High Needs Baby Support Group (thread V)

(351 Posts)

A new thread for a new year! smile

The original thread was to support those of us with babies fitting the following criteria:

1. Feeds frequently daytime
2. Feeds frequently nighttime
3. Needs to be constantly held
4. Wont sleep alone
5. Hates the car seat/pram
6. Short naps

Some of our babies have grown out of some of those now, but we're still here to support each other through the sleepless nights and noisy car journeys and to offer hugs, chocolate and wine to anyone who's struggling.

So if that list sounds familiar then come and join us as we delight in our active, inquisitive, curious and restless babies or toddlers!

stargirl1701 Fri 22-Feb-13 01:24:17

Looks like 2 hours is what we're getting tonight. DD is awake and screaming again.

stargirl1701 Fri 22-Feb-13 02:35:36

Still up hmm

CabbageHead Fri 22-Feb-13 02:45:12

nightmoves

Am typing whilst the creature is screeching... Yeh we went thru 3weeks of tiniest movement then up on all fours rocking backwards and forwards... Now we are standing in cot all the time but not as bad as the crawling phase... Now its Just don't leave me mummy all the time wailing screeching wahhhhhhh... HO hum.... Wld be ok if he wasn't SO EFFING LOUD... Thought he pierced my eardrum one day... Heh..

OMG my DH is mega disorganized complete Guinness book records rating time management deficient... As in ALWAYS goes to work late... And we just flew to NZ and JUST MADE IT TO CHECKIN with SECONDS to spare... Not very happy... He is SO VERY ANNOYING... And his time mngmnt issue is my biggest reason for divorce challenge with DS as always late coming back from their walk for naps etc DRIVES ME INSANE...

How old is ur DS? They do say that if you don't get sleeping routine org it does get harder the older they get.. Clinical nurse at sleep referral told me that she also took 1 look. At DS and said oh he is high needs, get him to sleep school ASAP.. Funny cos I was beginning to suspect he was high needs myself at that stage lol

Having said that it's also said that doesn't matter what direction you take it's the consistency that matters, so when the specialists try to tell you their way is better, it's a load of shite I reckon, depends on ur LOs personality and your family dynamic as to what will work for you, they all work for someone but I don't reckon. For everyone...

stargirl1701 Fri 22-Feb-13 04:06:43

And, screaming again hmm

CabbageHead Fri 22-Feb-13 07:25:05

stargirl1791
Poor u! The only reason I am awake is because I live on th other side of the world!!!

<tiptoes in quietly puts box chocolate liqueurs, bottle of rescue remedy & crate of sedatives on the table>

stargirl1701 Fri 22-Feb-13 16:09:50

Can I give DD the sedatives? grin

DS was prescribed antihistamines to use as a sedative around the time I started posting on this thread.

They didn't work.

CabbageHead Fri 22-Feb-13 21:58:23

littlemachine
Referring to ur previous post, I've taken to wearing an abdominal support to help with hauling heavy DS around cos the fatigue was insane by end of day.. Cos I hav abdominal separation from pregnancy but didn't find out until 2 mths ago! So supposed to do my Pfexercises a lot but who has time!

DH in charge today... Impending disaster already with OT DS and DH hasn't noticed yet..... Sigh

stargirl1701 Sat 23-Feb-13 05:12:55

2 hours of screaming and counting hmm

stargirl1701 Sat 23-Feb-13 06:24:47

3 hours and counting. hmmhmm

CabbageHead Sat 23-Feb-13 07:45:03

stargirl1701

U mean she's been awake for 3 hours and screaming the entire time or she's been intermittently waking up for the hours and screaming? (both r terrible scenarios) I can't imagine how u r coping... U r amazing ... I wld have been institutionalised by now if it was me...smile

<brings in basin hot water for feet with lavender massage oil and proceeds to massage your feet whilst u attend to the screamer, gentle ocean waves play softly in the background>

stargirl1701 Sat 23-Feb-13 07:47:51

She was awake and screaming continuously for 3 hours. One brief pause for 20 min when she fell asleep.

I decided to make it 'daytime' at 6.30am. Lights on, morning routine, etc. Still awake.

CabbageHead Sat 23-Feb-13 09:27:42

stargirl1701
DS is still awake here happily playing in his cot beaming at the camera monitor...and it's way past his bedtime... I knew I'd pay for it tomorrow having DH look after him today, but it was worth it to escape for nearly the entire day yip yip yippee!

So your DS screams when she is awake? And then doesn't sleep when she should? Does she scream like she is in mega pain? She must be... Have u taken her to allergist? Eczema and reflux often linked to allergy.. Is she happy when she is awake or just always screaming? Does she bf/bottle feed ok? I just can't imagine what u r going thru to be honest... So only stops screaming if u r on the move soothing her?

I read a story about a mother with a newborn that screamed nonstop she had her in sling the whole time and then they found out she had a heart problem and that's why she screamed all the time... U just never know why they r screaming that's the problem... Poor LO and poor u... Is her eczema really bad? It would make me scream if I had it as a baby (I had it as a child)..

Another hour later...

Well I thought it was worth it having the day off.... Still wide awake and way way past OT now... Good one DH thanks for making the Next few days hell again while I play catch... Yet again... Cranky miserable fatigued bub... Every week same thing.. HO hum...

Oh stargirl, lots of sympathy here from me. DS is a screamer. It's just his default. Unhappy? Screaming. Happy? Very loud shouting.

Hope you're ok today.

stargirl1701 Sat 23-Feb-13 12:58:37

She screams a lot. She was a fab baby when she refused to eat for 18 hours. Contented, slept well. I think it may be CMPI but it's taken me 4 months to persuade the GP we need a paediatric referral hmm

stargirl1701 Sat 23-Feb-13 20:06:20

Hello folks. Well, what a day. DD didn't know what hit her. We didn't let her nap as long as she wanted - first bloody time she's ever napped! She went down as normal at 7pm...watch this space grin

Cabbage, I hope your DS isn't giving you too much trouble!

