Dyslexia - bottom 1%

(5 Posts)
Anthea1001 Thu 13-Sep-12 10:44:46

Hi, Just wondering if anyone else has a child diagnosed with being in the bottom 1% with Dyslexia? My 8 year old son is not progressing at at all with reading and writing, am I wasting his time? will he never be able to read anyway? Appreciate hearing from anyone who has similar experience.

CheekyGirl Thu 13-Sep-12 22:36:56

Hi - my son is 7yrs 9mths and in year 3. He was diagnosed with severe dyslexia last year, but I've known things weren't right since he was around 3. He is around a NC level 1b for reading, writing and maths but average at everything else (except sport, which he is above average at!).

My life seems to revolve around trying to co-ordinate a support package for him in school and working through synthetic phonics reading programmes with him at home.

In a nutshell, it just seems as if he has no 'natural' reading ability at all. It has never just 'clicked' and I don't think it will. He has to learn, learn and learn again every single little detail of reading. It will take a long time and lots of very hard work, but I believe (I have to believe!) that he will eventually be able to read at least enough to 'get by'!!

Niceweather Tue 18-Sep-12 21:23:45

You could try posting here: www.beingdyslexic.co.uk

My son has milder dyslexia with phonological processing on the 6th percentile which I know is very very different from having it severely. I have had lots of help from the aforementioned website.

Bex66 Fri 21-Sep-12 19:21:05

These messages are all sounding familiar - especially the not clicking bit - my DD appears to be the same at 7yrs 11mths - there just doesn't seem to be any natural ability there at all. I love books so started her early on reading so we have been going at it at home now for 3 yrs. I have been reading together with her one to one tons - ok maybe not so much over this past holiday, but still. Think I may go and get her tested. She has only peripheral vision in one of her eyes (retinal scarring) so think there may be a link there having read the previous post on optometrists. Strange thing is her handwriting is pretty good and she can certainly copy text from books - in fact she loves to do that, just hates the reading part!

kathy79 Sat 20-Oct-12 15:47:24


My son is 11 years old and has just recieved a diagnosis of profound dyslexia his working memory is 0.3% percentile and all other scores are below 1% percentile including processing, phonological awarness, writing etc etc. Although his verbal I.Q is 100 which is average for his age. My son is able to remember interesting facts from documenteries for short periods and sometimes longer. But when it comes to reading and writing, numeracy, time, sequencing etc etc. This is where his frustration hits an all time high and you can see the real problems lie. We have got our LEA to agree to access our son for a statement of special eduactional needs. However they are not proving easy to work with and although they have plenty of hard evidence they do not truly understand him. I have always known my son was special and different but school did not aknowledge there was an issue at all. I fought for years before withdrawing him to home educate and get him diagnosed.

All i can say is hang in there, do plenty of research, get in touch with as many proffesionals as you can to better understand and know how to proceed and get the right support for you child. Never be afraid to ask and never give up.


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