Here some suggested organisations that offer expert advice on SN.
NEW Tinsley house support thread -part 2!!(977 Posts)
Thought I should start a new thread as we were nearing 1000 posts!
Indigo is no longer posting as you all know, but I think it would be such a shame for the support thread to go too.
I know I find reading about all the ups and downs we all experience very helpful and it's so great to hear all the progress
We go back to TH next month and can't wait. So interested to see of the tracking programme has worked. I think ds1s reading speed has improved and he is now reading proper chapter books!
He continues to show less anxiety, OCD behaviour and stress.
He is eating better and is generally a much happier chap.
Looking forward to hearing from you all over the next few weeks/months...X
Wow Ruggles, quick decision but sounds a good one. I hope all goes well with the transition.
Badvoc, hope all goes well with your mum tomorrow. Will be thinking of you.
I have had a look at lumosity. It's really hard! Thought it would be good to get the heads up on it before ds has to do it (if we can crack
remember the tracking!)
It is....really, really hard!
Can't believe Tom scored so high in his first go
Tell him he did better than me!
Can't believe how hard I found it!!
(Glad it's not just me)
Well done Tom, that's fantastic! Good luck for tom Badvoc - have my fingers and toes crossed for you. Its been raining here all day and I'm fed up with it - cold, wet rain - IYKWIM.
Thank you x
It's been raining here non stop too
And Ireland lost in the 6 nations
So all in all a rubbish day!
Badvoc- so pleased that the op for your Mum is going ahead tomorrow. Will be thinking of you and sending positive vibes. So pleased that Tom continues to do so well.
Daft- Glad to hear that you are back on the programme properly now and fantastic news about school!
Ruggles- Sure the nursery move will be a good thing. Brushing sounds interesting but I am wary of you doing too much. I have lots of things that I intend to try if at the end of TH I am not happy and though sorely tempted to do more now I have been advised by so many people I trust ( Robin, Indigo and others) not too. Just remember your son is so young and you have so much time to fix his brain.
Had parents evening this week. DD ( year 4) has been moved into top set English and her maths has improved. Teacher still moaned about her talking, staring out of the window and general inattentiveness, but on the whole I was pleased. DS continues to be " borderline" for IEP and so not receiving any help. Probably could get extra help if I kicked up a fuss but DS says that he doesnt want help as others would make fun at him.
We are 6 months into the programme and Robin said I could expect things to start getting better at school about now. Fingers crossed it does as DS sad that he cant read very well. ( not helped by kid in class bragging that he was on p296 of Harry Potter!)
Think DS has finally cracked teeth ( after 6 months!) and doing well with Wheres Wally and Tracking. I estimate that between my 2 kids we will do Wally for about a year!
On the whole I am happy with progress but still have the odd day ( like today) when I wish it would all go away.
BP..that sounds great! I know what you mean though.
I have a lot on ATM - as you all know - and on days like today I don't really feel like doing hemi opk or lumosity tbh.
It will be very interesting what school say after the next lot of assessment at the beginning of march.
He will have been doing both lumosity and hemi opk for 4 weeks by then so who knows?
Beautifulpossum. It sounds like you are doing really well. Well done DD for moving into the top set for English! GGrrr about DS friend and his Harry Potter - there is always one! Do your DCs love Where's Wally? I know exactly what you mean about days when you wish it would all go away, sometimes it just makes me feel sad and fed up . I try to use those feelings to push me forwards, as those are the things I want to help my DC with, but it doesn't always work...
I worry about doing too much too, but just couldn't help myself with the brushing... I haven't told Robin about it yet (will do at next review) and really hope it doesn't hold us back. DS loves it and is really keen at the mo, but if he stops being keen or doesn't want to do it, I'll stop the brushing until after TH.
Badvoc Good luck for today - I hope it all goes really well and that your Mum makes a good recovery.
We have snow!
Quite a bit too...
Afaik mum is first on the list this morning so not too long to wait now.
Good luck to your mum, Badvoc. X
I've been watching this thread for a long time now...
I rang robin this morning,
He seems certain he can help ds...I havent made any appointments just yet,as it's a very long drive away I bet 10/12hr round trip,so need to plan..
Would you say he would help with ds?
He's 8 and a half,has adhd,aspergers,very high anxiety,and tics..he's very tempermental and angry,wont do any thing he's asked,swears far to much at us and at teachers,which worries me when I read about the stairs and teeth...The battle alone with the teeth brushing is bad,he will also throw his plate across the floor if the food is not want he wants! we are at our wits end and want to try TH.
but I would really appreciate what you guys make of my ds and if TH would help..and how did you guys get pass the food/stairs etc issues??
I really don't need any more stress,but if its going to work then i'll go for it and get my appointments booked.
Well, after your 1st or 2nd appt you could do Skype appts which is what I do as we live a fair distance away too.
Obviously I can't tell you if it will help your ds but I can tell you that robin has had a lot of success with kids with the issues your son has.
I will not lie and say its always easy, it isn't. My son was 8 when we started and although did not have any behavioural issues, did have crippling anxiety, some OCD treats, asd traits and severe dyslexia.
We are now a year down the line and life is so much better
Ds1 is finally working to his potential at school and he is generally a much happier and healthier boy.
