I am waiting to receive the forms but while Im waiting I plan on writing down dd extra care needs like it requires two people to brush her teeth could you help me compose a list of things I need to watch over the next few days to record dds needs plase?
Teeth brushing Eating drinking toilet and any dangerous habbits which require her to not be left alone.
Any suggestions of what else I should include greatly appreciated.
Hi crawling, I don't know what your dd's dx and/needs are, but I found the Cerebra DLA guide absolutely indispensable. It is also worth trying to get a list of stuff that a child without SNs would be able to do. DLA is very much about all the extra stuff that you wouldn't need to do with a typical child so it is really useful to draw comparisons with typical development. Most parenting books have a rough guide to developmental milestones etc. MN probably has something on the site somewhere.
My biggest bit if advice for doing the form is to set aside a day preferably when you can do it uninterrupted. Once you've completed it take a copy and then put the copy in a sealed envelope and don't look at it until you absolutely have to (eg for an appeal or review). It is really heartbreaking writing page after page of your child's difficulties so maybe plan something nice and treaty for afterwards. Best wishes
You need to think of everything you do, throughout the day, from the moment she wakes in the morning, to the moment she sleeps at night (for daytime needs), and the moment she goes to sleep until the moment daytime starts (for night time needs).
What do you have to do? - Think carefully. Include things like reassuring DD before you put each piece of clothing on, or restraining her, or singing to her, or whatever. Include things like particular order, particular items, particular changes you have to make.
Why do you have to do it? What happpens if you don't do it?
How does this differ from other children of her age?
I would try and get some professional help filling it in. Is your daughter under anyone (like social services, portage -sorry don't know how she is, a special needs school or nursery, a specialist health visitor?)
do you need to check on her during the night? does she needs 24 hour supervision?
all is important to put down, stripping beds if wet/smeared important too
My dd is severely/has epilepsy etc but sleeps rather well whilst on school term, but it still doesn't take the need away for me to check or change her in the night, strip the bed and bathe her, stay with her if she has had a seizure, be alert the whole night if she needs me. Do you know what I mean? It has to be the worst day noted on the form
I see owl lady thank you its so easy to forget how much you actually do. I am going to fill the form inMonday at the citizens advice my portage worker said they usually help out with that but I have been thinking about each question and sticking post it notes on to remind me.
The length of award varies, so far I have completed my dd's forms at 3, at nearly 5 and at nearly 11. Her new award runs out when she's 16.
Remember there is no room for anything positive on the forms. You need to use powerful language to make a stark comparison between your child and NT children the same age. I always give a blow by blow account of all her care needs.
Do you have any other children? I find it helps to compare my dd with her younger NT siblings, who both have better danger awareness than she does (and one is 3!) and how the 8 year old is independent with her self help skills while dd1 (11) still needs a lot of help to eat, to get dressed.
When outside, think about whether she needs restraint (restraint can be just a hand on her arm for example).