Here some suggested organisations that offer expert advice on SN.
NEW Tinsley house support thread -part 2!!(977 Posts)
Thought I should start a new thread as we were nearing 1000 posts!
Indigo is no longer posting as you all know, but I think it would be such a shame for the support thread to go too.
I know I find reading about all the ups and downs we all experience very helpful and it's so great to hear all the progress
We go back to TH next month and can't wait. So interested to see of the tracking programme has worked. I think ds1s reading speed has improved and he is now reading proper chapter books!
He continues to show less anxiety, OCD behaviour and stress.
He is eating better and is generally a much happier chap.
Looking forward to hearing from you all over the next few weeks/months...X
Ruggles, hope the visit is good tomorrow. Let us know.
Badvoc, hope you manage to extricate yourself!
Great day today. Ds had his offer from his school. Bucks Fizz all round with tea (non-alcoholic, sugar and e-number free, of course!)
Ds' lovely teacher has come through with his IEP tonight too. It's sooo much better than the SENCO's efforts!
Great news daft
Very pleased for you and ds x
Daft, that is fantastic news, congratulations! Had a sneaky suspicion it would be good news after the first offer. Is this the one he really wants. Whey hey for brilliant teacher too.
Just been to the pub for a few drinks with some lovely friends and we didn't talk about our children at all - instead we talked about our husbands!
I know we've been talking about a summer meet up, but what about one at Easter? Then we can do another in the summer ??
Easter is ok,with me, up way up here in the wilds we have odd holidays...the dc break up for Easter on 22nd march and break up today for half term!
Toms Skype appt went well,,told robin about all he certificates, progress, growth spurt etc
He told Tom he was very proud of him
As expected he has to stay in hemi opk (that didn't go Down well!) and lumosity games.
Woke up feeling rubbish...swollen glands, sore throat, headache...just in time for half term!
Oh, and one of the new glass roof panels broke so there is glass everywhere...but other than that it looks lovely
We could do Easter too. Ours is 28th march for 3 weeks. Daft - brilliant news about ds! What a relief!
I am officially a bad person!
When we took Tom out of primary there was a chance he would go back for juniors so dh and I made an appt with the new HT (jan 2010)
God, it was awful! She was a vile woman. i came away very angry and upset and we both said that there was no way Tom was ever going there...
I don't know why - boredom I guess - but I looked up this school yesterday and saw that they had an ofsted inspection in dec.
They have gone - under this woman's headship in 3 years - from "outstanding" to "satisfactory" and 30% fewer children now get level 4s in their SATS.
Felt very smug and very happy That my gut feeling was was right about her and that we didn't send Tom there...and then I thought of all the poor kids and parents
Now if the awful primary gets satisfactory too that will be consolation for me too...proof of how bad it was/is iyswim? People were so shocked I took him out...couldn't understand why etc...
Hiya, I'm just popping on to this thread as asking for advice and about your experiences etc. Did any of you have your child screened for dyslexia at school as I have waited over a year for this test only to be told he was in the wrong category I think the results showed he a had a few dyslexia traits but not enough to suggest he was dyslexic or likely to be. It did however suggest slow processing and very, very poor memory skills. I am at a loss now tbh we are now going back down the SALT route as he did have a speech and language delay. They have reassured me the tests are very accurate :-/
Check out the tinsley house website And get the book " is that my child?" by robin pauc from amazon (ist about £4) I would lend you my copy but its on my kindle!
There is much you can do to help your son.
But please, if you take anything aWay from this thread, please don't rely on the school to do it!
Better still...phone robin for a chat.
He is a very nice chap
My son is now nearly 10.
2 years ago he was level 1 for everything his writing was illegible and he really struggles with reading.
He is now level 3s across the board and tbh probably a level 4 for numeracy.
Don't despair x
My ds (11) does not have dyslexia. His class teacher originally picked up problems with processing in class. Further assessments showed poor working memory, perceptual difficulties and he has poor organisation and probably dyspraxia (and has since been diagnosed with epilepsy).
It probably depends on your dcs school, and how severe they perceive the problem to be, as to how much extra input they will get.
My ds is not in state school. I suspect his issues would not have been picked up if he was (unless he had become disruptive). He has made progress during the past year that we have been doing TH. He has also had extra support at school. We will never know whether it is one particular thing we are doing that has started to make a difference, or the combination.
Perhaps buy the book (I got it second hand on Amazon) and start the supplements and diet. There are also some simple first exercises you could do if you don't want to take the plunge to visiting Robin yet.
Thankyou all for your kind words. We celebrated with Bucks Fizz last night - non-alcoholic, e-number and sugar free, of course.
<then I had wine>
The first part of my message is obviously to notinthemood
Hello, please can I join? I've posted a few times under other names, about my DS. He is 3 and about to undergo assessment for autism. The initial assessment is in a couple of weeks.
We're going to TH in 2 weeks. I'm a bit nervous though Robin was very nice when I spoke to him on the phone. I'm hoping that he can help but worrying that he'll say he can't. We've had DS on omegas since November and we've tried to change his diet though with a fussy eating 3yo, that's not always easy!
Anyway, only wanted to say hi.
Hello and welcome looklikerain
I dont know if robin can help your son. All I can is that I wish I had sought help for my son at age 3.
Robin is very good with young children - shame about the dodgy jokes
Do let us know how you get on and if there are any questions we can answer we will try!
If you have nit already done so would really recommend reading his book "is that my child?" And "the brain food plan"
Good luck x
Hi Badvoc. If he can help us then I'll put up with as many bad jokes as he's got! Anyway, DH is an expert at them so I think I'm desensitised! I had a good chat with Robin on the phone, and he seemed to think it was worth a visit but I think I just don't want to get my hopes up too much. I've read "is that my child" and am working my way through "the brain food plan"
when I get time to read which seems like never
Well, you have done all the prep before the visit which is good
I know that I and others in this thread have seen major improvements in our dc since following the TH programme.
