Here some suggested organisations that offer expert advice on SN.
Sensory Integration Therapy through NHS -Do you receive it?(20 Posts)
This is a very old thread that you've dragged up, sensoryproject.
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It's been brought to my attention that my posts on this thread were misleading so I would like to make my earlier posts on here clear for anyone who may be researching Therapy in Praxis as they may not come accross as I intended. As I clearly stated above they have got a good reputation and during our visit I got a great impression of them and their service. We decided not to use them due to many factors (like location etc). The hours that were requested for my daughter to attend weren't therapy before the assessment as I mistakenly wrote but were consecutive [intensive] sessions whilst they worked out the functions and origins of her profile and established baselines.
If a need has been identified and your borough cannot provide it, your borough can pay another borough who can provide it.
What's confused me because I approached them due to hearing good things about and I felt relieved and excited after our initial visit there for a chat. My DD is affected quite severely from what they said. She has been described as complex by both CAMHS and OT. She had the m-abc assessment and came out on the 9th centile overall. The CAMHS worker did a sensory profile and said SPD. On waiting list for ADOS as suspect Aspergers and appointment with paediatrician in September to rule out genetic causes as has markers that could indicate Prader Willi. She is nearly 13 and apart from academic ability isn't really maturing and has to have more care and supervision than my 4 year old. We have no diagnosis as yet as for years we were fobbed off so gave up trying and persuaded ourselves she'd grow out of any issues. She is in mainstream secondary but I think she is too vulnerable to be there.
No, we started going in June 2007, and paid £500 for a two hour assessment, and then went weekly for about a year, then every two weeks.
We did double sessions every time at cost of £110.
What exactly is the background on dd? There must be a specific reason for them to want to do such intensive therapy at the start. I have to say I have always trusted their opinion. I know it sounds ridiculously expensive, especially with travel costs and overnight stays. We used to travel almost 2 hours each way. (200 miles)
Tink123, did they insist of a minimum of 25 hours up to 50 hours of input before doing an assessment? They also wanted us to do it over this week and next! I expected the prices just not all in one go and not that a 2 hour assessment would be "clinically unsafe" (their words) so had to wait until after their intensive input for an assessment. If I knew it was going to make a difference I'd jump at it but I suspect that the 50 hours would have just been the beginning! It was also going to cost £100 per night for accommodation on top due to the distance and me not driving.
Indigobell, that looks really interesting! Do you travel to Chester for the assessments? If you don't mind could you PM me the prices?
Triggles, I think that's what I'm gonna be doing on Friday ha ha!!
We have been going to Therapy in Praxis for four years with dd who is 8yrs and she has made unbelievable progress, but it does come at a price.
The NHS needs to provide more sensory therapy. It can literally change a child's life.
Good luck with finding some help
What about trying INPP? It's slightly different to SIT, but a lot of us here have had great success with it to cure sensory problems....
It's certainly cheaper than what you've been quoted......
We had to fill out the sensory questionnaire, and OT went on in the first appointment about how he had a lot of sensory issues. But we've yet to hear what can be done.... there's a home visit next week, I've already got a huge list of questions. May have to lock the door and tell her she can't leave til I've got all my answers. LOL
we have seen big improvements at home over the holidays, just hope it carrys on when back at school.
His anxiety levels are so much less.
DS2'S OT & Psychologist work v closely together, does your dd have psychology input.
That's great to hear, anonandlikeit, I definately want my daughter to receive therapy and I am prepared to pay for it if needs be. I'm glad to hear that it can be effective because she needs something to be, bless her.
That is who we went to see who are insisting on therapy before an assessment x
Sorry, meant to add we are in suffolk. The NHS have always given ds2 amazing support from birth, I don't think we could ever move out of the county. I realise we are very fortunate.
I think therapy in praxis in York offer OT. Accept its not on your doorstep and we haven't used it personally as DS has few sensory issues, but a private SALT spoke highly of it. You could post a thread to see if anyone on here has been.
yes & its great. DS2 has specialist OT as part of the NHS autism service, he is currently having a block of sessions at the moment (twice a week) they plan to follow it up with a school programme when they go back.
It is helping ds2 because they are using it to help with specific issues, not sure how effective a less tailored programme would be so it does need quite detailed assesment process before therapy can start.
Thanks for your replies. I have contacted the nearest private OT that does sensory which is an hours drive away. They are insisting that my daughter issues are so bad that it would be "clinically unsafe" to do the usual 2 hour assessment with her and that they will have to deliver therapy for at least 4 to 5 hours per day over a 5 to 10 day period before they can complete an accurate assessment at a reduced cost (because of the amount of hours) of £45 per hour and £550 for assessment. I am now looking in to other options.
In Hillingdon you get 4 sessions. Which is not nearly enough, so I wouldn't make a huge effort to get 4 sessions.
Can you afford to go private? Loads of OTs offer it......
Hello sazale - glad you came over . My DS has just had his assessment, and that is in S. London. I had to push for another OT assessment as he had been signed off for making so much progress. It took nearly a year to get, but they decided that rather than a traditional assessment, he needed a sensory assessment. so a bit of both there - pushed for another assessment, they offered sensory. His first assessments just were offered. He first saw OT when 3 and was signed off at 6.
Ive complained to PALS re the lack of OT support offered to my DD and the inadequacy of the report after m-abc assessment. The head occupational therapist has rang me and is coming to see us on Friday to discuss activities etc. She says they only offer an assessment service in Rotherham. I have spoke to Sheffield OT and they would offer more input and weren't too impressed with what Rotherham had done and said if no joy to go back to them and she'll ask manager if my DD could be transferred to them. This got me thinking about which NHS trusts offer sensory integration therapy as my daughter needs sensory input which neither Rotherham or Sheffield offer. I was thinking of pushing for an out of area transfer to a NHS trust that also covers sensory issues. I'm going to bring it up on Friday.
I've looked on the Internet at it appears that Wakefield NHS offer it which is not that far from us and I thought I'd ask if anyone on here has received therapy via the NHS and if so which trust provides it? Did you have to push for it or was it offered? I hope it's not being too nosey ha ha!!
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