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ever decreasing circles...
(109 Posts)an update to our situation:
Out of an unappealing set of options, I decided to stay put and try original local school. This was on basis kids still had secure roof and original school didnt have the sensory probs prev one had had and pressure being put on all round.
Things have moved on, a bit.
Returning to orig local school has been very very mixed. Ds clearly much much happier without the sensory hell of prev school. Ear defenders not needed in class, school sending him off for lego when he cannot cope with noisy indoor break times. However, ALL the help suggested at last multimeeting has not materialised. No overlays, no sitnmove, no timetable nothing. Teacher not actively nasty but v switched off from Ds in ds opinion and my observation. Also bullying - again - which they are trying to deal with but which is continuing. Child involved is our GP kid (also leader of ds only out of school activity. I hope they will be prof about it, I will be, but they are only human and I am worried it will become nasty). Child is also highly able / teachers pet in class. Spent 40mins trying to get ds in y'day in floods and distress. Staff explained that the boys who have been emptying his pockets against a wire fence are 'nice boys' (they prob are, but it needs stopped. to be fair they had them in again y'day). Also I was told that his teacher is 'v busy' for answering ds qu's (he may be, so get some 1:1 sorted then). By the time I'd walked home there was a message on answerphone saying: 'now YOU have left he is settled and quite happy'.
There is to be another multimeeting 'early feb' so I have heard via school. No formal letter yet. Will inc the Ed Psy who the Pead told me had CP concerns re our 'dx chasing'. Wonder what they will try to do to us this time? Not help ds, thats for sure.
I also decided to pursue the place at the private school as I was concerned that the original local school wouldnt help ds with his dyslexia. If he is helped with his SEN his anxiety will decrease I am sure. I was pursuing the private place thru discrimination legislation (only option).
Now have draft letter to go to private school:
the bit that worries me is:
"as you will be aware, the definition of "disability" in terms of section 6 of the equality act 2010 is not dependent on any specific diagnosis, but rather focuses on what impact the "impairment" has on an individuals ability to carry out normal day to day activities. this impact is set out in some detail in the neruodevelopmental report from Dr K. YOu already have a copy of this report. Further insight into ds condition from mothers perspective is offered below."
Am scared this will be passed straight over to Ed Psy / Pead who have said that my very seeing Dr K is evidence of CP concerns re ds and will certainly take further ref to that report and disability in the same para as futher evidence?
It is clear we did the right thing moving ds from prev vile school. However, it is also clear that, if nothing improves, this original setting is no good for him. The private one is fraught with danger and £ pressure (even scared to send lawyers letter, ffs). Yet another move is more upheaval for him. Yesterday he ate breakfast under a tent to stop dd 'looking at him' and was generally v fragile. Dont want to put him through any more.
To add to the mix, H was off last week and we were supposed to be working together to empty out the house a bit for sale/rent/general improvement. It was purgatory. He lives under the same roof (sep rooms) as us but is not 'there' for the kids at all, except outside house he showily takes ds to 1 club a week. He would find it easier to be an engaged dad if he saw them less he says, and I agree.
Till I can get ds in more reliably each day I cannot seek work, which I need to be secure, esp when we separate.
I guess I go to the multmeeting (if I can) and see what fresh hell they have up their sleeves. Also see if any joy re private. If both awful then I just have to go, and I will then always feel guilty I didnt do it last summer 
If you agree with me on this last point, please dont make it toooooo forcefully as I need MNSN as much as ever to find my way through this murky mess.
That is all kinds of fucked up Imogen isn't it? 
Wrt ooh gp they will only send him to a and e if he is seriously ill.
I think he needs some cold sore meds/acyclovir (herpes meds)
And it means you can keep him off school next week as you have new to ooh gp and he has been seen.
NHS direct always say go to A&E, so if you ring them, it's their fault 
I do get that, imogen, I really do. I felt similarly, despite it only being the HT heavily implying that I was fabricating. It hadn't gone any further at all. Add to that, the situation was only escalated in 3 weeks!
Bottom line, I've got to live with my decisions when I look back as an old lady. At least if it goes pear-shaped, it already was. If I didn't try, I'd never know if I could have changed life for her.
You have got to do something. This is not going to change, it really isn't. Your DS isn't going to suddenly say
"You know what...this school, with it's unchallenged bullying by children and teachers, it's lack of support and the fact that everyone blames me for having SEN....well it's ok really, because it's better than the other really terrible one..."
Yes, it is all kinds of fucked up, I agree, badvoc.
I have used acyclvir topically today.
his mouth has still come up hugely tho.
he first had this at about 3, when he first caught the virus.
twas horrendous, all down his throat / in ears / on eyelids
we were told to give him capol. 
I will call them, I think in morning, when I have all my wits about me.
Lougle, yes, your last para is very apt.
Sad thing is, for him, it IS better, so it shows how appalling it was in last place. Today he said, last place was 11/10 bad, this one is 8/10. I'm aiming for 2/3, at most.
So something needs doing.
I tried, to save the stable roof, and it aint working.
I will look back and know I tried, but I also made changes where changes are now needed.
He is up and about but not upto brekkie atm.
His poor mouth looks so sore and he went thru the alphbet earlier (his idea! but cant make all the letter shapes with mouth as its so sore
For some reason when we use Vaseline he comes out in a flushy rash and it makes him feel vommity so we dont use that but I'm not sure what we can use round his mouth which is all cracking and sore???
, but he's been bright enough in himself to ask for a film, first thing Sunday am! He's on the sofa with a duvet.
I'll give it till lunch and see how he is as I am still reluctant to call outofhours for reasons above. If he doesnt eat lunch as well though I might call.
He was quiet but okayish yday so I didnt call ooh.
Bad night tho. Up till 11pmish, then up at 3, in with me, very restless.
His eczema is so itchy at night, poor thing.
I couldnt rouse him this am.
A friend kindly took dd in and ds then woke and had brekkie.
I took him in at morning break but he sobbed in the car all the way.
The school office took 1 look and agreed he should be in bed.
He is prob still viral as fresh sores still coming.
Will try for gp appt today.
Oh poor ds.
Yes, do get him into gp.
Oof. Only GP's avail where the one from last year (parent at old school) who is not someone I would visit again. Or, the parent of the child we have complained about. By the time another avail (later this week) sores will have gone. Eczema still a prob though so may ask to be ref back to excellent person we saw at hosp for this before (tho this was before all this nonsense, so may get a diff response from them this time).
Have a plan of action:
Will attend multimeeting. Will ask why none of agreed actions of last one were done. Will ask what they propose re his school generated distress. Will ask for him to go back to his proper year group (thus getting him away from this hopeless Ct). Meantime, will write complaint letter about CT. (more rubbish y'day about spelling tests - DS (stunningly) got 9/10 - CT response 'see, if you had done your h/w for the others there wouldnt have been a problem would there'. THis person has been nothing but negative.
Will get the letter sent to the private school. If it gets to that stage I will go back and meet with them again and I will go with my gut feeling whether that is worth a try for ds. it is the only hope we have of staying in house but it would have to feel absolutely RIGHT for me to try it. I will put them through the 3rd degree re Qu how they will treat ds if he is distressed - if it doesnt feel completely okay, I will decline the place. It is not the only option.
If I dont feel either local option is going to be possible for ds to access his education without undue distress, I will move to Plan B.
Oh, crap.
Now have school meeting date.
Independent advocate that came last time cannot come.
cannot get anyone else to come.
Have baaaaad feeling about this...
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