Here some suggested organisations that offer expert advice on SN.

dla forms help please

(22 Posts)
OwlLady Wed 12-Dec-12 16:30:09

it's very isolating when you have a child with special needs, this is where places like this come into their own, imo. Hope it all goes well

Crawling Wed 12-Dec-12 16:01:46

thanks again owl lady my god I don't think I would have got through the last few months without mnet a huge huge hug to all who have helped me on this thread and any others.

OwlLady Wed 12-Dec-12 15:46:47

yes, she would be fine

Crawling Wed 12-Dec-12 15:29:36

also you know the section to be filled in by someone who cares for the child would dds portage worker be acceptable?

perceptionInaPearTree Wed 12-Dec-12 12:12:56

The length of award varies, so far I have completed my dd's forms at 3, at nearly 5 and at nearly 11. Her new award runs out when she's 16.

Remember there is no room for anything positive on the forms. You need to use powerful language to make a stark comparison between your child and NT children the same age. I always give a blow by blow account of all her care needs.

Do you have any other children? I find it helps to compare my dd with her younger NT siblings, who both have better danger awareness than she does (and one is 3!) and how the 8 year old is independent with her self help skills while dd1 (11) still needs a lot of help to eat, to get dressed.

When outside, think about whether she needs restraint (restraint can be just a hand on her arm for example).

Crawling Wed 12-Dec-12 12:02:31

I see owl lady thank you its so easy to forget how much you actually do. I am going to fill the form inMonday at the citizens advice my portage worker said they usually help out with that but I have been thinking about each question and sticking post it notes on to remind me.

OwlLady Wed 12-Dec-12 10:22:58

do you need to check on her during the night? does she needs 24 hour supervision?

all is important to put down, stripping beds if wet/smeared important too

My dd is severely/has epilepsy etc but sleeps rather well whilst on school term, but it still doesn't take the need away for me to check or change her in the night, strip the bed and bathe her, stay with her if she has had a seizure, be alert the whole night if she needs me. Do you know what I mean? It has to be the worst day noted on the form

Crawling Wed 12-Dec-12 10:04:02

Thank you owl lady I usually have to change her happy at least once through the night but when asked if she had night time needs I didn't think about her nappy changes.

OwlLady Wed 12-Dec-12 10:00:45

yes, you can. She requires 24/7 helps with all her personal care needs. Bed changing (during night) bathing, toileting etc Very important to state she is doubly incontinent

Crawling Wed 12-Dec-12 09:57:29

Can I ask can I put that because dd is still in nappies she requires extra baths so she doesn't get sore and that because she smears her feaces she sometimes requires a second bath?

cheekkatb Tue 11-Dec-12 21:21:25

I applied when my son was 4 and we were awarded DLA for 3 years and reapplied when he was 7, and it was awarded until his 16th birthday.

OwlLady Tue 11-Dec-12 16:06:38

ask your portage worker, she will either be able to help or know of someone who can smile

CatchingMockingbirds Tue 11-Dec-12 16:06:33

I'm filling mine out today too, I've to fill it out and the lady at camhs is going to fill some out too to support it.

<watches thread and takse notes>

Crawling Tue 11-Dec-12 16:02:09

Dd sees pediatrician ed psych salt and portage.

OwlLady Tue 11-Dec-12 14:58:58

no it's usually awarded for three years

OwlLady Tue 11-Dec-12 14:58:38

I would try and get some professional help filling it in. Is your daughter under anyone (like social services, portage -sorry don't know how she is, a special needs school or nursery, a specialist health visitor?)

Crawling Tue 11-Dec-12 14:57:28

Also is dla like tax credits do you need to really every year?

Crawling Tue 11-Dec-12 14:56:35

Those cerebral forms are a god send I thought dd didn't have much nighttime needs but after reading them I realised she does have quite a few

Crawling Sun 09-Dec-12 20:25:46

Thanks both my dp will download the cerebral guide tomorrow (I'm on phone) these forms sound so stressful.

Lougle Sun 09-Dec-12 20:09:11

Cerebra Guide to DLA

You need to think of everything you do, throughout the day, from the moment she wakes in the morning, to the moment she sleeps at night (for daytime needs), and the moment she goes to sleep until the moment daytime starts (for night time needs).

What do you have to do? - Think carefully. Include things like reassuring DD before you put each piece of clothing on, or restraining her, or singing to her, or whatever. Include things like particular order, particular items, particular changes you have to make.

Why do you have to do it? What happpens if you don't do it?

How does this differ from other children of her age?

PolterGoose Sun 09-Dec-12 15:11:30

Hi crawling, I don't know what your dd's dx and/needs are, but I found the Cerebra DLA guide absolutely indispensable. It is also worth trying to get a list of stuff that a child without SNs would be able to do. DLA is very much about all the extra stuff that you wouldn't need to do with a typical child so it is really useful to draw comparisons with typical development. Most parenting books have a rough guide to developmental milestones etc. MN probably has something on the site somewhere.

My biggest bit if advice for doing the form is to set aside a day preferably when you can do it uninterrupted. Once you've completed it take a copy and then put the copy in a sealed envelope and don't look at it until you absolutely have to (eg for an appeal or review). It is really heartbreaking writing page after page of your child's difficulties so maybe plan something nice and treaty for afterwards. Best wishes thanks

Crawling Sun 09-Dec-12 14:11:25

I am waiting to receive the forms but while Im waiting I plan on writing down dd extra care needs like it requires two people to brush her teeth could you help me compose a list of things I need to watch over the next few days to record dds needs plase?

Teeth brushing
Eating
drinking
toilet
and any dangerous habbits which require her to not be left alone.

Any suggestions of what else I should include greatly appreciated.

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