Interestingly, my ds did a course if rrt (retained reflex therapy) before Th and it's amazing how some of the exercises overlap/are similar. And ds came n in leaps and bounds after rrt.
It's powerful stuff!
badvoc I hope your Mum is well.
Hope everyone is well. I don't post too often and do have trouble remembering who everyone is, but we went to see Robin for our initial visit in January.
We are plodding along with things. Doing spinning and stairs. We manage to do them everyday, but I wouldn't say that we are doing it as many times a day as we should. We usually manage two and often three.
DD is doing OK. We have got her toileting under control and whilst she still does have accidents she is going to the potty by herself. This is amazing believe me. Before Christmas she was just wetting herself wherever she was, so I am really pleased with this.
She is full of beans, but she had a visit from the OT in nursery yesterday and whilst she was saying DD was delightful she was very concerned about her play skills and the fact that she really doesn't engage with anything, but flits around the nursery. More worrying for her was the fact that nursery had not noticed this and were concentrating on her speech.
I also chased up her statement and the referral hasn't been made. Instead a referral has been made to the ed psych to see her in nursery and they should hopefully make the referral.
Not feeling hugely positive at the moment and not sure what changes we are 'supposed' to be seeing in DD after all the spinning and stairs.
Thanks for the good wishes. Mum has her op on Monday. Fingers crossed!
What great news wrt toileting! you must be thrilled.
Ime pre schools and nurseries are pretty poor at picking up sen/sn. Either that or tell parents they are worrying over nothing
A referral is a good thing if it gets your dd the provision she needs.
Thanks for updating us.
Wrt what you should be seeing...i don't know.
The best thing to do is ask robin at your next appt.
He will be able to tell you which bits of the brain are being rejigged!
My son is currently doing hemi opk (a computer programme) and it's the first thing from the TH programme he has really struggled with/disliked.
So he has to continue - much to his disgust
I can't see any difference in him yet since he started the hemi opk tbh, but we will see as its parents evening in a couple of weeks so....who knows?
I will keep you all updated and let you know what the teachers say.
What is so lovely is that robin is as thrilled as we are with my sons progress. He told Tom last night that he was very proud of him Tom was very happy
Hi Prince, I find it difficult to remember who has dcs of what age and stage on TH on here too!
Trying to think back to a year ago - I think ds' behaviour calmed a lot during the early stages of TH. He was certainly a lot less 'bouncy' - used to be like a Duracell battery, always on the go, jumping up and down when on the wii.
Welcome Lookslikerain I was really worried that Robin would say that he couldn't help us or that things wouldn't work for us while they did for everyone else. I think the main thing is that you can rely on him to be quite straight about things.
Notinthemood - my dc are too young to be assessed, but know from my own experiences at school how hit and miss dyslexia testing is
Daft - that is fantastic news, you must be so pleased! Hope you had a very thorough celebration! In fact, I hope you are still celebrating!
Badvoc - how are you feeling? Have you got snow?
Prince - well done on the potty training - that is such an achievement. Nursery aren't great at picking up these things. Mine told me not to worry for ages and then said they have been 'having concerns for a while' Even now, they are still quite vague. It's really difficult with your first as you don't know what to expect. I think its great that you are doing things - TH and following up for a referral. Our 4yo is very good with the new diet, but our dd aged 2.5 isn't keen - she's good at turning her nose up. I just hope that eventually she will get it.
We went to see our new school yesterday and its all change! DS is going to start at their nursery after half term, so won't go back to his other one! All a bit of a rush, but they gave us the opportunity to start after half term and we've taken it. Given that we are moving, getting him settled now into the nursery should make the move to Reception easier in September. We talked about the transition and DS dislike of new things but didn't say that we'd been to see Robin and were quite vague... Wish we had been more honest as new Head called old Head for a chat. She then called me again and wants to see DS's reports .... We are going for two introduction sessions next week and DS is already anxious about it - he woke up crying twice last night and peed in his room this afternoon. He hasn't peed in his room since we started TH in Nov and hasn't had any bad dreams for 9 weeks.... I know that we have to push through it, but it makes me feel anxious too!
I am ok. Worried about the op on Monday obv but it will soon be over. Have a funeral to go to on Tuesday too
We are forecast snow tomorrow which is quite worrying as the conservatory roof isn't finished! oh dear.
Wow...all change indeed! Your ds is bound to be anxious...when Tom started his new school he did a phased return..the first week he did 3 half days, the first with me there, then 2 full days but coming home for lunch.
Then normal attendance.
Obv he is older than your ds, but it's only natural that he feels anxious...you too of course!
After toms first morning (with me in attendance) I had a migraine! I was soooo stressed...
Could you get a book about starting a new school? There must be loads...
We've got Topsy and Tim and the nice man from Amazon (who seems to be our most frequent visitor) delivered the Orchard House School Day / Clock puzzle today. We've also been looking at the school magazine and cutting out pictures 'we like'. This last bit is a bit worrying as it involves lots of things which won't happen for a couple of years, but we have told him that... Have promised Pizza Express on the way home on Wed.
It all sounds full on for you at the mo.. Hope the snow doesn't affect Mon. I know you're going off-line on Tues, but please keep us posted.
All sounds great to me!
Dh jokes that if I stopped buying from amazon their profits would go down by 30%
Daft has my e mail and will keep you posted re Tom.
Parents evening had been pushed back to march so will update you then.
Tom has sorted the lumosity games (which he enjoyed)
He scored Nearly 700 for memory!
I couldn't even do the spatial awareness one!
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