Here some suggested organisations that offer expert advice on SN.

Draft SEN legislation - worrying!

(318 Posts)
AgnesDiPesto Tue 02-Oct-12 20:22:18

SOSSEN views on draft legislation here

If you have views you can submit them to Ambitious About Autism by 11 October here although probably other routes too.

SOSSEN urging everyone to complain to their MP about removing parental rights.

norfolkhiboux Wed 06-Feb-13 10:20:31

sorry, just wanted to share the experience that as parents we had a month ago at Tribunal and high light for other mums and dads a usefull talk that may have helped them, will remember that posts are just meant to slag people off and share bad experinces and negative comments.

inappropriatelyemployed Tue 05-Feb-13 20:25:44

We'll let you off!

flowwithit Tue 05-Feb-13 20:19:47

Yes I did read that on earlier posts but I'm now on IPSEA looking at it properly as I didn't have time earlier. Sorry if I have confused anyone by not doing my homework properly smile

inappropriatelyemployed Tue 05-Feb-13 20:04:14

Sorry, not sure where the average IQ bit is in the bill? Isn't that something circulated earlier on in this discussion.

flowwithit Tue 05-Feb-13 19:31:54

This is really bad news! My Ds has average IQ too but what good is that if you can't write or spell well and if you have problems with working memory and organising yourself as well as understanding instructions. If you find it difficult to cope in a busy school because of sensory problems and poor social communication and you then suffer from anxiety and panic attacks! What good is average IQ then? How can they say you don't need support. I will also be sending the template letter to MP.

inappropriatelyemployed Tue 05-Feb-13 18:05:07

I have posted a link to the new bill under another thread but as this one has been resurrected, I shall post it here.

Is this yet another SEN Legal advert? Sorry if I sound suspicious but it is very strange to drag up a very old thread to flag up Melissa Nettleton's talk

norfolkhiboux Tue 05-Feb-13 16:00:30

Message deleted by Mumsnet for breaking our Talk Guidelines. Replies may also be deleted.

Yes, final evidence.

pinkorkid Fri 02-Nov-12 19:37:08

Says it is the final evidence gathering session so looks like no input from ipsea or any further interested parties, unless I've misread it.

inappropriatelyemployed Fri 02-Nov-12 17:27:33

Thanks TimeTraveller. I am at the House on Wednesday so, frustratingly, will miss this or I would have popped along.

It is annoying that there is no witness from IPSEA listed yet. Perhaps it is planned for a later session.

I was astonished at the last session that county directors of education were saying things like 'we tell parents we don't have the resources to issue statements'. There was no acknowledgement that this is, of course, entirely unlawful.

But MPs aren't experts and there was no one else there to pick up on it - not even the deputy director of the Council for Disabled Children.

TheTimeTravellersWife Fri 02-Nov-12 14:00:01

Thought you may like to know that the Education Select Committee are hearing further evidence on Tuesday, 6th November 2012.
www.parliament.uk/business/committees/committees-a-z/commons-select/education-committee/news/sen-oral-evidence-session-2/

Still no representative from IPSEA or similar though.

norfolkhiboux Thu 25-Oct-12 15:01:29

group not a bad idea.
I picked up a spare ticket to the Westminster Briefing on Tuesday, there was an LA Rep from Bromley Pathfinder telling the mainly LA audiance that all parents currently on a statement could not expect a new EHC plan. So not everyone who has a statement now will have an equivallant under the new system. Pretty much what IPSEA and MN are saying. Its not great for parents. lunnch wasn't great , but suppose a freebie.

ArthurPewty Wed 24-Oct-12 07:59:00

Message withdrawn at poster's request.

inappropriatelyemployed Tue 23-Oct-12 23:34:40

Would it be ok to suggest people PM me if interested ( if you haven't already)? I have some ideas but would love to chat them through in an email group or email exchange.

HotheadPaisan Tue 23-Oct-12 23:00:17
AgnesDiPesto Tue 23-Oct-12 21:54:05

Yes well maybe I will start next week grin. Then again I can channel my inner rage into something constructive.

ArthurPewty Tue 23-Oct-12 21:52:06

Message withdrawn at poster's request.

Yes. That's what I need. Someone to tell me what to do, what to research or what to compile.

Ds is safe (for now) and I've taken up a bit of cleaning and baking and we have a family life at last but I'm still so bloody cross about what is happening.

Agnes, haven't you got an especially trying week?

AgnesDiPesto Tue 23-Oct-12 21:42:08

I know nothing about lobbying, but really want to do this. Just need someone to take charge and tell me how / give me a job to do...AE??? We all constantly have other competing priorities but there must be a way of sharing the work around.

Okay. Need a reminder for the yahoo group. Is it the one the bloke set up?

inappropriatelyemployed Tue 23-Oct-12 21:22:25

I think it is near nigh impossible to run a campaign through a mumsnet thread!Organising things by committee is tricky, organising things through a website even more so I think.

I think we should organise an email group (there is a yahoo one set up) and just get to work there identifying key objectives.

We can then use google docs or post here to allow those who want to get involved to join us.

I do have experience lobbying. I am a human rights lawyer. I was working for the House of Commons until recently. I am happy to start the ball rolling.

Delalakis Tue 23-Oct-12 17:54:41

I think it would be better to improve the existing legislation than to go for this bill, because passing a new Act is fairly pointless since they took out anything useful in terms of enforceable social care provision. If we keep the existing provisions there would be less risk of losing the important current safeguards such as the requirement to specify and detail support, and for the Code of Practice to be properly scrutinised by Parliament before it is issued.

HotheadPaisan Tue 23-Oct-12 15:53:38

Thanks Time, will watch it later.

Two things stand out to me: the proposed changes will mean even more time spent in litigation but the alternative is nothing changes. 0-25 is good, education DPs even better.

And without LA accountability and penalties nothing changes anyway.

Is time better spent arguing for these improvements to be in existing legislation?

My concern is that those with the ear of the DfE will lobby for the whole thing to be dropped for the fear of the system worsening which would be a shame.

We did try something once before, but I had to pull out because my DF was diagnosed as terminally ill, the LA removed all tribunal won provision at the annual review, I was reported to the benefits office for fraud, and we were moving house. Yes March 2011 I'm talking about YOU!!!!!

But with the exception of a few little blips, like having a baby, moving house again, negotiating another appeal with a new LA etc. things are hugely improved. However, I still have the motivating anger necessary. I'll need direction though, because at the moment, it all just seems so HUGE a problem that I wouldn't know where to start.

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