Anyone know about odd?

[tortoise]

A friend of mine has just been told by gp that her 12yr ds may have this.Ive never heard of it.Has anyone else?And any advice for her?

[tortoise]

Anyone?

[Blossomhill]

I found \link{http://www.aacap.org/publications/factsfam/72.htm\this} for you.

[tortoise]

Thank you.Ive printed it out for her.

[Peachyclair]

You could signpost her to BIBIC if you think she'd like the support, (www.bibic.org.uk), it's one they can help with.

[butty]

Peachyclaire,

you mention BIBC for ODD???

My dd has just recently been dx'ed with ODD and as of yet i am not really getting any help!!!

We have a lady who comes to see me and chloe at home to evaluate the scale of things and give me some tips on where i could be going wrong at handling her constant outbursts, but other than that nothing!!!

Are they able to help with ODD children???

Butty.xxx

[Peachyclair]

Well, I cant see why they wouldn't because of the way they work.... they identify particulat areas and deal with those (sucha s for Sam, his anxiety) and help you deal with those.

I would give them a ring. The first step in the process is a free over the phone interview, where they are very honest about whether they can help.

From waht i've read many of the ODD traits are in common with other disorders such as ADHD (although not all, obv) and ADHD fots on their radar.

Honestly, call them and see- if they can help... well the support they have given us has been amazing.

[lars]

tortoise, my ds has been diagnoised with ODD, but since has had a another diagnoisis for ASD.

It has been a real struggle and I can totally understand wht butty has said there appears to be little help and understanding from schools especially.

Most teacher haven't come across it or know of it and this is a very grey area for schools, as just like my ds there can be other problems as well.

I really do hope your friend get's some help. larsxx

[butty]

lars,

out of interest, what help do you get from the school???

Chloe apparantly does not show any defiant behaviour and seems pretty able to comply. She is currently having problems in the playground and struggles with her work!!!

The ADHD nurse has explained that girls with ODD tend to have ADHD, but as they are more able to conform due to peers etc... it doesn't show as a problem, and she says that it goes hand in hand with ADHD.

The support worker came for the first time yesterday and has spoken to one of the specialists at the ADHD clinic of whom to my delight knows what i'm going through and she has passed on the message for me to call her, so she can arrange a home visit and put chloe to a support group for children with behavioural problems.

the support worker said that not enough is done for children with ODD/ADHD etc... especially girls as so much harder to DX

Butty.xxx

[lars]

butty, I really know how difficult it is to get help. DS is statemented and clearly has other problems a well, but took 2 years for the professionals to figure it out.

I didn't get alot of help and was at wits end. I went everywhere with DS. The only help I got was a parenting group which was helpful to a degree.
DS's last school were very unsupportive and were playing a real game with us as parents, so we would get so fed up that we would move him. They didn't really help the situation or want to help us. I felt let down by the whole system from LEA to professionals. The truth is I wasn't even put in touch with a support group.So as for help I received none, even the school nurse referred us for some help from social services but they didn't want to know. LARSXX

[butty]

Laes,

i do get help from the school teacher who is very aware of the problems that i have with chloe at home and everywhere else, other than school.

The problem she has, is that if chloe doesn't show definate defiance etc..., theres not alot she can do, although chloe does sit on the table for support and is currently bottom of her class.

She has an IEP, but thats about it. The school behaviourist see's her once a month and has been to the house, so she is fully aware of the problems with chloe as she has seen them for herself and has told the school that she would like to carry on seeing her.

I was put to SS, who referred me to the family centre for a parenting class which lasted 12 weeks and then ss discharged us, so the family centre took it upon themselves after seeing what a hard time i have with chloe to send the support worker i mentioned earlier out to.

But unfortunately, it is only for 6 weeks as SS won't allow anymore time and have said that they should never have arranged it

So, i really dont know what to do, as i am starting to get somewhere, but as soon as it starts, it is so near finishing!!!!!!!!

am totally pissed at the whole system!!!

Dylan doesn't even have a social worker and they have refused help for him as apparantly he is too young even moreed.!!!! Bearing in mind that he attends a special school, has a statement, needs constant supervision, struggles to walk and can't talk and thats just part of his problems!!!!!!!!!!!!

the system is a bag of crap and i hate it!!!!!!!

Butty.xxx

[lars]

butty, Have your ask the behaviour support worker for an alternative parenting group or a support group?
Butty I will say it must be a relief to know Chloe can conform at school, as i have had to deal with exclusions as boys are much more difficult it seems. I really don't know what to say about 'help' and if you find some , let me know . larsxx