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What extra help does your asperger child get?

(23 Posts)
Oblomov Mon 04-Feb-13 17:02:49

This is, I too have a diagnosis of AS, School did do and IEP but offered no support and they now claim that he is fine and requires no support at all anyway.
I know EXACTLY where you. You have my sympathy.

Besides who cares. Its not even ASD probably!! Probably mums crap parenting. (I heard school say this) wink

thisisthestory Mon 04-Feb-13 11:00:41

I don't understand why they don't want to help... What good does it do them? It is utterly awful really.

Crawling Mon 04-Feb-13 10:56:04

That must be hard some schools need to get a grip. I havent had to fight with dd but I fear I will for ds and im dreading it. It makes what is already bloody hard alot worse grrrr.

thisisthestory Mon 04-Feb-13 10:37:31

Crawling- thanks for that. I am now on the verge of making complaints about everyone really, NHS can't / won't provide SALT, now they're saying they'll provide SALT when Ed Psyche does report. Ed Psyche referral refused by HT as there is "no evidence of a problem" shock despite having dx letters etc.

Crawling Mon 04-Feb-13 10:32:48

thisisthestory sad hope you some help soon.

thisisthestory Mon 04-Feb-13 10:29:06

We have a firm DX too, and although school have copies of letters from Dev Paed etc, they still refuse to recognise. Fuck I'm so annoyed today grin

sorry for thread hijack... hmm grin

thisisthestory Mon 04-Feb-13 10:27:07

...and worse, school refuse to do IEP shock and actively prevent EP observing him in school.

Am in rant mode today, sitting phoning various professionals who are not there and even when they are, are just absent... angry

thisisthestory Mon 04-Feb-13 10:25:23

I am also assured by his teachers that DS1 doesn't have ASD hmm and that his clumsiness is simply due to him "growing too fast".

thisisthestory Mon 04-Feb-13 10:21:59

Fuck all sad

I, however, get offers of parent support etc - I don't need this as a) DS1 isn't there is he? and b) I don't have bloody ASD - DS1 does.

2 years spent waiting for SALT so far angry

Got OT assessment after 2 years because I made a formal complaint. They'd just assumed his clumsiness had sorted itself out hmm

The school also had a visit from the Autism Advisory Service, who gave the SENCo extra ideas and advice. His class teacher has been on a training course to learn strategies to help him in the classroom and communicate with him effectively.

Crawling Mon 04-Feb-13 07:59:34

Oblomov sad
Thanks all I have a appointment with gp to see about fetting ds a referal today. I just needed to know there is some help out there and what sort is so I can push for it.

Oblomov Mon 04-Feb-13 07:26:07

None.

BeeMom: that sounds rather unfair.

BeeMom Sun 03-Feb-13 21:01:22

DS (14, also gifted) gets none - aside from the computer he has been given permission to bring to school with him. He really struggles with organizational skills and planning and is at risk of being removed from his enriched level math class as a result.

He does the following in small groups:
Handwriting help
Touch typing class
Social skills club
Guided play

oodlesofdoodles Sat 02-Feb-13 21:03:23

10 hours of 'light touch' TA to help keep him on track with tasks
30 mins exercise class in a small group (over and above PE etc)
Open door policy so that I can go in an discuss issues with CT and DH as and when they arise
And an unsmart IEP, but I'll tackle that at some point.

DS doesn't have a dx, we have been determined that he should get help according to need and not according to label. I guess we've been lucky that school have gone along with that.

Crawling Sat 02-Feb-13 20:09:18

Thanks all these are very helpful in showing me what help is out there.

WarmAndFuzzy Sat 02-Feb-13 20:02:22

I have two, they both have speech and language therapy for their attention, occupational therapy for handwriting and (in DS2's case) general gross motor skills as he also has a diagnosis of dyspraxia.

They've got some social skills stuff going on (circle of friends, talking partners) and they can talk to the school's 'learning mentor' if they feel down.

My youngest has a Statement with an LSA who is with him to keep him on track as much as possible. She's with him for all non break hours and helps him if his anxiety gets a bit too much, as well as encouraging him to talk to other children. During break times he plays with his friends.

The school also gets advice from the local autism unit, they come and observe them once every half term and give the teachers + LSA advice on what they can do to keep them calm and learning. So far that's included a weighted 'cat', sloping desk for writing, move'n'sit cushion (when they were younger) and a card for my youngest to give his teacher when he needs the loo.

They're doing well, and I can't speak highly enough of the school, and especially the SENCo as they've gone to such lengths to keep my children happy. They are still a bit odd but I get the feeling that they're liked and included by most of their classmates and they feel part of their classes.

I understand it's very patchy though, and some of the others on this board can tell you horror stories, so I hope you get the help your child needs!

Ineedmorepatience Sat 02-Feb-13 19:59:46

It is a booklet made by the child and an adult which explains the childs difficulties and has info on how the staff can best support them. Dd3's has info about named adults within the school who can help/support her and who her close friends are.

They are particularly useful when supply teachers come in to school or people who arent familiar with her. Her current one doesnt contain info about her diagnosis but she is just about to make a new one which will.

Also google "One page profile" I quite like those too.

lovemy3boys Sat 02-Feb-13 19:42:08

can I ask what a passport is?? Thanks

Ineedmorepatience Sat 02-Feb-13 18:24:20

Dd3 has accessed some social skills groups, has support from the SEN team on an adhoc basis. Senco keeps an eye on her as do lots of the support staff.

She has a passport explaining her difficulties and strategies to support her. This also includes named staff members who have built a relationship with her and who can help her when she needs it.

She was getting physio too but that has fizzled out and needs chasing up.

I know this sounds a bit hit and miss but the school is so totally inclusive that it works.

Good lucksmile

lovemy3boys Sat 02-Feb-13 17:59:53

my youngest ds3 was dx a few weeks ago, his class teacher is also SEN and has taught him for since foundation. He has a workspace set up just for him (he calls it his quiet area). He has receptive language difficulties/processing problems and so is having one to one literacy, reading and Maths for short sessions each day with a TA. They are also starting to implement a different way of teaching him in maths that is more visual (its how he learns best)He is also going to be going to a nurture group within school for socialisation skills. We're waiting for the asd teacher, ot and SALT to assess and see what they recommend. Its very early days but think we have a good teacher/senco who is very experienced. We're meeting teacher after half term to go through the learning plan etc. Hope this helps xx

Crawling Sat 02-Feb-13 17:48:57

Do they get any additional help at school? If so what help are they offered?

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