Here some suggested organisations that offer expert advice on SN.
Is there anything wrong with my 11 month old(10 Posts)
Just a little update to say today she sat! Ok only for 6 mins but normally she doesn't even manage 10 seconds so a very happy mummy indeed
Is it awful going to baby groups and seeing 7 month olds sitting and crawling while em just lies there laughing and ' singing' along. But I try not to let it get to me as she loves going and is always getting me to sing nursery rhymes (I could strangle whoever made up dingle dangle scarecrow!) so I grin and bare it I was hoping she would see the other babies crawling and think it looks fun but she just laughs at them. I'm beginning to wonder if she's got it right just lying there getting everything given to her instead of going through the bother of moving to get it! At first I did think she was a bit lazy (taking after me ) but now I am getting concerned as she's 1 in 3 weeks
Very glad to hear you are getting physio - makes such a difference getting early intervention. I can understand your concern especially with your own medical condition. A friend of mine had juvenile arthritis but despite an initial delay is absolutely fine now as an adult.
My dd had a bad start at birth in SCBU and now has very mild cerebral palsy and is mostly low toned. Her gross motor skills were quite similar at the same age - sitting up was very hard due to low muscle tone in her trunk. She still managed to crawl and then walked at 20 months.
Probably the hardest thing is seeing other babies developing these skills easily around you - took me ages to take dd to baby groups as that would really get to me too
Thank you for your replies. It's the neonatal consultant who we are going to see. He has a clinic where he keeps upto date with his tiny babies who were in the SCBU. I think he's used to premies as they don't get many term babies in their unit so I think he might not get it as much as other consultants do.
Our physio I think is pretty fantastic she's a lovely lady who always seems positive she is hands on with em and always making her go in positions to help her normally making em scream.
What I didn't mention before is that me and my husband are both disabled he has arthritis and I've got a back condition we can both walk and move around ok but I think because of this we are both paranoid that we have passed something on even though I don't think either condition can be carried on to kids.
She's currently lying on the floor dancing along to the nursery song dingle dangle scarecrow it's hard to imagine that there might be something wrong with my perfect little flossy
Hi. I don't want to worry you but this sounds like my ds who has cp. no real problems apart from gross motor. He sat at 11 months. There's a full thread with lots of detail. Can't link at the mo.
I don't have any experience of the kind of delay you are describing, however I do have 5 children and 2 of them have sn.
I think you are right to be concerned and that a peadiatrician is the right person to be talking too. Anyone suggesting a nearly one year old who cannot roll over is "just a bit lazy" is deceiving you and themselves.
Having said that I don't mean that you should panic. My dd3 lost much of the left side of her bodies strength and control after some severe seizures at 11months and with work has regained it (over years). Your discription of her interactions is very reassuring.
I'm not sure about asking for specific tests eg MRI because they should have a clear diagnostic path and be able to explain why they feel each test should be done. If the "consultant" is still of the opinion that you should just wait and see, personally I would want a second opinion.
Request a date-stamped form from the disability helpline first thing tomorrow. Claim DLA using the cerebra guide. You dont need a disease, delay needing physio, portage and paediatrician is enough. Use the DLA to pay for private physio, its useful in itself and theyll do a good report for the paediatrician. If you get tax credits, make sure you tell them, as they also increase a bit.
Hi, it's good you are receiving some help at least, when my ds was in a similar situation ( same age) I was told by GP there is nothing wrong with him and Einsten walked at 4... What consultant are you going to see - a paedetrician? He should refer you to neurologist and he should do MRI and other investigations. Is the physio doing any hands on proper physio, or just observing? If she just observes, I would definetely recommend you to get a private physio and also private OT. For us it was the best decision, the difference was huge, but we are unfortunate in having totally useless NHS team here. You can either get both separately or go to Brainwave for example - they were fantastic. They observed ds for 2 days and gave us detailed home programme. They noticed things that the NHS people did not pick up on in a year of observing ds.
I'm not sure if I should post this here but I posted in parenting and I was advised that people on here may be able to help me better
My dd is 11 months old and she can't sit up yet or roll over or crawl. She sees a physio and we see portage (a team who deal with disabled aNd special needs children) to help her. She seems to be able to sit but once she realises she is she leans back and she just flops back. No one really seems to know what if anything is wrong with her. The physio seems to think she's just weary and is taking it all in before she does it. I've googled (I know googles the devil) and everything that comes up always seems to have other stuff linked. She can do loads of little stuff. She can pick things up in a pincer and pass them hand to hand, she can clap (if you ask her too she can do it don't have to show her) she can wave, blow raspberries say dada, nana, Hiya and hello. She is a happy little girl loves laughing and smiling. She can pick her dummy up and put it in herself and she's a fantastic little sleeper (most of the time!) and she can feed herself and drink from a straw. It's just her gross motor skills that seem to be the problem
We don't know how to help her and we try our best to encourage her and we have lots of toys and props to help her sit up.
Has anyone been through this? Is it possible that she can be totally fine and be this delayed? She's our first so we are a bit scared as to what can happen
A little bit of background she was 11 days late induced and forceps. Had phunomia and was in SCBU for 3 weeks, wouldn't feed so had feeding tube for 8 weeks. The consultant seems to think she's lazy (very helpful) but he's finally agreed to see her on the 14th feb. is there anything I should ask him specifically? Can I ask for an MRI? If I do how long will it take? Would it be the best route? I'm not a ' wait and see' person so this is really getting to me. It's stopping me really enjoying her as I keep seeing other babies who are months younger doing stuff she can't.
Sorry for the extremely long post I hope someone can help
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