Robin will be able to advise on how to deal with difficult times - he is only a phone call or e mail away.
The thing I have found hardest has been the commitment needed to doing the exercises/diet/supplements every day. And I will admit there have been times when we have fallen off the wagon so the speak (Xmas, summer holidays etc)
BUT due to ds1s progress we are very committed to continuing the TH programme.
The supplement and diet side of things was not as hard as I thought it would be tbh. The exercises can seem tedious but the results can be amazing which of course gives you a real impetus to continue.
I guess what I am saying is go for it, but dont be too hard on yourselves If you have bad days, and understand its nit a quick fix x
Also...myself and a couple of others on this thread have done weekend trips to see robin which might make things easier?
Thank you Bavoc..
The reason we haven't done it so far is because I know its not going to be easy!!
When I spoke to Robin he said most kids will be compliant :/
ooohhh...I couldn't bring myself to say..you haven't met mine yet!! ;)
It's that end of things im worried about,getting ds to comply..
as i said i dont need more stress or anger in the house,
Robin did say we could skype,which is great.he also told me we are looking at 16mnths plus to do it all...
When did you begin to see an improvement?
And did your dc 'kick off' when they had to eat new food,exercises etc?
No, he didn't really.
He wasn't happy though - far from it!
Especially about the diet side of things but he does now have a fruit puree each day (he will not/cannot eat whole fruit) and also has peas and sweet corn as veg with dinner. We have cut down on carbs and he has a hot protein breakfast each morning.
He has never really bothered about taking the supplements, but we did switch the mag and zinc to tablets rather than liquid.
The veg EPA chewables are good and you can set up a subscription on amazon for them so they get sent automatically every month so you never run out!
A good tip is to eat the same stuff...don't go on at your dc about junk food and then eat a Huge slab of cake for example!
Dh and I have both lost weight by cutting down on carbs too...
I would say we saw improvements with the dyslexia/school side of things within 3-4 months.
Also in sleeping, anxiety and confidence.
I don't think is a hard and fast rule, though.
Some may see huge improvement very quickly, for others it might be a slow drip drip of change.
My son is doing really well and we are very happy we went to robin.
I just wish I had done it sooner!
Mum has had her op and is now back on the ward.
Thank you all for your kind thoughts x
Now just need to get the roof on the conservatory tomorrow!
And tomorrow is pancake day! Yum yum
Can I ask you something else please!
Do you have to take you dc off all meds?
You would need to ask robin tbh.
Ds wasn't on any, other than asthma meds which he has not needed since we started TH.
What meds is he on?
Don't know what concerts is, sorry, but ds was on 3mg melatonin for 3 months whilst doing TH back at the beginning.
No problems with that.
...and he hasn't had any melatonin since...
Hi Crazy I don't know whether Robin will be able to help you, but I think he'll give you a reasonable idea of whether he feels he can or can't. I was impressed with his straight talking and would def recommend visiting him. It's the main reason I wanted our DS to see him, rather than just starting with the book - I was worried that the TH wouldn't work for him and needed to start with an assessment.
Here's some of my thoughts and experiences. DS is 4, so not sure how much will be the same for you with an older boy, but I was so surprised with DS and what he can / will do - I underestimated him!
I was worried about how easy we would find it to do at home - DS is 4 and wilful! He was becoming very bossy and getting stuck in his ways - fussy about food, difficult to manage, angry and always doing the opposite of what we wanted. Robin made a real impact on him, plus we talked quite a bit about brain food and food that could help with things at pre-school etc. The food wasn't difficult at all - he quickly cottoned onto the menu idea and kept asking what was on the list for lunch etc. He thinks that Robin tells us what to eat. He helps cook lots of things, which is especially good with new food and, just as Robin said, the more he gets into the programme, the more open he is to new things. DD aged 2 is not as easy, but I am hoping that she will get there.
The exercises are good fun and we do them all together - not so much now, but at the beginning. DH came to the appointment too and DS loved doing the same exercises as him.
The supplements are ok too - the fish oils are chewable and taste of orange. I dole them out for good behaviour too and we call them fishy sweets. The other supplements are ok to drink. I tried him on probiotics but he isn't keen on swallowing tablets - the only way he will have them is if they are broken up and stirred into drinks.
We've been on the programme for 3 months and we are so pleased with the results so far - DS is much happier and easier to manage. We are still having some bad days, but they are nothing like as bad as they used to be. In fact they are a reminder of how far we've come. He is sleeping better, calmer, more obedient, has started singing and drawing, he's stopped hitting as much, has become more open to new things and is able to concentrate on things slightly better than before. His temper still flares up and he finds it very difficult to express himself when he's upset - he just sits down and cries...
I think its def worth a visit and a weekend sounds like a good way to do it. There is a motor museum near by (good treat afterwards) and it's a nice area to visit.
I know what you mean about not wanting any more anger or stress in the house. It is a small daily effort and you have to keep it up. I asked Robin why it doesn't work for some people and he said you have to do it, day-in, day-out. It doesn't take long but at first it was a pain when everyone is tired or its late. We now see it as being like brushing our teeth - just part of our routine.
Sorry for such a long ramble.
Badvoc Brilliant news about your Mum, what a relief it must be.
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