Reasons for and against diagnoses for dyslexia....your opinions!

(15 Posts)
dolfrog Sun 13-Apr-14 17:14:32

Hi EATmum
The problem with dyslexia is that it is a man made problem, a social construct, not a medical / clinical issue. it is only a shared symptom of mnay underlying issues/
the problem is about money and the current dyslexia industry which is more focused on the provision of various remedial programs which is th source of income for those in the dyslexia industry. Which means that they are not focused on the actual real needs of dyslexics, which vary according to the various underlying causes of the dyslesxic symptom.

You could have a look at some of the research paper collections included on the APDUK "Auditory and Visual Dyslexia" web page.

You really do need to identify the clinical issues causing these problems as these conditions can have more serious symptoms than just the dyslexic symptom.

nataliabuckler Fri 28-Mar-14 06:44:51

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

EATmum Tue 04-Feb-14 00:06:12

Realise this thread is from a while back, but would add that my DD2 was assessed for dyslexia last year but isn't dyslexic. The tests did show some different development issues that impair her reading/writing, and gave us (and her teachers) a lot of ideas about how to support her. I found myself almost sad that she wasn't dyslexic at the time - because there is so much support attached to the diagnosis, whereas something less well-defined is harder for others to accommodate. So the assessor's report has been really valuable -though clearly not cheap. And it has definitely helped me talk to her about why she finds some things hard.

Doubletroublemummy2 Mon 03-Feb-14 22:46:52

If I was asking you the question about my child, as a qualified dyslexia specialist what would you tell me?

aciddrops Fri 13-Dec-13 21:38:24

Yes, get it done. I have a diagnosis for my DSs. It helped them to realise that they were not stupid but just had a specific problem. Therefore, it improved their self esteem. I had a diagnosis in my 40s when I went back to uni as a mature student. It explained a lot about some of the problems I had at school. I had always thought I was thick - until as time went by I realised I could get a degree, a Masters and a good job. I still have doubts about myself but the assessment made me feel a lot better about my specific weaknesses.

sashh Fri 13-Dec-13 12:09:08

Get it done.

My diagnosis wasn't until my mid 30s, it makes a lot of sense being able to read about how my brain works.

picnicinthewoods Fri 13-Dec-13 12:01:24

Right, I will now have to get ready to suck up the cost of an assessment!

picnicinthewoods Fri 13-Dec-13 12:00:32

PolterGoose, you are right, 'label' is a terrible term! Also thanks for helping me think a bit more long term. There is a good chance she will go to secondary school or certainly some kind of FE, so yes I need to think of that.

Purplebaubles, thanks, it really helps to know the POV of someone (your hubbie) who is dyslexic.

purplebaubles Fri 13-Dec-13 09:22:40

Husband is dyslexic and his mother refused to acknowledge the concerns that the school had. As such, he received little support and left school with awful GCSE's, believing he was stupid.

Worse, now that he's older and would like to redo his maths/English, he is unable to get support/help/allowance made for the dyslexia because nothing was ever 'in writing' during his school time. Basically, they refuse to accept he is dyslexic because paperwork doesn't exist to say so.

PolterGoose Fri 13-Dec-13 09:19:11

My ds has a different diagnosis (labels are for suitcases and bean tins) and it's been very positive.

Even if for no other reason, the diagnosis will give your dd protection under the Equality Act. It is unlikely that as well as being her educator that you'll also be her employer so, having that diagnosis will give her some legal protection and require any employer to make reasonable adjustments. If she or you choose for her to go to a school or if she goes on into FE or HE the diagnosis will help ensure her needs are met.

picnicinthewoods Fri 13-Dec-13 08:51:08

Ok, thanks kitchendinersmile I have a tendency to over think everything!! Just was trying to weigh up whether a formal diagnosis was useful or not. It is possible a label of dyslexia would increase her confidencesmile

kitchendiner Thu 12-Dec-13 17:16:01

You could take the view that being dyslexic has advantages as well as disadvantages. Eg, out of the box thinking, creativity, imagination etc. Dyslexics are over represented in the Arts and entrepreneurship etc. You could mention all the famous dyslexics out there. I think it depends on the severity of the dyslexia and the age of the child - maybe 7 is a little young to see any positives in struggling with things that others find easy. Having the label might help your DD understand her problems and give her more confidence, knowing that she isn't dumb but that her brain is wired up a bit differently. Cannot think of anything negative other than using the label as an excuse to not try hard.

picnicinthewoods Thu 12-Dec-13 08:37:14

Sorry, diagnosis!!!

picnicinthewoods Thu 12-Dec-13 08:33:50

No thoughts for and against getting a diagnoses?

Really I guess I'm asking from the point of view of the child re having a label?

She's got all the specialist help she could need from me, so that is no reason to get a label. Are there other reasons? I'm thinking from the child's viewpoint really.

picnicinthewoods Wed 11-Dec-13 18:37:54

My daughter is 7 and a half. She shows many of the classic signs of dyslexia. I am a qualified dyslexia specialist, so technically I can diagnose her myself but think its better if someone else who is not personally connected to her does it.
She is home educated btw, so a diagnoses is not as essential as it might be in school.
I have suspected she might be dyslexic for a while, but was delaying anything formal until she was around 8 because of the leap a lot of children make between 7 and 8 years.
I think her self esteem is a little battered. I'm wondering if being able to explain her difficulties would help her.

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