Little, how's your screamer been today? grin

CabbageHead Sun 24-Feb-13 02:42:08

stargirl1701
What Cmpi? Wow wonder what happend?! That's great news hope it continues..

Can't believe ur Gp won't give u a referral that's crazy... I got one off my OB as it was quicker to get them to fax it over than going thru Gp..

Well DH couldn't get DS to sleep last night as he was too late with arvo nap so it was short too, so DS finally went down at 9pm instead of 7pm... So today I am dealing with the OT... Not too bad tho ESP as I had a break yesterday... Just always when u need to go out somewhere do they then not want to take a nap at their usual time... Grrrr

little machine
Maybe you have a mini rockstar! hehe..

Creature is wired and not napping... Ad we are supposed to be going to see daddy play at a music food festival this arvo.. Oh well not my fault he is OT he he he.. Too bad if we miss him play....

<brings in luscious shiny fruit platter blooming with mangoes, strawberries, grapes, blueberries, nectarines, apricots, melons and adorned with sprigs of fresh mint and bluebells>

ClimbingPenguin Sun 24-Feb-13 10:51:31

we used the drowsy antihistamines last night, don't think they helped much. He probably was a little drowsy but still woke for normal feeds.

stargirl1701 Sun 24-Feb-13 19:39:39

Cows Milk Protein Intolerant.

Well, she was up at 5am crying but no hours of screaming smile Teething today so quite grumpy.

Fingers crossed for a reasonable night tonight!

CabbageHead Mon 25-Feb-13 02:01:23

stargirl1701
Yeh sounds like u r on the right track... Hav u eliminated dary from ur diet? It's the commonest allergy cows milk so makes sense why'd sed be screaming all the time and explains the eczema too I guess well hope u get some hope from the paed..

Well DS ended up missing arvo nap in the end so therefore so tired all arvo but won't usually sleep in car r pram so had to get him intobed early.. Walked him around his room in dark like a maniac until he was able to wind himself down to sleep... Don't like to do that cos bad habit and he is over 10kgs but it's either that or he is up for another hour or two...

Today he is mega fatigued... Again.. Early to bed again tonight is all I can do until he catches up... Made DH get up every time he woke up last night... Got to suffer the consequences if you want to play with him all hours...!

Drowsy antihistamines sound great that's just wot I need!..

stargirl1701 Mon 25-Feb-13 03:57:32

Cabbage, give your DH hell! gringrin

We're up screaming from 3am again hmm

HV told us to give her a painkiller. We have her one at 7pm - she slept till 11pm. We gave her another - she slept till 3am. Both 4 hour sleeps - coincidence? Just given another one now.

CabbageHead Mon 25-Feb-13 05:40:01

stargirl1701
Poor bub must be in pain alright... When I suspected DS had reflux, what convinced me in the end to push for some meds, as docs were all against it, was when I gave him panadol for something, and when we were in car it was the first time he hadn't screamed in the car... So I thought he must've been in pain squashed up in his car capsule...

Hope u all get some well deserved rest... DS has been a nightmare to settle again today so fatigued.. Took me 2.15hrs to get him to have a nap this arvo, same as yesterday as he ws so tired both times... Just fights it.. In the end I had to pin him down under really tight sheet so he couldn't escape and play...

Creature is up chat later

Kafri Tue 26-Feb-13 06:59:22

stopping in to say hi. might be spending a fair bit of time here!

taking ds for CO later today. not sure of my opinion on it if im honest but have exhausted all other options so it's worth a shot.

stargirl1701 Tue 26-Feb-13 08:02:29

Good luck Kafri! I hope it works.

Cabbage, how was your day? Did you get back into the nap routine?

The weather yesterday here was amazing, really sunny. We had 3 walks and DD slept outside for 4 hours smile A much better night last night! She stirred a few times but settled back down. We co-slept from half 4.

CabbageHead Tue 26-Feb-13 09:08:47

stargirl1701

I'm so jealous... 4hrs sleeping outside?!... When I first had DS I had this vision of me gardening while he slept peacefully in his pram under the trees...

He's never EVER slept outside... Except a short nap at an animal place where there was a very loud waterfall so I pushed him back n forwards in pram using the waterfall as whitenoise...

Had another horror today. He slept fantastic last night slept right thru from 8.30pm until 5am then amazingly managed to get him back to sleep until 6.45am .. I think.. Our monitor has gone bust so I can't see him anymore or always hear him which is v annoying...

Anyway he is still so tired today, am nap was hideous ended up having to trap him under sheet again... Arvo nap ok although short.. Still awake at 8pm... Sigh... Hopefully he won't wake up all night like last week.. I can't believe it takes him 1.5 hrs to wind down to go to sleep its so annoying spending your entire life settling or not settling... Guess I should co sleep but he, s always been in his own cot so not chnaging now!

I've taken to putting chamomile in his formula, and I'm drinking it as well (still bf overnight)... Anything that might help.. He is just so hard to wind down just one yawn and it's too late.. Just gets majorly over stimulated all the time.. I was crying and sobbing in frustration this morning esp with no support.. It's so hard isn't it but at least here I can whinge read other peoples hard lives and put mine into perspective, and not feel alone...

It's been really hot here most days 27' to 30'C but really humid esp at night time which makes it really difficult to know what to dress DS in as starts with aircon then we turn it off later so either gets too hit or too cold!

I have appt with cranial sacral therapist on Thursday she is Bowen therapist too so really hope it helps..

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