 3 out of five being picked on at school this week. Dh is like an unexploded bomb, threatening to pulverise half the primary school. . I do love him, he is so marvelously bias and un PC.
We have been doing CELF test with local SALT this week but it is hard work. Ds can only do about 25 mins of mindless questions befor he resolves an it seems endless. Not sure how reliable results will be.
SALT has given me some bonza resources though, and lots to think about so tiring but useful.
5 days in the last 10 with hospital/meetings I am shattered.
I didn't ind the AIBU too bad though not uplifting. I think more an more people get it if you read the responses. Still a few arses but there always are.
polt sounds like the trip from hell. Poor you.
mummytomog wow! That is fantastic news. YAY!
Awww. Hugs for mini-hazey.
It's been DS2's turn for the snot monsters, this week. Had him off school for a couple of days, which meant having to struggle through drifting snow with his buggy to collect DS1 on Wednesday. Most kids in DS1's class can walk home alone and it's times like this that it hits me how different our lives are to those of parents of typical kids.
DS1's 1st day back after his time off involved and incident at school, resulting in another spectacular meltdown with a retreat into his fantasy world in which he did nothing wrong. The rest of the week has been so much better, though, spurred on by him looking forward to going to stay with my parents, alone, this weekend. The Ed Psych did the first of a series of assessments on him, today. We've definitely not been imagining his maths ability - not sure what test she ran, but he came out as age 14-21. Hopefully, he'll cooperate with the cognitive tests when she does them and that will give us evidence which will help us convince the LA that their standard offerings cannot cater for him, academically.
Polter sorry the trip went badly. Waiting is something Ds still doesn't do well. We get about 20 seconds before 'I'm bored, entertain me' kicks in.
Hazey and zzzzz sounds like gruelling weeks for both of you.
Mummy to Mog well done on the progress!
I lurk in AIBU sometimes but have promised myself I will never post so though I am sometimes tempted. I can't abide people spouting ignorant rubbish as if it was fact so was sorely tempted today.
Bit of a rough week here too. I have been pretty unwell with ME symptoms and Ds has got more than usually stuck in his OCD rituals. Really late for school one day and missed today altogether.
(((((hugs))))) to all feels like we all need it.
Big HONKS forzzzzz and NoHaudin and ouryve sounds like a few of us having tough times
I just want to do some knitting and DIY
I actually spoke to our S< today! And dd put herself to bed yesterday!
which is virtually unheard of, in the realms of chin still on floor
I didn't manage any knitting today, Polter! My first child-free day in 3 weeks when I didn't either have the raging snots of my own or a sore neck, so I prioritised dyeing my hair, in between cleaning up the carnage from DS2 being home
Well I'm only coming in if I can have wine.......
Honks to those who need them. I have had a mixed week and feel a little stressed, but OK...
Difficult: Have been doing my parental response to lEA's proposed statement, which I worked hard on and which ended up running to 11 pages.
DS's headbanging, which had seemingly totally disappeared last week, is back a little bit.
Good (I think): DS went to see ENT surgeon and have hearing test (which he co-operated with for the first time ever). Turns out his grommets have fallen out and his ears are full of wax, so here's hoping that new grommets (will go in on 11 March) will improve his vocalisations and sound imitations...
Wine o'clock coming fast (I have to drive home from work first though!)
from me starlight
I also bring space hoppers to sit on as I'm having a huge
preganant day and I'll never get off a beanbag. however it might amuse you all, it's like the turtle kitkat advert
I missed the aibu threads. too busy at work
YouTube-ing fainting goats Which is probably a good thing as it would only have made me angry.
I have had a week of being passed from pillar to post with people trying to get certain things moving. And a few snotty emails as phonecalls and fx things are now moving. Just have to keep them moving in the right direction.
It has been a hideous week in the silverfrog household.
the dc have all been fine, but dh and I have been really quite ill - proper flu style. We've barely been able to get up all week - thankfully our body clocks do not coincide at all, and so I've been muddling through the mornings, then fading and retiring to bed from lunchtime when dh has got up to muddle through the afternoons/bedtime. proper horrible lurgy though, but we seem to be coming out the other side now.
it's dd2's birthday tomorrow, so I am once more on baking duty. having hunted out and trialled (successfully!) a gluten/dairy free strawberry shortcake recipe, she has now decided she doesn't want that for her birthday cake after all <sigh>
instead, she conned me, in a moment of
illness weakness into buying her a Hello Kitty cake mould. the fecking thing has arrived, is enormous, and I have no idea what quantities will fill it/how long to bake for. with no room for error since we need the cake tomorrow <double sigh> and she has some very set ideas on how it should be decorated... tbh, what with this and her party planning/controlling, there is little doubt left at all that she is somewhere on the spectrum - her need for everything just so is spiralling out of control a little. ho hum.
Hi everyone, sorry to hear some of you have had a bad week. Been strange here. In a kind of post diagnosis haze, some of you will have read my threads on this. Found it a bit full on. My (newly diagnosed) 5 year old was home today with a cold, so I just had to pick up his brother from school today whilst my mum looked after him. Really hit me standing in the school playground how isolated I have become. Because I had time to take things in today and look around at how normal everything is for most people (bit of a generalisation I know). I also had a bit of a sad moment imagining what things would be like if my youngest was 'normal' and visualised the school run if this was the case and how we would be planning our weekend and half term. Have done this quite a bit lately. It's not that we have a horrible time, we really don't, but there's so much I would do with the both of them together and I know my older child is missing out even if he doesn't. Sorry this is rambly. I think there is a bit of a fall out occurring from everything that has happened over the last few months and really the last few years. I will snap out of it I'm sure! Really looking forward to having time out from the school routine next week :-)
Join the discussion
Please login first.