Now my lovely brother has lost his sight. Just drove him for an emergency MRI which they should have done last week when he went there blind in one eye. Now its both.
And people go on about there is a god..............right of course there is well he sure aint looking after me or my family :(
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You know sometimes life tests you just that little bit too much :(
33 replies
coff33pot · 07/02/2013 11:09
OP posts:
SummerRainIsADistantMemory ·
07/02/2013 11:12
{{{massive hugs}}}
Do they know what's causing it? Is there a chance it's temporary?
Your poor brother, he must be so scared 
zzzzz ·
07/02/2013 13:03
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Message withdrawn at poster's request.
PolterGoose ·
07/02/2013 13:03
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FreshWest ·
07/02/2013 13:14
Hi coff, I'm frequently amazed by a lot of your posts which show that in spite of what life throws at you, you keep on fighting. Faced with what you have had to contend with I'm sure I would have collapsed into a heap a long time ago.
Not sure if I have understood correctly but does your db have ms? If so then I'd like to add that it was problems with my eyesight (optic neuritis) that led to me getting a dx. My eyesight deteriorated badly in my left eye and I was so distraught and could only think I would never see dd get married ( 
big picture eh?). The MRI showed my brain had a patchwork of 'scarring'.
My eyesight has now come back properly and I only ever notice it as a slight strain if I'm having an ms related issue.
Just to say, keep strong and ((hugs))
coff33pot ·
07/02/2013 14:41
Thanks a lot for the prayers honks and thoughts :)
Just got back home still a bit confused tbh. Scan showed optic nerves are very enlarged and swollen. Right eye not as bad and the specialist put it down to eye strain now its compensating for two. But the pain he is in after diazapam AND zapain (sp) and ibruprofen is odd as you would think that would numb and elephant!
Specialist cannot see anything else causing it but scan been referred to neurologist now as they feel its to do with dystonia although to be honest not enough is really known about dystonia and about all it can affect.
Reason why I mentioned MS is they did not actually know what was wrong with him for years and Dystonia can cause eye problems yes but usually because a dystonic attack causes the lids to force themselves shut not actually cause blindness. Yes I know googling does you no favors. And he has had more relapses and attacks lately and is deteriorating quicker. Its just that "niggle" iykwim.
This person has said possibly his sight may return in about 6 weeks unless there is something else the neurologist spots as she said the scan and reading it is not her field (FFS! emergency scan and the fucking woman cant read it!!!) And she cant tell him WHY its swollen like it is
Fortunately his ankle that we thought he broke he dislocated and put it back at the same time by landing on it ouch! although he doesnt bruise he is purple now.
Fingers crossed it sorts itself out and I hope he gets a phone call pretty quick. I would assume he would if it was serious (well it is to me) but then they made DD wait weeks before they confirmed her cyst on the brain.
coffee and chocolate in order I think x
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