Here some suggested organisations that offer expert advice on SN.

The one and only Friday Night Fred.

(34 Posts)
EllenJaneisstillnotmyname Fri 01-Feb-13 17:10:39

Which is apt, as my friend, Fred, is due to arrive shortly for the weekend.

How are you all doing? It's been pretty quiet here. I've been doing housework (urgh) in honour of my friend and the boys are with their D for the weekend.

I've been crocheting Little Hugs which has eaten into my MNing time and read the book from my book club. Looking forward to a curry this evening.

Evening all! Does anyone know any good websites, or which section on here I'd need, to gauge interest in a potential business venture?

I'm so fed up of jobseeking with my stupid eyesight, I'm tempted to start my photography business - but it'd be quite a niche and I need to gauge the interest in my region...

Other than that, I'm alright, starting with the Prince's Trust in 2 weeks, on their Team programme, and very much looking forward to it smile

PolterGoose Fri 01-Feb-13 22:41:24

Good luck BeeMom

BeeMom Fri 01-Feb-13 22:16:46

This week could definitely have been better... next week will be worse.

I will be going hammer and tongs against the school regarding their declaration for next year... and am bringing a secret weapon grin

I have invited the home care case manager - you see, the school has broadly declared Bee will be fine, as she will have her regular nurse with her. They said this without even speaking to the case manager... who would have told her that the company the nurse works for does not go to the school they have named, and there is no guarantee that she will even have nursing. This might be interesting, indeed.

Aw Fighting! This bit is the worst you know. Then you'll learn and fill the void of dread with knowledge and it will be better, not necessarily easy, but definately better.

FightingForSurvival Fri 01-Feb-13 21:55:40

An uneventful week and then today, a five minute phone call with confirmation that we will get ASD dx at our appt next week. Been strangely calm all day. Broke news to hub tonight, he seems okay too. Had Chinese food and now I am going to watch the telly without my mind whirring round is he/isn't he. Apparently he is. And the last two years make more sense.

PolterGoose Fri 01-Feb-13 21:24:07

Sorry you've not had a good week NoHaudin but glad it went well at new school and hope they do deliver what ds needs.

NoHaudinMaWheest Fri 01-Feb-13 21:06:05

Hi to all.
Well done and good luck to those fight for provision.
Good Ds is out of hospital Hazey. What a fantastic GP!
Sign disco and a friend's house wow!
Bigblue it is scary that transition to adult service is so disorganised. My Ds's needs are nothing like as complex as your Dd's but I have been told already that he can stay with children's service for up to 3 months after his 18th birthday to help smooth transition.
We had a meeting with the SENCO at the school we hope Ds will transfer to for 6th form. It seemed to go well, just hope all the promises will materialise.
I haven't been having a good week healthwise. Had to spend most of Monday horizontal but feel a bit better today.

Ineedmorepatience Fri 01-Feb-13 20:37:06

They were temp exclusions thank goodness but just sending completely the wrong message. Imho of course.

lougle Fri 01-Feb-13 20:11:46

What a week.

So tired now, but dd2's in a place where she seems happy and we might even be able to work out whether her behaviours are due to environment or really do need pursuing.

ouryve Fri 01-Feb-13 20:08:22

Apart from DS1 developing a habit of deliberately wading though all the dogshit that accumulated in the 2 weeks there was snow on the ground, it's been a relatively quiet, sane week chez Yve. (For a given value of quiet)

Had contact from parent partnership and we're going to visit a local SS I didn't get round to visiting when I was doing the rounds, last year. It's not for over a month, but we've plenty of time while the Ed Psych does her stuff - she's planning on visiting the boys on several occasions. She said that, given DS1's circumstances (she's spoken to the EP about him) this school and the one I've seen should be enough to build a case for him transferring to the out of area non-maintained special school we have in mind for him.

AuntStressie Fri 01-Feb-13 20:07:19

Oops twin posts blush

AuntStressie Fri 01-Feb-13 20:06:54

Evening all smile
Moose good luck with the school choice - I think they'll agree to it. Let me know what your 'plan' is for school. I have had very similar experiences and am getting my revenge as we speak wink
Ineed - that is a worry. Are they permanent or temporary exclusions? My ds was excluded and I know it was just to give the school a 'break' but they don't think about the consequences for the child and family sad

imogengladhart Fri 01-Feb-13 20:06:30

Message withdrawn at poster's request.

