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social communication language disorder

(31 Posts)
Gorta Wed 14-Nov-12 17:21:06

My dd Speech and language therapist told me yesterday this is what my dd is diagnosed with. Previously it was described as Semantic Pragmatic language disorder. I read an excellent article by Margo Sharp called Understanding language (sorry l don't know how to link it) but this article described my dd to a tee. I definately think she dips her toe in the Asd specrum. Like the experiences of some of the mums here. She is the perfect child at school and then explodes when she comes home. She has also been diagnosed with Dyspraxia and SPD. I have been told by an OT she has autistic traits and the private Slt thinks she is definately on the spectrum. She is receiving ongoing slt and ot. She is very passive and struggles socially. I would be really interested to hear your experiences of this condition. She is nearly 9. Her brother has an SLI and was diagnosed with dyspraxia this week. He is 5. The OT used an assessment tool called the sensory integration praxis test. My dd was assessed 4 years ago using the movement ABC. Has anyone any experience of this test? he definately has dyspraxia. Im not questioning the results.
Thanks

Gorta Sun 18-Nov-12 23:16:42

Thanks.
I am going to check out bringing her to Joanne Douglas she has a clinic in Northern Ireland. She worked with Lorna Wing. I want her to be seen by someone specialised. Has anyone any experience of this professional?

ArthurPewty Mon 19-Nov-12 08:11:28

not personally.

Gorta Mon 19-Nov-12 17:19:00

Thank you for all the advice. I made an appointment today with Joanne Douglas she runs the spectrum clinic in northern ireland. She worked with Lorna Wing. She specialises in Autism and if my dd is diagnosed it will be recognised by the services here.

Gorta Mon 19-Nov-12 17:20:46

Sorry I have posted twice!! I didn't notice the second page.

Gorta Thu 07-Feb-13 17:48:56

Hi,

I just wanted to give an update. My dd has been diagnosed with Aspergers. I brought her up north to Joanne Douglas. She specialises in autism and is very experienced. I am very upset but she has gotten loads of intervention up to now that has really helped her. It is difficult to believe that all the different professionals that have assessed her and worked with her since she was 18 months old did not recognise it. I had her assessed by public Asd services at 3.5 and I was sent home with she's fine. Her services will be increased and I will be listened to. My ds is more than likely As as well. I will cross that bridge when he leaves the language unit. I am very grateful to all of you that replied as it certainly put me on the right path.

Ineedmorepatience Thu 07-Feb-13 18:01:39

Am really glad for you gorta and sad at the same time. No child should have to wait so long for a diagnosis to be made. Imagine if you hadnt been so tenacious.

I gave up trying to get Dd1 diagnosed 15 yrs ago when I couldnt bear my parenting being judged anymore.

Dd3 was diagnosed with ASD on her 9th birthday after 3.5 yrs of assessments and fighting by me.I am even more certain than ever that Dd1 also has ASD and probably ADHD aswell.

Well done for not giving up, there are still alot of proffs out there who are not getting our girls sad

Be kind to yourself and good lucksmile

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