AuntStressie Fri 01-Feb-13 20:05:48

Evening all smile
Moose good luck with the school choice - I think they'll agree to it. Let me know what your 'plan' is for school. I have had very similar experiences and am getting my revenge as we speak wink
Ineed - that is a worry. Are they permanent or temporary exclusions? My ds was excluded and I know it was just to give the school a 'break' but they don't think about the consequences for the child and family sad

imogengladhart Fri 01-Feb-13 20:04:35

Message withdrawn at poster's request.

zzzzz Fri 01-Feb-13 20:02:37

hazey I'm so glad you're home. GP sounds very sensible.

Ineedmorepatience Fri 01-Feb-13 19:38:55

I have had a scary week Tbh, I heard of 2 autistic children in 2 schools very local to me who have been excluded this week.

What I found particularly upsetting was that neither of the children had been violent and both are having significant difficulties remaining in the classroom and the school management teams answer to that was to send them home!

I do not understand how sending them home is supposed to help them access the curriculum or stay in the classroom.

Sorry to be glum but one of the schools concerned is the secondary where Dd3 is/was heading.sad

hazeyjane Fri 01-Feb-13 19:34:59

Thankyou everyone for holding my hand in hospital with ds this week, it really does help to know there are geese flapping along gently behind you.

Ds has impoved, but is still pretty poorly, his gp has emailed all the other gp's in the surgery to emphasise the importance of treating any suspicious symptoms aggressively, to get us up ti the children's ward if there is any doubt,and in big letters at the bottom she wrote, 'LISTEN TO DS'S PARENTS' - I love our gp.

Hi to all respondents of the friday night fred..

Received this week the choice of options letter for Y9 in preparation for the next two years GCSE courses. He would like to do History, Tech and French (I can help him with that language). I just hope that school agree, already had a run in with them last year over their decision to pull him out of both languages without consulting me beforehand!. Not one of their better decisions as they discovered when I challenged it (and won).

A friend of mine has had the "if in doubt blame the parents" spiel from a school. Why do they do this and seemingly take great delight in doing so?.

I chatted to a mum with her delightful one year old today and it made me think where did all those years go eh with regards to my now teenager son?.

zzzzz Fri 01-Feb-13 19:07:56

Hi all,
Horrid week here. First senco meeting for ds2 which has left me totally confused. Then dd3 sent home looking a bit seizure ish. She's been fine, but I am back to not sleeping much and feeling really really down.

I'm sorry I don't have the brain power to do individuals. I've been much buoyed this week by lougles decisiveness and polts rapid fire letter writing. Well done both of you, you are setting a rather high bar for us all to reach. As for stars NHS butt woopin....don't mess with the geese this week eh?

bigbluebus Fri 01-Feb-13 18:59:54

That makes very interesting reading mareeya. I wouldn't mind betting that no such policy exists in our local hospital trust. They couldn't even make a decision about what age in-patient transition would occur at until I pushed them for a decision. It is all further complicated by the fact that DD stays with her Community Paediatrician until she leaves school, so has no Adult Physician at the hospital and has been discharged by the acute Paediatricians. We have not been transferred to any other specialist adult services either ie dietician, epilepsy nurse, just 'let go' by the children's ones. I think a conversation with PALS is an excellent idea. Thank You.

PolterGoose Fri 01-Feb-13 18:59:46

signandsmile well done your ds, I know I shouldn't but I did do grin at biting a lamppost

signandsmile Fri 01-Feb-13 18:55:08

Hi all, quick pop in, as am still planning tomorrows lesson, blush (new group of SW students)

well ds went to the school disco last night and I did not stay, (and he coped fabbily) so chuffed. (he was absolute ratbag this morning though...so grumpy and noise sensitve and so cross and grumpy on the way home that he bit a lampost... hmm confused however at least it was not himself or anyone else, so that was kind of ok,

and he also managed to go for tea at a friends house this week and managed really well. So all in all a good week...

right... should head back to lesson planning. ah the joys of powerpoint... grin

MareeyaDolores Fri 01-Feb-13 18:36:07

Hi to star, moose, polter, ilisten & Ellen. Ds2 howling, hopefully will be back with wine later.

MareeyaDolores Fri 01-Feb-13 18:34:34

Bigblue, having spoken to high-ups might make you feel better about the hospital. Print this and contact your hospital's PALS to ask them for the local version.... then request to speak to a manager about 'pre-admission discharge planning'. Mention the huge expense of even a few days of bed-blocking / poorly planned care, given she'll probably have several admissions before they get it right through trial and error alone.

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